what day is it?

I realized it was Sunday when I went to buy a maganize and the gift shop wasn't open yet....oh and because the hospital is almost empty. Tomorrow the hustle and bustle will begin again. We made it through the day of isolation yesterday rather well. She didn't freak out to much. Today is going to be a huge test. But we are able to get toys out of the toy room so hopefully she won't be too bored.
Yesterdays afternoon drama came from the never ending port access/ sweaty baby war. Alivia gets sweaty pretty easily. Her port is accessed and has been acess since Friday. When they access the put in the needle (little more than just a regular needle...it has a tube that hangs from it..maybe I'll take a picture cause its too hard to describe) and then cover the whole thing with plastic. It sticks to her skin and then she sweats and it pulls off and her skin just get more and more irrated. so she is constantly itching it....as you can guess this is not good. There isn't much we can do to keep her from itching and we can't put any creams on cause it just makes it less sticky...horrible cycle. So they have been trying everything to keep it on and to keep it from getting itchy...so far no luck. Yesterday she was itching and I kept paging the nurse to come change the dressing thinking maybe a dry one wouldn't be so irritating....I told the nurse 4 times and finally after about an hour she came in. By this time Livi was grabbing it and pulling. Well she somehow pulled it out just enough so it was still in her skin but not in the port so fluid was building up around her port. Thankfully the nurse shut off the IV quickly so only a bit of fluid got in. Everything was removed and her poor port was even bigger than normal and really really itchy. They had to reaccess it to put medicine into it to lock the port and it had to be done quickly so that the port would still work....which ment no numbing cream. Horrible. I felt so bad for her. Later that evening she was so swaeaty again that it came out on its own. She got to have 3 hours without it accessed. She has a square large square of red inflammed skin all around the port. Needless to say changing the dressing this morning was stressful, painful and scary for her. they are trying this new stuff that is suppossed to make the tape stick better...but it stings when they put it on.
Please pray that her skin isn't so irrated, that the access doesn't come out again, that she can forget its even there for a while.

The coolest thing yesterday was the Motorcycles. The Harley owners association (or something like that) of York comes each year with Santa and Mrs. Claus (on Harleys) to drop off toys. Livie was sleeping and missed it but my dad and I were on the 5th floor watching football when we saw all these bikes entering the parking lot. There had to be 200 motorcycles. It was fun to watch and Livi got a cool Elmo doll that does the chicken dance (guess what we spent quite a lot of time doing yesterday?!). This motorcylce group does this every year. What a great idea. All the kids that can come down to the lobby and see Santa and the bikes and get a toy.

We all got some good sleep last night. Livi did a great job of staying alseep or gettng back to sleep if she did wake up. What a good girl. I love my little ladybug so much. She always amazes me. When they come to check her vital signs (every few hours) instead of getting scared and freaking out she holds out her little finger for the pulse oxygen reader then picks up her leg for the blood pressure cuff and then points to her chest so they will listen to her heart and lungs. What a smarty, what a joy.

thanks to the Millens for dinner last night it was so good to have all that food for everyone and even Alivia liked the rolls...she ate a whole one...so good since she's only wanted yogurt since we got here. Thanks to Bill, Cynthia, John, Will, Matt, Viv, Nicholas and Hannah for visiting last night. It was good to have some distractions and made the evening go so much faster.

Please pray for James. He is still having to work and not getting to be here as much as he would like. (In fact he's working right now). Pray that he is able to concentrate when he's not here and able to have a good time with Livi when he is here.

Gotta go...think the doc might be in soon.