Day +65

Today Alivia will have a CT scan. It is required for the use of the T-cells that you have one within a set number of hours after your first infusion. It is scheduled for noon and hopefully will be on time because she's not allowed to drink or eat till its over. She woke up saying eat and asking for her cup. I hate having to deny her when we've been pushing food so hard for so long.

The CT scan is just part of the protocol but might end up being a good thing. For a while she was breathing quickly and now she is breathing really slow. She holds her breath for a second after each time she inhales. It odd. Also she threw up 3 times yesterday. She hasn't thrown up in quite a while. It is so sad. She woke up at 5 am and threw up. So she hasn't had a thing to eat or drink since midnight to make sure she doesn't throw up during the CT (she'll be under anesthesia)

Pray...
that the CT scan that it is on time and that it goes quickly and easily,
that she reacts well to anesthesia and there are no complications,
that she can handle not eating or drinking for another few hours,
that they don't find anything with the scan
that the NG tube replacement goes well. While she is under the anesthesia they are going to switch it to the other nostril. it is better to do when she's asleep but still makes me nervous.
Pray hard that Alivia gets well. It feels like one step forward and a leap backwards.

thanks to Vinson and Joy Sensenig for the book. Andrew for the movie, Natalie M. and family for the care package. Marmie for the card. Krissy Evans for the generous gift. Hannah Knutsen for the sweet card and Jill Piper for th generous gift.