I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +75
Livi's kidney's seems to be getting better. Her liver functions, which were so terrible just a few weeks ago are normal. Her counts are okay. Her platelets are falling quickly and we aren't sure why. So she is getting a dose of IVIG (T-cell boost) today to try to get them back in line. Her electrolites are all out of whack but they are working hard to fix them with IV fluids.
Our doc actually said this morning that it looks like her GVHD is under control. crazy how just a day ago it was not responding to anything. Our doc has given her a bunch of new meds to help her stomach and I think it is working. She isn't "stooling" nearly as much (only once so far today) she she is back on NG feeds so that seems to be a good sign.
It seems like one thing gets better and another gets worse. During her nap her oxygen saturation was dipping too low so now we are waiting for a chest x-ray to make sure she doens't have fluids in her lungs. THe hope is that it is just the combo of all the meds she is on making her sleep deeply...which would be great since she didn't really fall asleep till 5:30 this morning. Dad stayed with me till 2:30 and it seemed like she was asleep so he went home to sleep. but then she woke up ever 15-30 min till 5:30. This is with benedryl, morphine (for her mouth and teeth) and dilantin (which usually knocks her out). I think we are starting to get ahead of the mouth pain. She isn't chewing on her cheeks as much and so they aren't bleeding as much. Her bottom I teeth are all but through.
Thanks to
Jackson for the Cabbage Patch Preemie
Aunt Kathy for the card
Soveriegn Grace Church of Indiana for the generous gift
Monica Coffey for the card
Bill and Shirley Balint for the generous gift
Marmie for all of the cards
Chris and Muriel for the cute outfit from China
Ruth Eckman for the drawing of Grover
The Camps for the Lowe's gift card
Erica Aiken for the note
Sue Forry for the stickers
Andy Raymond for the air purifier
Patti Wallwork for the Princess Magnadoodle
Erin for bring the fun yet again
The "Little Boys" for visiting. We love you guys and it is a highlight our week too.
posted by Alivia's Momma @ 2:20 PM
16 Comments:
thinking of you all and continuing to pray for much grace to cover your days. grateful for every step forward and trusting that any steps "back" are not out of His reach.
lifting Livi up this afternoon!
we love you much,
kathy
Thankful to here that some things are better. I'm amazed at how little sleep Livi goes on. Praying for each one of you.
Carol M.
So thankful for the good news.
Uncle Mike
Still praying for Livi's healing and for peace for you and James. I am sure it is a strain to be apart from him so much,so we're praying for you as a couple too.
Love, Gina
Glad to hear that some things are improving! We are always thinking of you and praying around here. I am trying to get up there next week.
Take care! We love you!
Les and Yoders
So glad to hear good things. We lift you all in prayer to our Lord Who loves you more than anyone can fathom.
J&J
I love what kathy b. wrote! i want to echo that & say that we are so thankful that the GVHD is under control today. Scott & I both think of you so so much--hoping to see you soon.... we will keep trying.
tons of love, Ang
It is good to know that a few of the tests are better.
GOD LOVE YOU !
PRAYING FOR ALIVIA
PEACE BE TO ALL OF YOU
Phyllis
So glad to hear that some thing are getting better. Praying for the steps forward to increase and the steps back to slow. Thanks for continuing to keep us posted Emily. My days would be long with worry without your blog.
I am so thankful that things are improving. I am especially thankful that no details, dosages, medications, etc., are too complicated for God. You guys are always in my prayers.
so thrilled to hear all of the positive reports from this post. ahh. praying for more to come. xoxo
Love you Haughery's and Allen's!
Erin
Emily,
I am so so glad to hear the wonderful news in today's post! Makes me very happy :-) Hopefully soon this mouth business will be completely under control. I am thinking about you guys all the time and am soooo looking forward to seeing you on Saturday. Love you guys.
Carol
p.s. that other carol is not me even though she has the same last initial. WEIRD.
Great news! Praying for continued improvement.
Betsie
Praise God for good news! Praying for total good health and healing! May you be encouraged in the Lord today. Love, Janet S>
Praise the Lord she is doing better. I pray that it keeps getting better and better, and that soon you will be in you home again. Keep trusting God!:)love ya emily!
moriah
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