Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Friday, May 11, 2007

Day +62

We have decided, after much thought, discussion and prayer, to proceed with the T-cell infusion. It starts at 3 today...so any minute now. She will get infusions 2 days a week for 4 weeks. Please pray that there are NO side affects and that it clears up the GVHD as soon as possible.

She is a sad little girl right now. She had gained almost a pound in the last 2 days. She is breathing differently because her stomach is big again. She doesn't want to do much besides sit on her bed or ride in her car. It's been a long couple of days. Pray hard for Livi. She needs it so much.

My favorite quote from today's talk with the doctor (read with much sarcasm) was when asked if he was thinking of a discharge date he said NO. We're going to be here a few more weeks I guess.

54 Comments:

Anonymous Anonymous said...

We will continue to pray for that sweet little girl and that everything with the infusions goes well.

Natalie Murdick

3:04 PM  
Anonymous Anonymous said...

Praying hard!
Maryann Plesnicher

3:09 PM  
Anonymous Anonymous said...

I will pray that you will have peace with your decision and that this time in the hospital will go quickly and when you ask the doctor again he will say YES there is a discharge date.

I pray that the infusions go well, the GVHD is gone for good and that Livi will "get her smile back."

Our great Savior who saved us from the pit of hell, forgave sinners, who redeemed us and gave us a great inheritance, who calmed the storms, and healed the sick is the same Savior that can heal Livi.

Praying...

Vicki G.

3:22 PM  
Blogger Carol said...

I'm praying Emily...

3:46 PM  
Anonymous Deb Gilgore said...

Our hearts and our prayers are with you and your precious Livi today and every day. May you receive encouraging news in the very near future and may you soon be blessed again with the smile of the one whom you love so very much.

Deb and Rick

3:54 PM  
Anonymous Anonymous said...

Praying that peace that transcends all understanding would guard your hearts and minds as through this difficult time. Precious Livi is never far from our thoughts or our prayers.

Love-
The Priviteras

4:17 PM  
Anonymous Anonymous said...

Praying, Emily - for all of you.
Cathy S.

4:19 PM  
Anonymous Monica C. said...

I am praying for Livi. And for you guys. God bless,

4:35 PM  
Anonymous Anonymous said...

We'll keep praying.
love,
Viv

4:39 PM  
Blogger Sara said...

praying...

4:47 PM  
Anonymous Anonymous said...

Begging God on your behalf for renewed health for Alivia.
~krissy evans

4:52 PM  
Blogger kelli said...

emily, james, and alivia,

i am praying for you all!

when i was in the hospital last year (not nearly to the extent you are all enduring, with grace, i might add), i came upon this spurgeon quote that encouraged me greatly. i am praying for you, and can't wait to meet alivia.


Remember, there is never a thoughtless action on God's part. His mind goes with His hand. His heart is in His action. He thinks so much of His people that "the very hairs of your head are all numbered" (Luke 12:7). He thinks not only of the great things, but also of the little things that are incidental to the great things, such as the number of hairs on your head.

Every affliction is timed and measured. Every comfort is sent with a loving thoughtfulness that makes it precious. The Divine Mind exercises great thoughtfulness toward the Lord's chosen. Nothing happens a result of a remorseless fate. All your circumstances are ordered in wisdom by a living, thoughtful, and loving God.

Our heavenly Father knows what He is doing. Even when His way appears to be involved and complicated and we cannot untangle the threads, the Lord sees all things clearly. His breadth exceeds the range of our vision; His depth baffles our profoundest thought. "Your way was in the sea, Your path in the great waters, and Your footsteps were not known" (Ps. 77:19).

When we are overwhelmed with wonder, we are humbled by the reminder, "Indeed these are the mere edges of His ways, and how small a whisper we hear of Him!" (Job 26:14).

8:09 PM  
Anonymous Anonymous said...

We are praying hard for "Yivia" (as our 2 year old Timothy says)
The Calvettis

8:51 PM  
Blogger momofcolin_chloe said...

Praying so hard and so often and with much passion.

9:47 PM  
Anonymous Anonymous said...

The Fedelis are praying for you this weekend.

9:51 PM  
Anonymous Anonymous said...

Hi there,
Happy Mother's Day! You are the best mom ever!
We pray that you and Alivia will be happy today.
Love,
Margot and Chuck Cole

9:54 PM  
Anonymous tina said...

praying for livi and you all. love to you all xoxo

10:51 PM  
Anonymous Anonymous said...

You are in my thoughts
In my prayers

God Bless You

Phyllis

10:57 PM  
Anonymous Anonymous said...

Just wanted you to know that believers in Colorado are also interceding on Livi's behalf. I am praying Ephesians 3:17-20 for all of you, that God will surround you and strengthen you and give you His peace and joy and that know the love of God in new and amazing ways!

A little guy in our church went through a pretty rough time with leukemia two years ago. He's doing really well now. Maybe it would be comforting to check out his website. It's www.jeremiahroberts.com

11:56 PM  
Anonymous carime kreiser said...

I have been following your story ever since I signed up to be a bone marrow donor at Livi's drive. I will definitely pray for you. As a nursing student whom did my oncology rotatioon at Hershey last fall I know all too well about GVHD. I pray that she has a quick recovery and does not suffer from the agonizing pain and itchiness that it causes. I pray that this new treatment works safely and effectively.
Carime Kreiser

12:10 AM  
Anonymous Anonymous said...

Praying for Livi ... complete healing with JOY! Love, Janet S.

4:16 AM  
Anonymous Anonymous said...

We're praying.

The Plains

4:20 AM  
Anonymous kathy said...

thinking of all of you this morning-
lifting Livi and her "team" before the throne of grace!

8:07 AM  
Anonymous Anonymous said...

I'm praying...
Christi

9:06 AM  
Anonymous Anonymous said...

I think and pray for you often.
Carol Landis

9:46 AM  
Anonymous Anonymous said...

We are praying for you all! Betsie

10:22 AM  
Anonymous Rachael said...

A refuge for the poor, a shelter from the storm
This is our God
He will wipe away your tears and return your
wasted years
This is our God


Savior, He can move the mountains
Our God is mighty to save,
He is mighty to save.
Forever, author of salvation,
He rose and conquered the grave,
Jesus conquered the grave

prayin hard : )

Rachael

12:42 PM  
Anonymous Beth Young said...

We are all praying over here.

1:14 PM  
Anonymous Anonymous said...

We are praying for dear Alivia and for the infusions to go well!!!
Becca

4:41 PM  
Blogger beth said...

Praying for healing
Praying for peace
Praying for strength

Beth

10:02 PM  
Blogger Adalie Plain said...

Praying.

(Love, Kelsi Atticks and Adalie)

10:47 PM  
Blogger Bueche said...

We are with you, Emily, concentrating on Alivia's immediate needs and long term.

11:29 PM  
Anonymous Anonymous said...

Thanks again for keeping us up to date with specific prayer needs. I am praying that the GVHD disappears and never comes back, but Livi's smile does.
Again, what a comfort it is for Livi knowing you are a constant love by her side.
Please be encouraged that you are an amazing Mom and are the best mom Livi could ever have.
Diana B.

12:28 AM  
Anonymous Anonymous said...

I just wanted to wish a Happy Mother's Day to the strongest mom I know. we're thinking of you always!

love,
Cousin Sarah

12:06 PM  
Anonymous Anonymous said...

Happy Mother's Day Emily. Praying for Livi, you, and James.

Love,
Lynn

2:29 PM  
Anonymous Anonymous said...

HAPPY MOTHER"S DAY EMILY! You are a terrific mother and wife, and my prayer for you for the next year is that by this time next year, life will be easier for you, and that if it's the Lord's will, livi will be healed. Have a great time celebrating being a mother to the CUTEST GIRL AROUND!!!!

love ya,
moriah

4:40 PM  
Anonymous Anonymous said...

P.S.I will pray that livi will be happy soon. That her face will light up with such a big smile, you can't help but give her one back. I will pray that she starts feeling better also.

moriah

4:42 PM  
Anonymous Anonymous said...

We're praying for Livi and for all of you every day. May our Lord continue to give you His strength and His wisdom and the faith and peace that come only from Him.
Jean R.

5:15 PM  
Anonymous Ang said...

HAPPY MOTHER'S DAY EMILY!
You are one of the MOST amazing mom's that I have ever seen. I am often amazed at your sacrificial care for Livi.....It seems like you never wear out---(I know that you do---but you don't express it..) Thank you for being an example to me in so many ways & for loving Livi sooo much! I am glad that she has a mom like you. May God bless you today as you are in the middle of this journey---& I pray that he would give you every ounce of strength that you need. Love you lots!
-Ang

7:13 PM  
Anonymous Anonymous said...

Happy Mother's Day! You are the mom of the year, perhaps the century!

Love, Les

7:39 PM  
Blogger momofcolin_chloe said...

This comment has been removed by the author.

8:10 PM  
Blogger momofcolin_chloe said...

Happy Mother's Day, Emily! I hope this day was blessed through more smiles from your girl!

8:11 PM  
Anonymous tina said...

i had to wish you a happy mom's day emily! what a mom you are! you are doing a great job loving & caring for livi! much love xoxo

9:06 PM  
Anonymous Lisa Gallo said...

Emily,
My heart is going out to you this Mother's Day as you spend another day caring for your precious girl. I know these experiences bring us to a place of mothering that we never would have chosen; one of brokeness, one of desperate prayer. I also know the faithful God's hands that we place their ultimate care into and I know He is faithful. Please know you and James and your family are in our prayers. We pray for amazing grace to be poured out upon you all. You are loved, lisa gallo

9:15 PM  
Anonymous Anonymous said...

Happy Mother's Day!! Praying for you as well!
Sue F.

9:20 PM  
Blogger Joe.Karen said...

we are praying for you two so much. the two of you have such strength, stamina, and perserverance. we pray that you will have peace, REST, and continued faith.

love,
karen & joe

10:01 PM  
Anonymous Anonymous said...

Praying for Livi!
Kristen Evans

11:21 PM  
Blogger Tonya said...

Hi Neighbor,

Happy Mother’s Day, Emily!

Yes, it’s your hospital neighbor (7263). The loud and rowdy group from across the hall (Michael, Tonya and Carrie, the horse lover). Emily, you and your family are being lifted much and often in our prayers. I think of you and Alivia often and hoping that all is well.

For where two or three come together in my name, there am I with them. Matthew 18-20

“Never will I leave you; never will I forsake you.” Hebrews 13: 5

YOU ARE NOT ALONE!

We will see you soon, give the baby a big hug and kiss for us! Love you much, Hang in!

with LOVE+,
tJoy

12:15 AM  
Blogger Tonya said...

Hi Neighbor,

Happy Mother’s Day, Emily!

Yes, it’s your hospital neighbor (7263). The loud and rowdy group from across the hall (Michael, Tonya and Carrie, the horse lover). Emily, you and your family are being lifted much and often in our prayers. I think of you and Alivia often and hoping that all is well.

For where two or three come together in my name, there am I with them. Matthew 18-20

“Never will I leave you; never will I forsake you.” Hebrews 13: 5

YOU ARE NOT ALONE!

We will see you soon, give the baby a big hug and kiss for us! Love you much, Hang in!

with LOVE+,
tJoy

12:15 AM  
Anonymous Anonymous said...

Dear Emily, James and Alivia-
We won't stop praying! You are so loved. God, let mercy, grace, and comfort rest upon your three precious children tonight. Amen.
Aunt Marcy

12:45 AM  
Blogger beth said...

praying hard.
praying and praying.
loveyouall so very much.
beth

8:42 AM  
Blogger momofcolin_chloe said...

Hey Em,

Thanks for taking the time to wish me a happy day! You are amazing! And, I agree, boring, boring, boring would be great! Then maybe we can catch up! :)

8:59 AM  
Blogger Fran said...

My family and I will be praying for your dear little one, as well as your family.
Blessings,
Fran Bell

6:46 PM  
Anonymous Anonymous said...

Hey girl,

Is everything o.k. (you know what I mean) We haven't heard from anyone in a few days and, of course, we get concerned. We know you have a million things going on, and that posting isn't on the top of your list, but we miss your words!

Praying, praying praying. Especially that the bone marrow would become as her very own and that all traces of the GVSD would disappear.

We love you all. We love Livi.
kristi

12:42 AM  

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