Day +30

Happy Easter everyone. Alivia had a great Easter. She saw the Easter bunny through the window yesterday and today saw him up close and in person in the hall. That's right Alivia has ventured into the hall. We have been officially "allowed" to go into the hall for a while now but she hasn't wanted to wear her mask (which had will have to wear outside for quite a while) but we were finally able to get it on her the other day. She cried until we opened the door and stepped into the hall and it was like a whole new world opened up. That was the first time she was really happy in a while. Since she seems to be having a bit more happy times. She is still out of sorts frequently but at least now we get to see her smile too. She got an Easter basket when she woke up and we did an egg hunt. When she spotted the first egg she squealed with delight and ran to it. Way to cute. She would hold each egg up to her ear and shake it to see if there was anything inside.

That's all the good news. Now for the less pleasent news. She is still "stooling" more than she should and it is still not a good consistancy (trying to be discreet). So they scheduled an endoscopy for Wednesday. She will go under sedation and they will put a scope into her colon and take biopsies and then into her stomach. Neither sound like fun to me. There is a high risk of bleeding due to low/poor functioning platelets. They want to do this to rule out GVHD. Originally it was going to be tomorrow but the doctor who ordered it was the doc who pushed for the NG tube so we decided to wait till Wednesday so we could get the opinion of the doc who comes on rotation tomorrow. He will probably agree but we want to make sure that everyone thinks this is a good idea before we proceed. Please pray that she doesn't have to have this test. pray that she doesn't have GVHD. Pray that she is able to feel better more and more often.