I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day Off
Well we took the day of from blogging today...sort of since I still checked for comments every once in a while.
I slept in my own bed, took a shower in my bathroom, went to the grocery store, organized and just enjoyed being "normal" for a day. It definelty was a rough night last night. I had huge expectations that we would come home and Livi would be so relieved to be in her own bed that she would sleep great. Not the case. Instead she slept worse than the night before in the hospital. Guess she's going to have to re-adjust too. She also didn't take a morning nap and cried whenever she thought she might have to get in bed. Thankfully tonight she went to bed easily. Guess I need to learn to not expect so much. I was, of course, the over protective mom all night and all day today. Its funny the protective bubble I felt in the hospital. I could be sure everything was clean and people were washing their hands (I became a bit crazy with that one). Funny how easily I put my trust in a place, or peoples words or a routine. I am learning (very very slowly obviously) that I need to trust God in all things. Not just the tough things...like sickness.
Regardless it was good to be home. Cynthia, Vivian and my mom cleaned my house for me! Not even something I could have thought of doing today but something that needed to be done. Such a huge help not to have to worry about it. My dad and I ran a bunch of errands including getting Easter pictures developed. I just love seeing her outside the hospital. And she looks so normal that you wouldn't even know anything was wrong if you didn't see the blood counts. Through this all that is what has been really hard for me. It almost seemed like she was fine and outwardly all that was wrong were the results of what we did to try to fix the problem. I know that what we did test wise was and is important. It just felt like we were making her sick. But if we can fix it in the long run its all worth it.
Thanks for today....
A clean house by Vivian Haughery, Cynthia Haughery and Mom. It probably never looked this great. Thanks
Balloons from the Knutsen family...she does love those balloons
Hat from the Boronow family (even on vacation they thought of Livi)
and a great card from Hannah Haughery (Alivia's almost 9 month of cousin)
Our appointment got moved to 9 AM tomorrow instead of 10. It will be good to get in and get all the labs done early. Hopefully that means we'll be home even earlier. I have to go pack a bag just in case though. I will write more tomorrow.
posted by Alivia's Momma @ 9:18 PM
11 Comments:
Emily,
I just talked to Tommy's friend Aaron - he was the best man in our wedding. He's a bone marrow transplant specialist (he & tommy did pharmacy school together - he's also a pharmD) and he helped me decipher through the discharge paper jargon. It may encourage you that he sounded almost certain that leukemia is not present, but perhaps an infection of some sort. He said to call him for anything - to talk about her labs, explanations of treatments, etc. I'm sure the doctors have been very thorough with you, yet sometimes it helps to talk it through.
I just know that God has done something miraculous here and we're just starting to see the signs of it. I pray that you'll find more from the tests tomorrow and that we'll be witness to Alivia's quick healing. We have a big God, so I'm asking for big things!!!!
Good to hear that you had a "normal" day at home and you've gotten some rest. Thanks for keeping these updates for me and everyone who is out of state, far away, and wants to know the latest and how to pray specifically and serve your family.
Love, Beth
Praying for God's angles to sing to YOUR precious angel through the night to help her rest peacefully.
Blessings to your family!
Jill P.
Hey em... thought of you a lot today... will be praying for tomorrow. She looks so lovely in her easter pictures... thank you. i love you//xxoo,
bethie
Emily, we are thinking about you and James and olivia. We missed coming to visit you because Tracy was not well.I am thinking about your man James and praying for him as he leads his two favorite girls.God has been so gracious in bringing you all together,the three of you that is.This is such a great way to keep us informed of the day to day . Thank you Emily. We love you.
Good Morning !
Please know that we will be in prayer for Livi's labs this am.
Glad you had a sort of normal day...running errands, organizing...it is funny how we take those things for granted.
Hope she slept well last night.
The Easter pics were great. It was wonderful to see her playing in the grass and wearing her beautiful dress. So sweet!
Call if you need anything.
Love ya- Les and the fam
Emily-
I am glad that you had the day to organize and be with your family. We are praying for you this morning and for the appointment- low white blood count.
"May the Lord direct your hearts to the LOVEof God and to the STEADFASTNESS of Christ." 2 Thes 3:5
"Now may the Lord of peace himself give you peace at all times in EVERY way." 2 Thes 3:16
love you-jamie
Emily, James and Alivia,
Each of you were in my prayers this morning:
Livi, I prayed over your lab work, and that God would grant you a miracle of not being sick.
James, I prayed that would give wisdom, guidance and strength to lead your family.
Emily, I prayed that you would trust God today, and that He would strengthen you. I also prayed that God would help you to trust your husband's leadership.
Much love,
Lori (and Lane) Randolph
Oops! I meant to write that God would give James wisdom, guidance and strength to lead your family.
I guess I should preview my comments before I "publish" them ;-)
Emily, James, and Alivia:
I'm so thankful for the time you've been given back at your own home. It's so great to see how God continues to bless you with support and care from those around you. I will be praying for you as you return to Hershey today. And I'll keep praying for more miracles!! Blessings to you today.
Love,
Laura C.
Emily,
Reading your blog is such an encouragement. What a testimony of God's grace! It is so clear that Alivia is in the palm of God's giant hand and that He is caring for her. I love when the doctors are "stumped" by their findings. Who can explain things when God, the great physician, is at work?
I can't imagine how difficult it must be to try to get Alivia to sleep and back on a schedule again. Just having Jude off schedule for Easter has made this week rough. We will certainly add this to our prayers for you. She needs peace and rest right now. (As do you and James!)
We'd still like to come visit, but we also want to respect your need to be with family and to rest whenever possible. We will call you once we see how things are going! Continue to keep us all posted! It's so great!
With much love,
The Garners
hello Emily,
Ethel and I are praying for you,
we love you.We love the way you loved Grant and Noah.We have no idea what you are going through but we are with you.
Lew and Ethel
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