I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day -5
Each morning bright and early Alivia has to get weighed. She can stand on the scale by herself and is seen her proudly doing so.
Alivia's newest trick since coming to the hospital is crawling. Funny cause she never did it before..her belly was always too big and she started cruising so early but for some reason now its a fun new way to escape diaper changing. Luckily she was done getting her diaper changed here. Oh and notice all the tube in my mom's hand. She is now up to 5 tubes. Quite a lot to untangle after she's been running around for a bit. Took the nurse and I about 15 min tonight to figure it all out and Alivia had them all tangled in a few minutes.
The citoxin went as good as it can go. She didn't get nauseas or if she did it was during her nap and she didn't throw up so that was great. She had a bit of blood in her urine but they put cotton balls in her diaper so that they can test them and it shows up in the test before you can even see it. So they adjusted her fluids and a few hours later it tested negative for blood. All in all not the horrible day I was dreading. God has been so merciful to us. We got to see John, Chris and Will tonight (through masks). It was nice to have the change of pace and Livi loved seeing them. They made her laugh and played all the games she has been playing over and over again with us. It was a nice break for us too. thanks for coming to visit guys.
Tomorrow the citoxin runs again from 10-11 and then at 11 the ATG starts. It will run for 6-8 hours and she will be closely monitored throughout the day. Pray for she doesn't have an allergic reaction. Pray she amazes everyone by sailing through tomorrow.
Thanks to Brooke (our nurse today). She did a great job explaining and is officially the first nurse on the 7th floor that Alivia let pick her up. Anyone who knows Livi knows that not just anyone gets to pick her up. Thanks to Cynthia for the rush laundry washing and the uncles for the laundry deliver. We would have been in huge trouble without blankie!!
I'm heading to bed. As you can see its before midnight (if only by a second).
posted by Alivia's Momma @ 11:36 PM
33 Comments:
You are on our hearts and minds.
Stephen
Thanks for the update. Will be praying for a smooth day, no reactions, and for the meds to do as intended. Praying as well that you are both sleeping so incredibly well right now that you wake up more refreshed then you have been over the last week.
So glad to hear that this time of new meds has gone as smoothly as you could have hoped. Thankful too for all the people who are with you to help. Praying for blessings -
Cathy S.
Still praying for you all and enjoying the cute pics of Livi!! Great song!
it's a relief to hear the citoxin went so well yesterday . . . God is good! praying all goes well today, and for strength and sleep. thanks for posting pics, emily. it is especially helpful for lane to see livi's face and know who he is praying for. he was up at the computer yesterday scrolling through all the pictures for a long time. he didn't want to stop! i wish you could hear him pray, he does so now without needing to repeat me.
hugs . . .
april
aww, what a sweet peanut. We are praying for her daily, in fact, I just finished praying for her before reading this post. I love these updates and the pictures.
emily-
praying for you guys and alivia this weekend. will be praying for the citoxin to go smoothly today (no reaction) and that she would continue to sail through the treatment, and to sail through with some sleep and naps. love you-jamie
I LOVE THIS SONG. It is so good to hear it singing over Alivia.
Jesus is Lord of her body.
Nan
What a blessing that things have been going well so far. We're still praying and trusting the Lord with you. Praying today for peace with the knowledge that Christ has Alivia in his hands. He already knows the results of the treatmnent & tests. He has a plan for your lives. The pictures are so great - love to see her smiling. Love ya girl - Denise
Praying that the cytoxan continues to go smoothly and I will definitely be praying for the ATG infusion. NO REACTIONS!! Love the pictures and the music, they are beautiful!
I guess she's starting the new meds as I type this. I'll be praying today that she doesn't suffer any of the bad side effects; only what benefits her. It's so encouraging to see the photos. Love, Aunt Cheryl
Hi Emily,
I'm so glad to hear that everything has gone smoothly so far for your beautiful baby! The two of you are in my heart, thoughts and prayers at all times. Praying that you ARE the family that sails through all of this, and praying that you get some much-needed sleep. I'll be sending pics of my family so that you can put faces to some "strangers" who are praying for you in Indiana!
Julie D.
Just wanted you to know I am checking the blog (usually more than once a day) and am praying for your daughter. She really is the cutest little girl.
Emily,
You are doing fantastic with this blog. Thanks so much. I hope you get some therapeutic benefit from sharing as well. Love you guys and pray and think and mention Livi's plight with just about everyone that crosses my path.
Still bummed I missed your call. Keep trying when it's convenient.
Luv, Lisa
Praying for Liv was the last thing I did last night and the first thing this morning. You are never far from our thoughts.
Les
praying for Alivia's health and healing many times throughout each day ... with Love, Janet Shilling
PRAYING FOR COMFORT AND SLEEP--
ALIVIA IS TOO DARLING-- I WANT TO GIVE HER A LITTLE SQUEEZE--
WARM HUGS AND PRAYERS FROM PHYLLIS...
Praying for sweet little Livi today.
C.J. Frederick
Such cute pictures! Praying for your precious little girl. Praying for new mercies every morning. Love, Tonya
It amazes me to know that God planned all this for a reason. Though this isn't the best situation you would like to be in right now, he wanted it all to happen. Remember that everything will work out for his glory. Isn't our God amazing? I am praying for you guys. I can't image how hard this is for you, just remember God is there for you, and your family and friends too, as you already know I am sure. I pray you guys all get some sleep tonight. You are in my thoughts and prayers.
love,
moriah
So glad to hear that her first day on the new chemo went well! I'll continue to pray that she continue to sail through this stage too.
Love the pictures. Nicholas gives me a hard time if I don't show him ALL the pictures. :)
love,
Viv
ps. really liked the song!
So many here from Christ Community Church are praying for you. So glad to hear that all is going extemely well. My kids like to see the pictures and they all pray for Alivia each night.
With many many prayers,
The Joel Madison family
Just want to let you know we are still praying for all of you. It is nice to look at the pictures of Livi. Thanks for keeping us updated.
Another great update! Check out Livi on the scale by herself...oh, how grown up is she?! I think we are finally approaching healthy in this house, so we'll be sending letter and pictures soon!
Much love,
Garners
Praying for you all. Grateful to hear that things have gone well so far.
Love,
Amy
I check in on you via the blog everyday. Thoughts and prayers are with you.
Irene Randolph
We are still praying, and checking the blog. Thanks so much for keeping us updated. Tonight Celia prayed that "baby Alivia will do well in the hospital". That sums it up, doesn't it? We'll keep praying.
Melissa Stoltzfus
Emily
Thank you for keeping us so updated. I love being able to show the kids at school pictures of Livi. Since we've been doing this leukemia drive to help local families afford treatment, Livi gives the kids a real face to the disease. Many of the kids are Christians and are praying for her!
Audra Barrick
Haugherys,
There is not a mealtime grace that goes by, a bedtime prayer that is lifted up, a quiet moment in the morning, afternoon or evening that you are not the subject of our care and constant prayers!! Ethan and Abby are ALWAYS lifting up "baby Livi", Doug and Brenda and constantly carrying you with heavy hearts throughout our days. We love you, we hold on to the Savior's arm, and we keeping asking for His intervening Spirit to do wonderful and merciful things. He is trustworthy.
Love from the Planks
Today became so rough...we all hate to see her sick and sad. She is a trooper, and you are my hero. You are taking the best care of her, and it surely is a comfort to Livi to have you ear. Gigi
Oh, Gigi! Say it ain't so!!! Poor Livi! Hang in there little girl! Praying, praying, praying!!!
As always, when ever I can seeing Alivia it is the highlight of my day. I was the hightlight of my weekend by far. tell Livi I love the cat. It looks great on my desk.
uncle John
What precious pictures of Livi.....she is such a treasure. Keep posting the pictures.....It is so good to visualize the special little girl that I am praying for each day. The song is a great choice too!
I am praying that God will continue to guide the hands of all the nurses and technicians who work with Livi and that all continues to go well with the new medication. Praying too that He will continue to give you (Emily)strength and courage during the weeks to come. God is so Good. He has a great plan for this preciaous child of His. C Curry
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