I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.
Adjusting to the tube has been much harder than expected. Livi is sad and always aware and nervous about the tube. If the meds are cold she cries when they go down. And the formula being given through the tube made her poop close to 15 times today. Please pray she will adjust to it and be able to enjoy her days once again.
posted by Alivia's Momma @ 12:22 AM
I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.
I am a wife, a mother, a daughter, a friend, a baker, an epicurian, an avid reader, a movie critic, a horrible cleaner, a student gardener (I'm trying), a shopper and a blogger.
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20 Comments:
Dear Emily,
Poor Livi! I can't imagine how hard that must of been as you had to hold her down!! You are doing a great job, Emily keep trusting & clinging to Christ! Your baby knows how much you love her even when you have to do what is best for her & that means if may be hard, but thankfully little children forgive so easily & have so much faith!! If it were me I would have lost it & yelled STOP & I would have been hysterical. You are so amazing & strong! There isn't a better mother Alivia could have, see God knew to have Ms. Emily to be this baby's mommy! We are praying & lifting up all the requests to our loving Jesus! We hope you have an easier day today & a little rest! God belss,
Hannah, Scott, Tirzah & Naomi Byers
Dear Emily, Bless you ... I don't know if I could have done what you were able to do. It is amazing what the love of God looks like at times as He is poured out through us. Praying for precious Livi to adapt quickly, for God's healing, and for sleep. Love, Janet S.
Praying that as the days pass with the NG tube, each one gets easier. Praying that time passes quickly until she needs it no longer. You're almost there guys! Look how far you've come!!!! +22! Almost there! Praying, praying, praying that once this is all over it will be over completely.
Livi is so beautiful and so are you, Rmily. You and all your family are such an example of faith and love of the Lord and each other to all of us. We are praying each day for your baby's and healing for you all to get to go home and rest and enjoy each other. Know how many people love you all, think of you all each day, and are praying for you all. God bless that beautiful little Livi with the healing of her skin on the outside and her cells on the inside. Thank you for sharing the story of your faith and all the darling pictures!!!! Love to you all, the Vandernecks and family
Oh dear sweet Livi,
I wouldn't have been able to be as strong as she was if someone needed to stick a tube down my nose. I'm not sure I could have been as strong as you either Emily. The two of you are troopers, that's for sure. Keep pressin' on. You have God on your side and an absolutely amazing family. We are praying for you every day. Bring back the boring days!!!!!!
Love,
Karen & Joe
Praying that Livi adjusts quickly to the tube and regains her cheerful outlook! It's hard not to wonder what she is thinking about it - what concept does a 2-year-old have of an NG tube?? Just praying for all of you that this season of rebirth in nature and in church can continue to be a time for Alivia's rebirth too - praying for that perfect healing. God bless -
Cathy S.
Fifteen times in one day!? I haven't heard any reports on the diaper rash getting better. Poor Livi!
Our prayers as a family continue, and you are never far from our minds no matter what we are doing.
I don't know you but I have read your blog every day almost since you got the diagnosis. Yesterday's entry was especially heartwrenching. My boys are grown now but my youngest one was born with club feet and had to have surgeries. He screamed everytime he had to have his cast cut off because of the very loud noise. He also had a burn on his leg due to a problem with the grounding mat which was oh so painful. So the crying and screaming of Livi brings back all those memories. You are so strong and God will lead you through this. Just hold onto him as Livi holds onto you. Today this song was sung in our church and I thought it was appropriate for your situation so here are the words to "Bow the Knee"
There are moments on our journey following the Lord
where God illumines every step we take
There are times when circumstances make perfect sense to us
as we try to understand each move He makes
When the path grows dim
and our questions have no answers turn to him
Chorus
Bow the Knee
Trust the heart of your father
When the answer goes beyond what you can see
Bow the Knee
lift your eyes towards Heaven
and believe the One who holds eternity
and when you don't understand, the purpose of his plan
in the presence of the king Bow the Knee
Verse 2
There are days when clouds surround us and the rain begins to fall
the cold and lonely winds wont cease to blow
And there seems to be no reason for the suffering we feel
We are tempted to believe God does not know
when the storms arise, don't forget we live by faith and not by sight
Chorus
Bow the Knee
Trust the heart of your father
When the answer goes beyond what you can see
Bow the Knee
lift your eyes towards Heaven
and believe the One who holds eternity
and when you don't understand, the purpose of his plan
in the presence of the king Bow the Knee
I thought about all of you today.. many times .. especially when I have a quiet moment ..
I will pray for a restful day tomorrow and one that will bring a few smiles for darling ALIVIA..
Peace be to all
Phyllis
Dear Emily and James,
Our family cries out to God for total healing of Alivia's body daily. I can't imagine the strength God has given you to walk out this trial. God is so faithful and will continue to hold you all close to him. At times like these, we have to look at the cross and know God is being glorified. Even if it's the hardest thing you have ever gone through. May God heal Alivia's bottom, let her get use to the NG tube, and may you all get sleep. Thinking of you all.
Love,
The Scherf's
emily-
i am praying for you as you continue to serve and care for alivia in ways that you never thought you would. i am praying that her bottom would heal and the tube would be invisible to her. i am praying that today will bring new nercies and grace in the details of the day. love you-jamie
My heart hurts after reading your ordeal with the NG tube. God bless you both...I try to think of the rewards that are going to be given to you in heaven for the suffering endured. Can't wait for that glorious day. We think Livi is beautiful NOW when she smiles...just wait!
The most traumatic day I can remember in all of my children's childhood years was the day I had to pin Aaron down on an operating table while the doctor stitched his eyebrow. He was terrified, and confused because I was right there and I wasn't saving him! To this day I shudder and get a lump in my throat as I did when I read your account. Emotional torture. I am covering you in love and prayers..one day at a time.
Aunt Marcy
Emily,
We and the kids are praying for Alivia and you guys continually. Abby told me today that when she was in the bathroom this morning, she prayed for Alivia. You're in our thoughts and on our hearts!
Tina Wenger
Aww I will pray that she starts to adjust better to the tubs.
Moriah
I started researching "adjustment periods to ng tube" ... but then I thought, you know what? Just pray, Monica, just pray - and so I am. God bless you guys.
Praying hard that no news is good news and that maybe you just took a mental break from bloging. Just wanted to let you know that the prayers are still coming even without an update!
Dear Baby Alivia,
Just wanted to let you know that we are still earnestly coming to Jesus with prayers on your behalf. Feel better soon little one
-The Joel Madison family
I am sad for Alivia! I hope that the last two days have gone better and that no new news is good news. We check on your several times a day. And tonight Jude said Alivia for Dan so he finally believes that he says it (like he thought I was a big liar or something...sheesh!). You have to be exhausted! Oh, Em, I'm praying for you!
Love,
Julie
Emily,
I hope that today was a much better day for Alivia and you. I have been checking numerous times today and I hope that no news is good news. I just want you to know that I thinking of you.
Love, Heather
prayin hard
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