Day -9
I am going to start labeling the days as they do here in the hospital. Today we are at -9. You count down to transplant day which is day 0 then start counting plus days. It still feels a little unreal. She started the day at 8 am with the first dose of Busulfan (chemo). They took her blood pressure, listened to her heart, checked her O2 levels and took her temp and she slept through the whole thing. Funny she didn't sleep mich last night when it was just the two of us and it was quiet but here we were with docs and nurses and machines beeping and she slept right through it. Silly girl. Last night she was loaded up with a lot of meds to prevent seziures and so we didn't have a problem with that. So far so good. The Busulfan runs for 2 hours and then there is a 4 hour break then its on for 2 again (you get the idea) and that while happen for the next 4 days. So far no reactions, no drop in energy, no throwing up but its just day one. They say the first week is pretty anti-climatic and so far it has been. She is being entertained by quite a few of her most favorite people so she doesn't seem too bored yet. They say that her energy will be pretty low after the transplant but so far everytime they say she'll be tired she's been a wild child. We'll see.
I am excited to start getting pictures for the walls. Send them as hard copies not to my e-mail, then we can hang them up. If its e-mail we have no way of printing it here so Livi won't get to see it. There will also be a prize for the first person who sends us a picture. So far no mail but we are really looking forward to getting some. I will set up the program so I can upload pictures starting tomorrow so after tomorrow I will post a photo each day. Thanks for you prayers. I'll only write more tonight if there is something going on...hopefully you won't hear from me again tonight.
30 Comments:
Hi Emily,
We recently got DSL which is so much more reliable than our dial-up was (plus we have unlimited internet access now), so I hope to keep up to date with reading your blogs. Our whole family keeps all of you in prayer several times daily. Thanks for keeping us all up to date so we can pray more intelligently for Alivia. Be encouraged. God is holding you in the palm of his hand.
With love, Rose King
So glad no reactions yet! I'll keep praying for that to continue. Praying also that the medications all do as they are intended.
Thanks for the update. I think I have checked the blog about 9000 times today. I am sure your blog visitor clicker was going crazy. I have an idea for a picture, but it requires some creativity. So, it definitely won't get there first, but if I can pull it off, it just may be hilarious.
Les and the fam
Thanks for updating. I'm glad everything is going ok. I will pray for it to continue as it has.
Natalie Murdick
I love you girls so much!!! I am sitting right next to you but you don't know that I am posting a comment on you blog....you will find it later....
Emily, I am so proud of you. The way that you are taking care of Livi so selflessly encouraging. You amaze me every day.
Livi, you won't read this, but I will tell mommy to kiss you for me when I am gone. I am praying for you constantly and I am trusting you into Gods hands. He will take care of you better than I can. I love you so much little girl. Be strong...
Love,
james/da
Emily,
Picture ideas have been flying around Indiana today! Been praying for you all!
Love you, Kathie K.
Prayed for you several times today.
As soon as I get through this roll of film and have it developed, I'll send you a picture or two....so, you should expect it some time around June. :) Kidding. :)
Glad to hear things are "anti-climatic" for now. Thanking God for today's mercies knowing tomorrow will bring its own.
I have prayed trough out the day for all of you !
BLESSINGS TO YOU BABY LIVI ~
P Miller
Hi Emily,
My name is Lisa Rader. I live in Bethlehem, PA. I am an RN and a mommy to a 13 month old girl, Madelyn. I am writing this comment in response to a request for comments. I wanted to tell you that I am praying for you and your little one. I can't imagine going through what you are. I am born again, and have been learning a lot about prayer lately. I have really seen the awesome peace that God can give, and I pray that for you. I pray that you can get restful sleep so that you can spend your waking time taking the best care of your precious daughter. I pray that Livi would willingly take the medicine and be nothing but smiles. She is beautiful. Thank you for taking the time to write this blog and keep us all updated. I will try to send you a picture of us for your wall. Keep the faith, and never stop believing in the power of prayer.
Love in Christ,
Lisa
lrader@rcn.com
What an amazing person Alivia proves to be. She is so full of life......and joy.....and fun.....in the midst of all this trouble. I am learning so much, little girl, from you. It is so incredible watching someone go through so much with NO self-pity. You are old enough to experience this, but too young to be gripped by self-pity. How much I am learning from you!!
And how amazing Emily is. She is tireless in the midst of "beyond tired". She IS the embodiment of sacrificial mother's love. And she's so creative....she really planned ahead for this.....and has thought of so many ways to make this fun for Alivia.
I am just amazed at the privilege I have to be near them and watch this.
Nan/Cynthia
praying/thinking of you...
love beth
I'm so glad that your baby is the "Wild Child"! Sounds great! God is shining thru her!
I wanted to encourage you by something that came to my mind this evening. We can boast in our sufferings knowing that suffering produces endurance & endurance produces character & character produces hope & hope does not disappoint us because God's love has been poured into our hearts thru the Holy Spirit that has been given to us! By standing firm for Jesus Christ no matter what the circumstance, we can have an impact on our friends, families & our communities! Emily I have read your blogs everyday for almost a year & I have seen thru your entries that your suffering have produced endurance, as you press on by taking care of Alivia, James & the house, which has produced your character, to be an example of Jesus shining through you, which now has produced hope, that your sweet baby will be able to get through these chemo treatments & the bone marrow transplant smoothly, because God's love will never leave us nor forsake us! He is a mighty God who loves us & takes care of us like no other! His shoulder is there for you to lean on; His hands will wipe away your tears & every step you & James take over the next 6 weeks, he will be holding your hands guiding you both thru it all! Take His hand & let Him lead you alongside Alivia! Thank you for your example of standing firm in Jesus no matter what! By this example you are shining the light of Jesus thru you to all the doctors, nurses & in all your blog entries, which many read all over the world!! Sleep well & God bless you!
By the way we have a great idea for a wild picture to send you, but Scott's parent's animals (all 50,000 of them) won't be born until March 17th, so expect a picture of the wild Byers Family to be there a few days after the 17th!
In Christ's Love,
Hannah, Scott, Tirzah & Naomi Byers
Tomorrow I will request that the 348 children of St.Philip School in Crafton pray for Livi. Your Great Grandfather, Paul Sr., Uncle Blueberry, your Mother, Cousin Chris and I all attended St. Philips. Now all 4 of your Lageman-Camp clan second cousins also attend St. Philips. With all that history in one school I am hoping that the prayers will be answered a hundred fold. I think of you all every day and pray for you throughout the day as I always find my thoughts returning to this sweetlittle baby who even though I've never met her, I love her so very much. I hope you are comfortable in the hospital. I will get some pictures developed and send them on the way. Love and Prayers, Betsie
So glad to hear that all went well on day -9. We will be praying each day...
Love,
Amy
So glad we didn't hear anything from you tonight...Hope you are all sleeping soundly right now. The prayers for today have already started. :)
emily-
we prayed for you this morning and that alivia would have a full recovery. love you-jamie and lyndon
Thanks for the updates, Emily! We continue to pray!
Kim R. (and Matt too :)
Emily,
We're still praying - for healing, the details, sleep & the meds. The boys and I pray often throughout the day for you, James, & Alivia along with your families. Thank you for keeping us updated - it is a blessing to hear the details & pray for specifics. Pray without ceasing... they are always heard.
Love,
Denise
~ BLESSINGS TO ALL OF YOU ~ I WILL KEEP YOU IN PRAYERS THROUGHOUT THE DAY-- I HAVE SHARED THIS INFO WITH MANY OF MY CO-WORKERS. ( MAY YOU HAVE A PEACEFUL DAY )
PHYLLIS
Oh my gosh, James. You bring tears to my eyes. God does love our children even more than we do. I was praying for Alivia this morning and I heard "The Lord is Alivia's shepherd, she will have no lack of anything."
Here is the 23rd Psalm from the Message. I like putting Alivia's name in wherever appropriate.
1 God, my shepherd! I don't need a thing. You have bedded me down in lush meadows, you find me quiet pools to drink from. True to your word, you let me catch my breath and send me in the right direction.
4 Even when the way goes through
Death Valley, I'm not afraid when you walk at my side. Your trusty shepherd's crook makes me feel secure.
5 You serve me a six-course dinner right in front of my enemies. You revive my drooping head; my cup brims with blessing.
6 Your beauty and love chase after me every day of my life.
I'm back home in the house of God for the rest of my life. Love, Aunt Cheryl
Just so you know - fifty high schoolers prayed for your precious baby last night!
I love looking at pictures of Alivia. What a cutie pie!
We're praying for all of you!
C.J. Frederick
Sent a letter to you today...our picture won't win any awards this time, but it will speak of love for a little boy to a little girl! :)
My thoughts and prayers are with you!
Julie
thanks for the sack full of goodies for xander and bryn! xander's in heaven with the fruit cups that i never buy. i loved the entry from james and was reminded to pray for your marriage again - that God will use this season to strengthen your relationship as you depend on Him. continue loving on & encouraging one another! we love you three, kb
Hey I found your site of of Ian's and I am praying for you, Alivia nad your family
Becca(MD)
p.s.
Livi really is a cutie pie
Dear Emily, You are so brave, and I!m sure God is helping you with this terrible time in your lives. I know this is of little importance to you , but I had a package sent to Livi from Hearth Song. They said it would be arriving at the loading dock at Hershey Medical from UPS. Be on the watch for it. Rich and I have never ceased praying for Livi and all of you. Love Aunt Kathy
Emily-
I read this today and thought of you and your family.
'When you pass through the waters, I will be with you;
And through the rivers, they will not overflow you.
When you walk through the fire,
you will not be scorched,
Nor will the flame burn you' [Isaiah 43:2]
It also reminded me of Shadrach, Meshach, and Abednego in the furnace.
'And the satraps, the prefects, the governors and the king's high officials gathered around and saw in regard to these men that the fire had no effect on the bodies of these men nor was the hair of their head singed, nor were their trousers damaged, nor had the smell of fire even come upon them' [Daniel 3:27]
I am praying that you and James and Livi may also come out of the furnace without singe, damage, or the smell of fire.
thanks for having us be with you through this...how could we be anywhere else? Livi's smiling face; her new words; her being impish and spending time with all the Haugherys are blessings!!!! The only "things" missing are andrew and aaron...oh, and my friends from Indiana, my church, my job and friends at work (hi munya)...but here is where my heart is. Gigi
thanks for having us be with you through this...how could we be anywhere else? Livi's smiling face; her new words; her being impish and spending time with all the Haugherys are blessings!!!! The only "things" missing are andrew and aaron...oh, and my friends from Indiana, my church, my job and friends at work (hi munya)...but here is where my heart is. Gigi
Hmm...a contest with pictures and costumes and animals and whatever else we can imagine. Do we get bonus points if we include them all? Great idea.
Chris & Steph Freeman
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