Day +46

Livi is allowed to wander less crowded parts of the hospital as long as she has a mask on. We avoid crowds and take elevators that no one is on. Here she is on one of her outings.

Today's med infusion went well. Our doc said that since she didn't react the first few times they would assume that she wont' react. What a blessing. Her nap was no where near as long as yesterdays.

She had a pretty rough night last night. I am hoping we don't repeat it tonight. She was up for over 2 hours crying and I wasn't able to console her no matter what I did. Finally we got some meds for gas and that seemed to finally help her to settle back to sleep. She has been eating GoGurts like crazy (8 today) and tends to gulp them down so her belly doesn't feel great after. Also she is getting 2 teeth. Yikes. So she had some really unhappy times today. Pray the teeth come in quickly and that she will be hungry for something besides GoGurts.

Her Liver functions were down again today. So after a few more days they will start to taper the levels of steriods. I am glad. I want her off of steriods as soon as possible. Pray that the GVHD is gone and that it doesn't return!! (it is possible to get it even 100 days after transplant.)

My parents are coming back tomorrow and we will be glad to see them agian. If you haven't gotten a chance to see them they will be leaving by 3 tomorrow so don't miss your chance.

Thanks to Cynthia and Bill for coming to visit and help today. It would have been a long day without any company (not sure how single parents or parents without support do this!!)
Thanks to Margaret O'Dell for your sweet letter and the coupons.