Today went....
GREAT! Alivia's counts were good. Reds still normal, platelets rising and WBC's.....drumroll please.....normal! 14 thousand! That is normal for the very first time in 8 months. I couldn't even believe it. No wonder she's been so happy lately she must feel so good. She grew to 30 inches and weighs 23 lb 3 oz. That is great for her. She was 29 and 1/4 inches for 5 months. Her body is finally getting to do all the things that its supposed to do. AMAZING.
We talked to our transplant doc today. She said that the first 3 people they requested to match didn't "pan out" so they are requesting 3 more. Not paning out could mean it didn't match, the person couldn't be found or that they didn't want to donate anymore. But they have others to try so we are still praying for a perfect match. If no adult match is found they will use a cord blood donor which they have a perfect match already. And the doc said we have time to look for a perfect match..
AND....another drumroll please....she said that if things continue like they are going we won't have to have the spleen removed! Oh I pray pray pray that is the truth. Skipping surgery would be so amazing. One less thing for our girl to go through.
Please pray for continued good news. Pray for the amazing shrinking spleen to continue to shrink, platelets to become normal and other counts to STAY normal.
Thanks to Pam and the Frye family from Safe Harbor U.M. Church for the card, stickers and magnets.
It's Christmas card writing time. Better go.
25 Comments:
Emily,
Yay, Yay, Yay! Prayer is being answered for Alivia. Let's get to the point where we DON'T believe the bad news and DO believe the good news!
You are not alone in this. We are cheering you on and praying, praying, praying.
Hebrews 4:15
For we do not have a High Priest who cannot sympathize with our weaknesses, but was in all points tempted as we are, yet without sin.
Aunt Cheryl
Thanks for sharing such awesome news. I can tell how ecstatic you are and will believe and pray that this is the way things are going to continue to go. Yippe ya hoo!!!
I wanna see her walk... toooo cute :-)
Love ya guys,
Grande Aunt Lisa
What a wonderful blessing! God bless you guys!
Power in Prayer! Love it! Love GREAT news! Yah! Yipee! Soooo, soooo, soooo happy to hear it! So happy for you! How wonderful today must feel for you. I hope you sleep so soundly tonight. Grow, Livi, grow! Awesome!!!
awesome. awesome, awesome.
your weekend sounds like it went so well, im so happy to hear you had tons of good times =)
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ooooh! i'm loving this happy news! thank you Lord! xoxo
So glad to hear things are going well. We're praying.
I am out here cheering and applauding with everyone else - what wonderful news! You must feel as if you have received an early Christmas present! (Or maybe a whole bunch of them!) Continuing to pray for healing - and for peace for all of you!
Cathy S.
Praising the Lord with you
:):):)
Audrey
God is so good! What encouraging news...
will keep praying, as always-
love love, beth
A big whopping woo hoo to ya all!! I so look forward to when Livi will tell her story and to God be the glory.
Shrink - spleen - shrink. "Yet the Lord longs to be gracious to you." Isaiah 30:18
praying each and every moment
Diana B.
So happy to hear all of your great news! Praying for it to continue.
With love,
Amy Fedeli
Don't know what else to say, but YAY!!!!
Caroline
Emily-
What wonderful news! normal WBC count. I was praying for your visit yesterday! I am thankful that Alivia is doing well and that spleen is shrinking. love you-jamie
Oh how good to hear the good news that God blessed Livi with today! It was so good to cry with joy instead of sorrow. So so so happy for you...still praying for more miracles. I love you, Mom
Praise God! I am so glad Alivia's visit went well.
Pauline
That is great news! We pray for Livi every night and it's encouraging to see God holding her little body together.
Uncle Matthew
Oh my, Emily! What GREAT news! God is working and continues to work in Alivia's life. How precious she is to Him! Will continue to expect a good report.
Still praying!
Mary Ann K.
Praise the Lord!!!
Margot Cole
How exciting to hear such encouraging news. It is great to picture Livi with her energy returning. Praise God that he will never leave you nor forsake you in good or bad news...but how good it is to be refreshed with normal blood counts and the energy that comes along. Blessings to you all Love, Beejee
Just delighted to hear your news from yesterday!! God is kind to give blessing in the midst of your suffering. Of course I'm thrilled for normal counts and shrinking spleen, but also how sweet that you can enjoy some "normal" toddler things like walking, talking, growth, and energy. I was very excited to hear that she is walking now. What fun!! She is just soooo cute! I miss seeing her.
Wish I had been able to talk to you last week at The Mill. I was hoping to get a quick minute to talk, but had to leave as soon as I saw you because my kids were getting loony. Not a day goes by that I don't think of you, Emily.
Love,
April Stoltzfus
Tears of joy are in my eyes ...A Huge smile on my face THANK YOU FOR THE GOOD NEWS xoxox BIG GIRL NOW 30inches AWSOME YEAH!!!!!!we are praying here Hugs love CORINA
What wonderful news! That is so exciting. I will pray that the news just keeps getting better, and they will find a donator. I am praying for you guys.
love,
moriah
I had to read the good news over and over. can see the power of prayer. I loved that she can crawl in bed with you and read a book. Enjoy where you are at.
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