Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Monday, April 09, 2007

Day +30

Happy Easter everyone. Alivia had a great Easter. She saw the Easter bunny through the window yesterday and today saw him up close and in person in the hall. That's right Alivia has ventured into the hall. We have been officially "allowed" to go into the hall for a while now but she hasn't wanted to wear her mask (which had will have to wear outside for quite a while) but we were finally able to get it on her the other day. She cried until we opened the door and stepped into the hall and it was like a whole new world opened up. That was the first time she was really happy in a while. Since she seems to be having a bit more happy times. She is still out of sorts frequently but at least now we get to see her smile too. She got an Easter basket when she woke up and we did an egg hunt. When she spotted the first egg she squealed with delight and ran to it. Way to cute. She would hold each egg up to her ear and shake it to see if there was anything inside.

That's all the good news. Now for the less pleasent news. She is still "stooling" more than she should and it is still not a good consistancy (trying to be discreet). So they scheduled an endoscopy for Wednesday. She will go under sedation and they will put a scope into her colon and take biopsies and then into her stomach. Neither sound like fun to me. There is a high risk of bleeding due to low/poor functioning platelets. They want to do this to rule out GVHD. Originally it was going to be tomorrow but the doctor who ordered it was the doc who pushed for the NG tube so we decided to wait till Wednesday so we could get the opinion of the doc who comes on rotation tomorrow. He will probably agree but we want to make sure that everyone thinks this is a good idea before we proceed. Please pray that she doesn't have to have this test. pray that she doesn't have GVHD. Pray that she is able to feel better more and more often.

17 Comments:

Blogger Bueche said...

We're glad for the new and happy times.

The "less pleasant" we prayer warriors take as our marching orders.

Hang tough Haugherys.

7:41 AM  
Blogger Jude's Mom said...

Hooray for Livi going into the hallway. The world just doubled in size for her. That's wonderful, and what a great Easter present.

We will be praying about all that you have mentioned and specifically as you've asked. Keep us posted!

Love,
Julie

8:18 AM  
Anonymous Anonymous said...

We love you and we are praying for you! I am very happy that she is progressing and is able to be in the hall!!
Pamela Bueche

8:20 AM  
Anonymous tina said...

happy easter to you guys! will be praying today. xoxo

8:26 AM  
Anonymous Anonymous said...

Praying ... Love, Janet S.

8:55 AM  
Blogger Briana Almengor said...

Sorry I've been so delinquent in commenting...but have read them all and continue to pray for each request. I'm praying God will provide another way to rule out GVHD and that Livi will be free of any other complications from this point on.

love you much, friend.

9:08 AM  
Anonymous Anonymous said...

I am glad you are getting a second opinion. Good job momma (and pappa) bear.

I am so glad Livi got her smile back.

I will keep praying... Vicki G.

10:07 AM  
Blogger Steph B. said...

So Glad she is smiling. :) :) :)

We are still praying here in WV :)


Steph Bowman

10:17 AM  
Anonymous Anonymous said...

HAPPY EASTER TO ALL --
LITTLE DARLINGS LOVE EGG HUNTS AND IT SOUNDS LIKE YOUR HUNT WAS A GREAT SUCCESS :-}
SO HAPPY TO HEAR ALIVIA WAS PERMITTED TO SEE THE BUNNY.
THE HALLWAY IS A SMALL STEP TO GOING HOME.
ALWAYS..PRAYING FOR ALIVIA..
Phyllis

10:57 AM  
Anonymous Anonymous said...

Hi Emily,

At church yesterday the pastor didn't have a typical Easter Sunday service, but focused on the powers of believing and having faith. There was one story and a particular verse that instantly made me think of you.... Jairus was among many who "welcomed" Jesus but Jairus was desperate for Jesus' help - because he had faith in what Jesus could do...he not only welcomed, but he "believed". Jairus' daugher was sick and in his desparation he knelt down before Jesus and told him of his daughter...

Luke 8:50

50Hearing this, Jesus said to Jairus, "Don't be afraid; just believe, and she will be healed."


Just wanted you to know you came to mind yesterday while the pastor was speaking...

Praying for your every request...
Jessica

1:11 PM  
Anonymous beth said...

praying. love you,
beth

7:40 PM  
Blogger momofcolin_chloe said...

Still praying. So glad that Alivia is having more happy moments. Thanks for taking the time to update us. Praying for things to come together at your house so that you can get home as soon as possible. That'd have to bring a smile to her little face. :)

7:41 PM  
Anonymous Anonymous said...

Praying that all needs will be met and that you will be comforted. So good to hear about Livi's venturing forth - and that you could enjoy some normal-type Easter fun! May God continue to hold you all in His hands.
Cathy S.

7:42 PM  
Anonymous Anonymous said...

Praying they don't have to do the procedure on Wednesday, but if they do that it rules out GVHD!! Praying for daily strength, wisdom and healing
Diana B.

9:33 PM  
Anonymous Anonymous said...

Hooray!! We are so glad that Alivia has had some happy moments! We will pray for many more happy days and no more complications :o)
Blessings,
Rochelle

10:12 PM  
Blogger friends of ian said...

Emily and Gretchen

Your comments on Ian's post are so touching to me, because you intimately know suffering. I can't wait until Livi and Lydia can play together and we can all sit around and laugh with Ian again. (as if we've all even been in the same room at one time, but you know what i mean:)

11:41 PM  
Blogger friends of ian said...

p.s. that was from me, larissa:) it's late

11:42 PM  

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