I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +62
We have decided, after much thought, discussion and prayer, to proceed with the T-cell infusion. It starts at 3 today...so any minute now. She will get infusions 2 days a week for 4 weeks. Please pray that there are NO side affects and that it clears up the GVHD as soon as possible.
She is a sad little girl right now. She had gained almost a pound in the last 2 days. She is breathing differently because her stomach is big again. She doesn't want to do much besides sit on her bed or ride in her car. It's been a long couple of days. Pray hard for Livi. She needs it so much.
My favorite quote from today's talk with the doctor (read with much sarcasm) was when asked if he was thinking of a discharge date he said NO. We're going to be here a few more weeks I guess.
posted by Alivia's Momma @ 2:55 PM
54 Comments:
We will continue to pray for that sweet little girl and that everything with the infusions goes well.
Natalie Murdick
Praying hard!
Maryann Plesnicher
I will pray that you will have peace with your decision and that this time in the hospital will go quickly and when you ask the doctor again he will say YES there is a discharge date.
I pray that the infusions go well, the GVHD is gone for good and that Livi will "get her smile back."
Our great Savior who saved us from the pit of hell, forgave sinners, who redeemed us and gave us a great inheritance, who calmed the storms, and healed the sick is the same Savior that can heal Livi.
Praying...
Vicki G.
I'm praying Emily...
Our hearts and our prayers are with you and your precious Livi today and every day. May you receive encouraging news in the very near future and may you soon be blessed again with the smile of the one whom you love so very much.
Deb and Rick
Praying that peace that transcends all understanding would guard your hearts and minds as through this difficult time. Precious Livi is never far from our thoughts or our prayers.
Love-
The Priviteras
Praying, Emily - for all of you.
Cathy S.
I am praying for Livi. And for you guys. God bless,
We'll keep praying.
love,
Viv
praying...
Begging God on your behalf for renewed health for Alivia.
~krissy evans
emily, james, and alivia,
i am praying for you all!
when i was in the hospital last year (not nearly to the extent you are all enduring, with grace, i might add), i came upon this spurgeon quote that encouraged me greatly. i am praying for you, and can't wait to meet alivia.
Remember, there is never a thoughtless action on God's part. His mind goes with His hand. His heart is in His action. He thinks so much of His people that "the very hairs of your head are all numbered" (Luke 12:7). He thinks not only of the great things, but also of the little things that are incidental to the great things, such as the number of hairs on your head.
Every affliction is timed and measured. Every comfort is sent with a loving thoughtfulness that makes it precious. The Divine Mind exercises great thoughtfulness toward the Lord's chosen. Nothing happens a result of a remorseless fate. All your circumstances are ordered in wisdom by a living, thoughtful, and loving God.
Our heavenly Father knows what He is doing. Even when His way appears to be involved and complicated and we cannot untangle the threads, the Lord sees all things clearly. His breadth exceeds the range of our vision; His depth baffles our profoundest thought. "Your way was in the sea, Your path in the great waters, and Your footsteps were not known" (Ps. 77:19).
When we are overwhelmed with wonder, we are humbled by the reminder, "Indeed these are the mere edges of His ways, and how small a whisper we hear of Him!" (Job 26:14).
We are praying hard for "Yivia" (as our 2 year old Timothy says)
The Calvettis
Praying so hard and so often and with much passion.
The Fedelis are praying for you this weekend.
Hi there,
Happy Mother's Day! You are the best mom ever!
We pray that you and Alivia will be happy today.
Love,
Margot and Chuck Cole
praying for livi and you all. love to you all xoxo
You are in my thoughts
In my prayers
God Bless You
Phyllis
Just wanted you to know that believers in Colorado are also interceding on Livi's behalf. I am praying Ephesians 3:17-20 for all of you, that God will surround you and strengthen you and give you His peace and joy and that know the love of God in new and amazing ways!
A little guy in our church went through a pretty rough time with leukemia two years ago. He's doing really well now. Maybe it would be comforting to check out his website. It's www.jeremiahroberts.com
I have been following your story ever since I signed up to be a bone marrow donor at Livi's drive. I will definitely pray for you. As a nursing student whom did my oncology rotatioon at Hershey last fall I know all too well about GVHD. I pray that she has a quick recovery and does not suffer from the agonizing pain and itchiness that it causes. I pray that this new treatment works safely and effectively.
Carime Kreiser
Praying for Livi ... complete healing with JOY! Love, Janet S.
We're praying.
The Plains
thinking of all of you this morning-
lifting Livi and her "team" before the throne of grace!
I'm praying...
Christi
I think and pray for you often.
Carol Landis
We are praying for you all! Betsie
A refuge for the poor, a shelter from the storm
This is our God
He will wipe away your tears and return your
wasted years
This is our God
Savior, He can move the mountains
Our God is mighty to save,
He is mighty to save.
Forever, author of salvation,
He rose and conquered the grave,
Jesus conquered the grave
prayin hard : )
Rachael
We are all praying over here.
We are praying for dear Alivia and for the infusions to go well!!!
Becca
Praying for healing
Praying for peace
Praying for strength
Beth
Praying.
(Love, Kelsi Atticks and Adalie)
We are with you, Emily, concentrating on Alivia's immediate needs and long term.
Thanks again for keeping us up to date with specific prayer needs. I am praying that the GVHD disappears and never comes back, but Livi's smile does.
Again, what a comfort it is for Livi knowing you are a constant love by her side.
Please be encouraged that you are an amazing Mom and are the best mom Livi could ever have.
Diana B.
I just wanted to wish a Happy Mother's Day to the strongest mom I know. we're thinking of you always!
love,
Cousin Sarah
Happy Mother's Day Emily. Praying for Livi, you, and James.
Love,
Lynn
HAPPY MOTHER"S DAY EMILY! You are a terrific mother and wife, and my prayer for you for the next year is that by this time next year, life will be easier for you, and that if it's the Lord's will, livi will be healed. Have a great time celebrating being a mother to the CUTEST GIRL AROUND!!!!
love ya,
moriah
P.S.I will pray that livi will be happy soon. That her face will light up with such a big smile, you can't help but give her one back. I will pray that she starts feeling better also.
moriah
We're praying for Livi and for all of you every day. May our Lord continue to give you His strength and His wisdom and the faith and peace that come only from Him.
Jean R.
HAPPY MOTHER'S DAY EMILY!
You are one of the MOST amazing mom's that I have ever seen. I am often amazed at your sacrificial care for Livi.....It seems like you never wear out---(I know that you do---but you don't express it..) Thank you for being an example to me in so many ways & for loving Livi sooo much! I am glad that she has a mom like you. May God bless you today as you are in the middle of this journey---& I pray that he would give you every ounce of strength that you need. Love you lots!
-Ang
Happy Mother's Day! You are the mom of the year, perhaps the century!
Love, Les
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Happy Mother's Day, Emily! I hope this day was blessed through more smiles from your girl!
i had to wish you a happy mom's day emily! what a mom you are! you are doing a great job loving & caring for livi! much love xoxo
Emily,
My heart is going out to you this Mother's Day as you spend another day caring for your precious girl. I know these experiences bring us to a place of mothering that we never would have chosen; one of brokeness, one of desperate prayer. I also know the faithful God's hands that we place their ultimate care into and I know He is faithful. Please know you and James and your family are in our prayers. We pray for amazing grace to be poured out upon you all. You are loved, lisa gallo
Happy Mother's Day!! Praying for you as well!
Sue F.
we are praying for you two so much. the two of you have such strength, stamina, and perserverance. we pray that you will have peace, REST, and continued faith.
love,
karen & joe
Praying for Livi!
Kristen Evans
Hi Neighbor,
Happy Mother’s Day, Emily!
Yes, it’s your hospital neighbor (7263). The loud and rowdy group from across the hall (Michael, Tonya and Carrie, the horse lover). Emily, you and your family are being lifted much and often in our prayers. I think of you and Alivia often and hoping that all is well.
For where two or three come together in my name, there am I with them. Matthew 18-20
“Never will I leave you; never will I forsake you.” Hebrews 13: 5
YOU ARE NOT ALONE!
We will see you soon, give the baby a big hug and kiss for us! Love you much, Hang in!
with LOVE+,
tJoy
Hi Neighbor,
Happy Mother’s Day, Emily!
Yes, it’s your hospital neighbor (7263). The loud and rowdy group from across the hall (Michael, Tonya and Carrie, the horse lover). Emily, you and your family are being lifted much and often in our prayers. I think of you and Alivia often and hoping that all is well.
For where two or three come together in my name, there am I with them. Matthew 18-20
“Never will I leave you; never will I forsake you.” Hebrews 13: 5
YOU ARE NOT ALONE!
We will see you soon, give the baby a big hug and kiss for us! Love you much, Hang in!
with LOVE+,
tJoy
Dear Emily, James and Alivia-
We won't stop praying! You are so loved. God, let mercy, grace, and comfort rest upon your three precious children tonight. Amen.
Aunt Marcy
praying hard.
praying and praying.
loveyouall so very much.
beth
Hey Em,
Thanks for taking the time to wish me a happy day! You are amazing! And, I agree, boring, boring, boring would be great! Then maybe we can catch up! :)
My family and I will be praying for your dear little one, as well as your family.
Blessings,
Fran Bell
Hey girl,
Is everything o.k. (you know what I mean) We haven't heard from anyone in a few days and, of course, we get concerned. We know you have a million things going on, and that posting isn't on the top of your list, but we miss your words!
Praying, praying praying. Especially that the bone marrow would become as her very own and that all traces of the GVSD would disappear.
We love you all. We love Livi.
kristi
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