I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +80
Today was a stressful day. Livi did fine but the decisions about tests and talks with the alarmist doc have drained me of all strength and quite a bit of hope. I need sleep and refreshing.
Please pray harder than ever for Livi tomorrow. She will undergo an endoscopy to see how her GVHD is going. There are quite a few requests related to this...
1. That she won't have to be intubated (this is very far fetched but would be amazing)
2. That she will deal well with the anesthesia and if she has to be intubated that it will be perfect and not end us in ICU.
3. that she has no bleeding, purferations or infections from the actual test.
4. that the test will show NO GVHD. That all signs will be completely gone. We won't know complete results till MOnday but we will have preliminary results tomorrow.
We were told at this point if her GVHD were to flare again that would be it. Pray that doesn't happen.
She will also have a CT. This is a five minute test but since she will have it after the endoscopy it will be more intense than usual. Pray that it is quick, easy and that recovery from both will go smoothly.
Pray the CT shows the PTLD is only in her neck. It can travel anywhere through the body and we are praying it somehow stays in one space.
THis is miracle after miracle that we need. I know it is not outside of God's reach. We could use some good news.
posted by Alivia's Momma @ 9:43 PM
67 Comments:
Still praying, and I was able to share it with our Sunday School class on Sunday and in an email earlier today. Praying that God will refresh you and send some encouragment.
-Sue F.
Emily,
Please know that my prayers on Livi's behalf continue daily. I am praying for miracles.
With love,
Amy
Praying for all
Praying for Alivia's needs
GOD RICHLY BLESS YOU
Phyllis
Praying for everything you ask. Praying too for strength, refreshment, and hope for you.
Cathy S.
Emily,
I am friends with Beth Chase in Morgantown, WV. I am a mother of two girls(4 and 2). We are praying for Livi. She is a beautiful child of God, a princess if you will. Our prayers are heard and we serve an AWESOME and POWERFUL God that can do anything and everything. Bless you!
LeeAnn
Praying for rest, renewed strength physically and spiritually for you and your families. Praying for Livi's tests tomorrow, too. You are constantly on our hearts here and in our prayers. Call or email anytime, friend. I love you guys so much!
You are all in our hearts and on our minds. We'll be praying.
Natalie M
now more than ever i don't know what to say . . . please know that i continue to pray for your sweet baby girl. what you are all going through really affects me. i can't imagine what your mother's heart goes through in a day. i pray you know His help and care like never before.
love,
april stoltzfus
Praying for miracles.
Much love to the three of you!
Neysa
our family has prayed for you all regularly since the beginnings of the diagnosis. we will continue to pray.
Thank you for keeping the blog so up to date. It must be hard to relive the news and post the pictures, but it really helps us to pray more accurately and the pictures help us to love alivia even more.
the Nams
Gigi,
Please call me if you want to talk.
Betsie
Emily, I am praying for Livi constantly. I will not stop. Praying for you and thinking of you all the time. You all are weighing heavy on my heart and mind. Praying your miracle starts tonight.
Praying for a miracle.
Praying hard and loving from afar.
Aunt Lisa
Praying, both for Livi's miracles and peace for you. Your circumstances around you are constantly changing and are so discouraging, yet God is still the same. I am finding that, right now as we are walking through a difficult time, what gets me through is constantly refocusing my eyes on who God is and all His glory. I am sure you feel too weary at times to even pray, but many are praying for you. Love, Gina P.
Emily and James,
I want you to know John and I are praying for Alivia tonight. We will pray for lots of miracles. Nothing is to big for God! May you all try to get some sleep.
Lots of love,
Kristy and John
What Livi needs is not too big for our God. We will be praying. with much love, Janet S.
Praying ! Love, Marmie
I am crying out to Jesus for healing.
Praying without ceasing...
You are never alone - even when it feels like it.
Vicki G.
Emily, I am on my knees praying for that miracle only God can give. Praying for all those tests to come out with postive results.
Beth
Tears and prayers for you all tonight. We will keep calling out, asking God for miracles.
-Calvettis
praying.....
yoders
Praying for a miracle for Alivia and strength, hope, and freshness for you and James.
Jessica
emily-
i am praying for livi and her test this morning. praying for all the details and that God would give her body full recovery from this long journey of hospital time, test, and doses of medication. i am praying that your hope rest in God and not in the doc and that his words would not be harsh. praying for strength and energy for you emily as you continue to be by her side day and night. praying for mercy today for livi. love you-jamie
You don't know me...but I feel like I know you from reading your blog. I'm a friend of a friend. Your precious little girl and your family are in my thoughts and prayers. Take comfort that so many are lifting you up in prayer
Our hearts are crying out for your little one. Praying for mercy and healing from our loving Lord and Father. Graystone is praying. Our love to all of you.
I feel that words fail me. My heart hurts so much for everything you have dealt with and for the "place" where you are now. But I hope that knowing we are all praying every day will lift you up and give you the strength to push ahead and believe that God will take care of Livi. He can grant miracles and I continue to pray that He gathers Livi in His arms and gives her the healing that we have all prayed so hard for. He is an amazing God and has delivered miracles where there just seemed to be no hope. So hold on Emily and believe in the Father's power to heal your baby!! I know I will continue to pray for it. You are all in my heart, in my thoughts and in my prayers.
Hugs,
Vicki Moore
Words do fail...what can be said. I will pray all day, and expect a miracle that God promises He longs to do for his children. You, James and Livi and all the allen's and haughery's are his children. He is not turning a deaf ear, though we don't see the physical evidence. We will persever in prayer til he gives us Livi's miracles! MOM
P.S. All you prayers out there, I just cried and cried throughe each and every comment...what a blessing you all are.
praying, praying, praying...
Praying for BIG miracles from our BIG God!
Mary Ann K.
Am praying for you and for the baby. What can I do to help? Do you need meals, someone to clean your house, do laundry, anything? I am happy to help. Please let me know what i can do.
tanya weaver
is there anything i can do to help? clean your house, do laundry, bring meals, etc? please let me know...we would be happy to help in some way. of coure, we are praying for you and Livi and you and will continue to do so.
in His grip,
tanya weaver
Emily,
My heart aches for you and I don't have the words.Please know that you are in my constant prayers. God's word is the Truth that can give your spirit refreshment. Matthew 11:28 "Come to me, all who labor and are heavy laden, and I will give you rest." That is His promise. Praying & praying.
Love,
Denise T
I cannot put into words how sorry I am that you all have to go through this. Livi has the best parents and grandparents and how wonderful it is that she is surrounded by your love and the love of all of us who are praying for her recovery. I pray that these problems are resolved. I pray for peace in your hearts.
Ann P.
we are praying to the same God who rose Jesus from the dead. he certainly has the power to heal livi! we are asking and asking for it. much love, luke & kristin mckelvy
Peggy is still praying.
Praying hard for miracles!
Love,
Heidi
Please Father God, by your mercy and grace bring a miracle to Livi and heal her. Guide the doctors hands as they do their work. Give strength, peace and rest to the family. We love you Lord and know ALL things are possible with you.
Healing doesn't come even to the "boring" cases (as Livi's once was) without the hand of the Great Physician. We will pray for your specific requests as you ask. Livi, Emily and James accompany us where ever we go throughout the day - always on our minds.
I am not sure what all the pessimist doctor told you, and I am certainly no doctor. I did read up a bit and learned that the GVHD and the PTLD are opposite extremes. Treating them often involves oscillating back and forth until there is a balance. The source I read said that this is a difficult time, but the balance usually comes.
We pray for healing. If the GVHD reappears, I reject the "that's it" assessment. Don't dismay Emily and James! God is in charge here.
Praying for you to experience the "peace that surpasses all understanding" and that our good and faithful God would "guard your heart and mind..." today and always.
All of this...and I will also pray for rest and refreshment for you (something the Holy Spirit can also deliver supernaturally!). You must be so tired and drained. Wish I could just give you a huge hug. And Livi too!
We love you guys!
Julie
My heart breaks for your pain. I am praying, praying, praying.
If you pinch your thumb and index finger together, as tightly as you can, that represents how much the greatest experts on earth know about Livi's condition. Nothing, in comparison with what her Father knows. No matter what the doctors say, He knows everything that they don't. No matter how grim they paint the picture, her Father takes His finger and draws hers with His brightness. Don't listen to them. The Scriptures say that over and over again. Don't listen to them, and don't look at their faces. Ask Him to show you His face because you must get rest from their words. They must be so exhausting, fearsome and debilitating. I cannot imagine what my heart would be doing if I was hearing what you have to......I would probably be dead. God has given you far more strength than I can, possibly, imagine.
42 comments and they keep coming. How many more are praying, but don't comment? There is an army asking, seeking and knocking for your miracle. Our Father is listening. He knows what He is doing. Our house is part of it and we will not stop.
We love you all so much,
kristi
I am praying now on my lunch break.
-Uncle Matt
Emily,
We are fervently and regularly crying out to God for mercy on your behalf.
"Fear not for I have redeemed you; I have summoned you by name you are mine. When you pass through the waters I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze." Is 43:1,2 Tina Wenger
praying all throughout today, as so many are!!
Praying for strength, wisdom, and healing . . .
Prayer after prayer after prayer for miracle after miracle after miracle.
Emily,
The King family is praying constantly. James' is doing work on the house across the street from us, so everytime I look out the window and see him, the new addition that he is building or his guys working, I am reminded to pray for Livi. God uses everything!
Brandi & Family
praying even harder then every for precious Alivia
Never met you but can't get you all off my heart and mind! Pleading for God's hand on Livi's body and begging for a miracle!
Praying so often, asking God to be nearer to you than ever before! Lord, may Livi know your sweet presence and peace!
Praying so hard!
With Love,
The Spinetti Family
Emily,
I don't even know where to begin. I just want you to know that I am thinking of you and your family daily, or I should say hourly. I hope and pray for good news to come your way and the words that you want and need to hear from the doctors. Words of strength and encouragement. You are an amazing Mom to Alivia. I don't want Alivia to remember what she has gone through, but I am sure she'll remember the wonderful parents, family, and friends she has that stuck by her through all of this. Love you guys!
Heather L.
I heard about Livi thur a friend and I have been praying for her each and every day. You don't know me but as a mom myself the only thing I can say is our God can answers prayers so I will keep Livi high on my prayer list and every moment I get I will reach out to God for Livi to be touched and healed.
Marsha
Emily and James,
Remember that God never changes. He is the same today as He was the day Alivia was born and He loves her just the same. We continue to pray for you during this increasingly difficult time. We look forward to having Alivia running around in our 2 year old class at church.
With much love and prayers,
Tim, Kim, Joshua, and Lauren Cranmer
I agree with kristi! Don't listen to the doctors, continue to turn to the Lord and what His Word says about His great love for us. My heart breaks for all of you, and just when I begin (again) to cry in despair, I start to confess what I believe ... That Jesus lives and heals today. That we are all loved by Him. That Livi has a future and a hope ... and then, my eyes are back on Him. Praying for the grace for you to turn your eyes away from despair to Jesus. May GOd pour out upon all of you ... especially Livi. Janet S.
EMILY JAMES and GRANDPARENTS
We held LIVI in our hearts today
( at work)..Actually we do everyday !
We think about you all the time..
We all send our best to you.
GOD LOVE YOU
Phyllis
James, Emily and Livi,
It seems as of lately, I think of you every minute of the day, however the last few days more so than ever. My heart hurts for you and I have never met you or your beautiful family, but have been touched by your strength and hope for dear Livi. My prayers, wishes and hope are for you, the Haughery’s, the Allen’s and your many friends who are praying hard for Livi to heal and be strong. You are in my heart and I will continue to pray for your beautiful Livi.
With Love,
Lyndsi Mackey
You are so faithful to keep this blog up to date. Thank you! We are still praying and praying and praying for the miracles that Livi needs! Forever God is faithful; Forever God is good.
Chuck & Eli Price
CLC-Gaithersburg
Praying for you all this evening and hoping the day went well.
Much love,
Kathy
You don't know me...but I am praying that like Naaman, this will be the 7th time your daughter is dipped into the healing pool and that tomorrow you shall see a miracle.
Continuing to hold you before the Lord--and encouraging others to pray with me.
We are continuing to uplift you all in prayer...praying for your sweet little Livi...
Love
The Dragos
Is there anything special that Livi would like? I wish that I could make her feel better, but maybe a new toy or a dress or something that could cheer her up? Is there a Starbucks or something near by that I could get you and James a card for? You can email me at jmyen at yahoo dot com if you need anything. I wish I could do more.
Joanna Ayres
thinking of you lots today. praying & praying. xoxo
praying !
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