I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.MRI Results
It has been a long day. We didn't go for the MRI until almost 8. By then Alivia was asking to eat every 5 seconds (literally). I'm not sure if it is because it is the weekend or what but we had to take our bed. So that ment moving all the furniture out of the way, everything out from under the bed. Mom and some of the nurses gave our room a through cleaning while we were gone. The MRI took about 45 min and the we had to go to recovery (which we weren't happy about) In recovery she had to wear her mask cause it's not sterile so she was panting under her mask. WE finally got upstairs, where we had to rearrange our entire room to get the bed back in. OUr resident (who we really like) came in and told us what they found. IT is called Posterior REVERSIBLE Encephalopathy Syndrome. It is usually found in pregnant women. The symptoms are vision problems, possible speech problems, confusion and seizures. IT could have been brewing for a while but because a two year old would have a hard time telling us any of those symptoms (Besides seizure which would be obvious) we wouldn't have known. The causes are high blood pressure (which we have), renal failure (which we had and are recovering from) and cyclosporin (which she takes 3 times a day). This is the best possible thing to be the cause of this. It could have been a million times work (like fungal ball or a tumor!!) Thank God.
We got all her meds, ate our dinner (around 10) and she is fast asleep. She didn't sleep all day besides cat naps after the seizures. All in all this was a crazy day that I never ever want to relive. Thanks for your prayers.
posted by Alivia's Momma @ 11:05 PM
41 Comments:
Thank God, Emily! I hope you can get something like rest tonight. You must be wrung out. I am continuing to hold you all in my thoughts and prayers.
Cathy S.
We as a family dropped everything and prayed together as soon as I read the previous update.
Thank God that this horrible day ended with favorable answers. Could you imagine going weeks trying to figure out what was going on?
We continue to pray for the T-cell treatment.
THANK YOU for posting the MRI results. It's such a relief to know that it wasn't the other things, but I can't imagine, for one second, what your day was like.
For those of us who look several times a day to see if anything has changed, I so appreciate you getting the results to us tonight. We'll all sleep better.
We're praying HARD
kristi
Thanks for posting the results, I feel much better now too.
Please ask Gigi to call me again.
praise God! glad to hear that the results of the MRI were something favorable. praying hard that the T-cell treastment is going well and that things keep improving. thanks for taking time to post for us even though this day was probably crazy.
"Savior, He can move the mountains
Our God is mighty to save
He is mighty to save"
made to worship,
rachael s
Praise God!!! I went to bed so worried last night. Glad I checked first thing this morning. Hope today is a less eventful day and that you all can rest a bit. Poor baby girl!
Love, Yoders
Hi Emily and James,
Praying here in Gaithersburg. God is so kind -- we love you all.
Lotinskys
So thankful, dear Emily! Thank you, Lord! I will continue to pray for your sweet baby girl.
Kathie
Crying, clapping and rejoicing. Thanks God. I pray today is peaceful accompanied with some smiles and giggles.
I am so glad the answers came quickly. Is she seeing ok?
Diana B.
Praise God! I am so relieved. Thank you for posting the results so quickly ... our hearts are with Livi and you, and we are ever praying for more of the Lord for all of you. Peace be upon you and Livi, Janet S.
oh thank you Lord! what great news. thank you emily for keeping us updated even after your long crazy hard day. xoxo
Praising God for this wonderful news!! I checked in first thing this am before heading off to church. Praying that the Lord removes all the awful images of yesterday and replaces them with reminders of His steadfast faithfulness!!!
Continuing to pray!
Kathi (friend of the Jansens and Priviteras...go to SGC In NJ)
I'm am so glad that the MRI revealed reversible conditions! Thanks for being so faithful with updating!
Natalie M
Praying, praying for all of you at this most difficult time. Thank goodness that the condition is reversible. You have all been so strong. Please God heal this little angel.
Ann P.
Dear Emily, James, Alivia,and family,
I'm praising God for good results! We continue to pray for all of you.
J&J R.
We sure wish Alivia, Emily and James could all be home together by now (who doesn't!). However, we are glad that God has protected Livi through this blindness and seizure. God's grace was there in that James was able to be in the room when it happened as well.
James, your doing well at persevering for your wife and daughter. Your strength comes from God and is a rock for Emily and Alivia.
Love you guys.
Matthew H.
So, so thankful! Will continue to pray for her complete healing! Thanks so much for taking the time to update! You must have been exhausted!
We praise God with you! How scary it must be for you...
We love you!
Dan, Julie & Jude
Joining with everyone in praising God and asking for complete healing of Alivia!
Thank you so much for keeping us up to date with your posts.
Still Praying!
Mary Ann K.
Thank you, Lord.
When I read Uncle Paul the things that you said on the blog could have caused the loss of sight, he said, "No." I said, I agree with you, "No." Glad to hear that it's not caused by a "fungal ball" (whatever that is). No, no, no! Aunt Cheryl
Em,
I'm going to be honest and say I want to scream right now...so, because I'm sure that may not be overly accepted in your circumstance, I'll do it for the both of us. Okay... finished! Everything sounds so scary but as long as you are happy with these results, so am I! Reading everyday, praying every night!
Love Shannon
oh my goodness. i can't even imagine all the emotions you went through. praise God that it was the best possible result you could have hoped for (besides not having to deal with any of it at all in the first place!) under the circumstances. you continue to be in our daily prayers. lots of hugs to you emily & alivia...and of course lots of hugs for the rest of the gang too.
love,
karen & joe
Emily, you continue to be the strongest, most courageous Mom I know...what you are doing for Livi is incredible. Thank you for the wonderful care you are taking of her! Mom
So grateful....and STILL praying!
I had a nice long talk with Gigi this morning and am amazed by your strength, Emily, and your faith. I am continuing to pray for Livi and asking everyone who I know to do the same. I thank God that Pa is there with you all as a "Rock", I feel it is his purpose! James keep up the hard work and may you continue to have the strong family support system that is there lifting you up each day.
We don't post comments often, but just wanted to let you know our family is continually reading these updates and bringing Alivia and all of you before our gracious God in prayer. Each day, many times thru-out the day I lift a quick prayer for you guys, and I don't even know you. Take heart there are many many families praying for you that you have never even met.
D. Madison (Reading church)
Praise the Lord! I wanted you to know that I took some photos from this site and the last few blog postings with me to our prayer meeting at church. I made sure each prayer table had a copy and Alivia and your whole family was surrounded in prayer. The faithful members of this group will continue to cover you in prayer. God Bless! Thank you for keeping us all posted.
Praising God! Well, that they found out what it is, but praying for healing.
From Casting Crowns, "Praise You In This Storm"
And I'll praise you in this storm
and I will lift my hands
for You are who You are
no matter where I am
and every tear I've cried
You hold in your hand
You never left my side
and though my heart is torn
I will praise You in this storm
----Sue F.
Emily,
sounds like you need a break outside the hospital. Want to go out for dinner sometime this week? Or even lunch would work and Ryan would tag along. Email me some times that you're available and have plenty of Livi coverage and we'll sneak off together for a while.
Holly
I am PRAYING-
GOD'S BLESSINGS TO ALL
Phyllis
We were in conn. this weekend. We heard what was happening and stopped with Jamie's family and prayed for Alivia. We thank God that She is OK. Thank you Emily for tirelessly keeping us all updated through this exhausting time. We love you all.
Lyndon
James and Emily,
I am thankful for this blog and for the many people who are praying for you. I was reading this past week about the prophet Elisha and how his servant was dismayed by the size of the enemy's armies, but Elisha replied in faith about the unseen army of God on their side. Seeing all these comments, there is an unseen army of prayer warriors for Alivia daily lifting her up! I hope that encourages and blesses you.
I also thought of maybe in the future when I comment, to leave some of the prayers I've been praying so that you can hear and be encouraged by the prayers.
(And if you're reading this comment and are like me and you read all the comments left by others, can I encourage you comment leavers to do the same as well and leave maybe snippets of your prayers so that James and Emily can hear the prayers for them and Livi? :-) )
Love you all,
Sara
Today's prayer-
Thank you God for continuing to be faithful to this dear family. Even with this little shake up, your faithfulness remains. Thank you Lord for the quick and favorable diagnosis revealed by the MRI scan. I pray that with all the medicines Livi is taking you are protecting her organs and body.
I pray for Emily and James that they would find their comfort in you for you are the source of all comfort and true joy. I pray for sleep and rest for James and Emily, for they are your gifts.
Lord, thank you for saving James and Emily! Thank you for choosing them and for sending your Son to die on the cross for them to wash them clean and to give them life and hope in you God. "Those who hope in you will not be disappointed..." Isaiah 49:23.
Amen.
Praise God for His mercies which are new each morning. Continuing to pray for each of your requests. Emily, you are doing an awesome job keeping your eyes fixed to the cross. Thank you for your example. Thank you for all the updates as difficult as they must be to write...you truly are serving us by keeping us informed.
God Bless, Pauline
Wow! Its hard to saying anything except I continue to keep you in my prayers. Thanks for the updates after the MRI.
Heidi
Emily & James,
We are so sorry for the hard day you all had. The church prayed as a whole on sunday for you all. Thank you for posting so quickly of the MRI results. We won't stop praying for you.
Love,
The Scherf's
Good Lord in Heaven. Just reading what has gone on over the past few days makes me want to fall on the floor, crying out to God. I am sorry that you had to go through that. I am sorry Alivia had to go through that. And thank you LORD that it is all reversible. Thank you, God! I PRAY that nothing terrifying like that ever happens again! God bless!!
Continuing in prayer for Livi today ... Hope she is getting better ... Love, Janet S.
I will be praying for her. I am sure this is the last thing you wanted, but even though it hard to think about, just remember God wanted this to happen. I have trouble thinking why God would want this to happen to a little two year old, but we need to remember that he sovereign, and no matter what we need to trust him. You are in my thoughts and prayers.
love ya all,
moriah
Thank you God for good news! We know it's all "good" but oh how we have come to appreciate every single little bit of any part of a good report !!
Aunt Marcy
Aunt Gretchen,
Sr. Annina asks about Livi all the time and she and the other retired Sisters are all praying for her.
Betsie
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