I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day -4
Today started out well. Alivia played through her cytoxin and was her usual cheerful self. The ATG started and was going so well that my parents went to take naps and run errands, James went to work and Cynthia and Bill stayed for a while to keep me company. Here is Alivia playing early this morning.
The meds are slowly increased over 6 hours. They start at a low level and the next hour go up and the next and that is the max amount. Right around that time is when the throwing up started. The first time she had some formula right before hand and so that came out all over me. As soon as she get sick she feels much better and that time I put her down so I could change and she pointed to me and "yuck, mama". The formula was the only thing she ate all day.
She spent the rest of the day almost falling asleep then waking up crying and then throwing up. It was a long, tiring day. She is still dry heaving (in fact I took a little break from blogging to help her out a few minutes ago.) It is so sad to watch and I just want to fix it. She has taken Zantag and Phenergan but is still feeling nauseous. She spiked a fever towards then end of the ATG and was breathing a bit fast throughout the whole thing. Its hard to watch and even harder to know that there is another day of this tomorrow. The only good thing is that there are only 2 days of chemo left. And we are planning on that being the last chemo she takes in her life. Also throughout the day she developed a pretty good diaper rash.
Tomorrow could be easy because she could adapt to the ATG since she's already had it once or it could be hard because she started to react a little today so she could react even more tomorrow. Won't know till it happens.
Please pray she does better tomorrow. Pray they are able to deal with the nausea better, that the diaper rash goes away and that there are no new reactions to the meds.
Thanks to Aunt Kathy and Betsy for the sweet toys. We are rationing the toys and giving a new one every day or maybe a little more often if she seems bored. Thanks to the following people for their cards....
The Bowden family
Marmie (loved the picture of you and Duffy playing Scrabble)
Indiana 1st Bank Staff
The Brigouleix family
Julie Garner
The Bueches
Cameron O'dell (Livi loves the picture of you as a pirate)
posted by Alivia's Momma @ 9:50 PM
37 Comments:
sorry today was so rough. it breaks my heart. praying tomorrow is better.
love,
april stoltzfus
We are thinking about you and offering prayers. We love you and pray that Alivia will be comforted.
Wow--sounds like quite a day. My heart ached to see her sweet face, knowing that she was feeling so miserable. I'm sure that you're exhausted, but I also know that you are taking such awesome care of Alivia. She is so blessed to have you as her mom. I don't know that there could be a more attentive and loving mom than you. I am praying for a night of sleep, and for less side effects tomorrow.
"There is no one like the God of Jeshurun, who rides on the heavens to help you and on the clouds in his majesty. The eternal God is your refuge, and underneath are the everlasting arms." Deut. 33:26-27
With love,
Amy
Hi
This is Vivs friend Amy. I just saw your blog. You are a good mom. God will bless you for your laying your life down for your child. Just think you will sleep later when it is all over and she is well. What a blessing that you have a doaner. You can tell others about the way God gave you grace to induer this whole process. It will bring some one else comfort maybe to know that some one else has gone through the same thing or worse. I will be praying that the big surgeon will have his hand on your little girl. I know he will. He is the one who created her. God bless you and your family
Amy
please know that soo many people are praying for alivia, you inspire me, i cant imagine watching either of my boys go through what your daughter is going through. thank you for continuing to keep us posted on her progress.
praying for a restful night. may God give you all the energy you need. will be praying for a better tomorrow. hugs from indiana.......
laura m.
Praying for an easier day today. Hope it goes quickly so she can move past this part of her life. I hope you're doing okay as well. I can't even imagine how hard this has to be on you. I am praying for you all today and thinking of you constantly.
Hoping that today is a better day for all of you.
Natalie Murdick
Just continuing to pray. I am so sorry that yesterday was so rough -praying that today is easier. Praying you will feel God's presence as you endure this difficult time.
Cathy S.
Oh, sweet baby. Poor girl. Always praying...hoping today is a little easier for her.
Love, Les
Praying hard today that she adjusts to the meds and no more reactions.
I forgot to mention...I love how she is working that barf bowl as a hat. Even chemo can't keep her from having style! Go Livi!
Love, Les
TO all of you-- My heart aches and I pray for Livi to have a better day- She is just sooo precious .. Throughout this day, Prayers are being offered...
May you find some comfort today..
I send warm thoughts
P Miller
emily and james-
lyndon and i pray for you guys daily- to keep alivia safe as she is adjusting to the chemo and our prayer is that it will be her last chemo. praying that today she keeps everything in and that the diaper rash leaves. love you-jamie
So sad Monday was hard. Praying today goes ALOT better.
I was reading over this passage this past weekend and thought of you all...
Hebrews 2:10-11
In bringing many sons to glory, it was fitting that God, for whom and through whom everything exists, should make the author of their salvation perfect through suffering. Both the one who makes men holy and those who are made holy are of the same family. So Jesus is not ashamed to call them brothers.
How comforting to know that Jesus calls us brothers and sisters in our suffering! I hope that is a comforting thought wherever you are when you read this...
Praying for Alivia and her wonderful supporters. You guys are all incredible!!
She is too cute for words.
Blessings,
Maryann
Please know we are still praying so so often...that you would feel God's love and grace more than ever. Lord, be near to Livi...put angels around her little body and mind...may your peace fill their room!
Hi Emily. I wanted you to know that I have been praying for you and thinking about you. The pictures of little Alivia are just precious. I admire your strength in taking such good care of her.
Both my girls talk about Alivia alot even though they only met her that one time at Isaac's. Morgan (who is 4) put on a beaded bracelet yesterday and said, "This is for Alivia b/c I broke the one that has her name on it." So they are thinking of you too!!
Praying for strength and endurance for your day today.
Lori Heitland
Hang in there! You are getting closer to the end of the chemo! Moment by moment trust God. He is your companion with quiet strength.
Tom Bueche
Emily, your motherly care for Livi is beautiful to watch. She has the perfect mother for her. We love you and Livi and James so much. Your creativity in painting and decorating Livi's room is so cute...you surely didn't get that from me! Gigi
Dear Emily, There are many references to the quote, "I had a mother who prayed for me." Your precious daughter is so blessed to have a mommy, daddy and entire family who are praying and trusting the Lord for her complete healing. Please know we are praying for all of you.
Gary & Maria McCarthy
Indiana, PA
Emily,
You've been on my heart especially today. I'm praying that today will be a better day for Alivia and that his peace that passes all understanding would be with you today. God will be faithful to you. "Weeping may tarry for the night, but joy comes in the morning" (Psalm 30:5)
~* Kiera
Hi Haughertys!!! Praying hard, today and always for you. Yesterday was tough, and today is a new day! That's the best part! Stay strong and find reasons to laugh and smile...even when it seems hard. It is so good for the soul!
Love,
Jessica Bennett
Hello dear ones,
you don't know me, but I feel as if I know your family a bit from all your blogging, pictures, etc. I found your site through Ian Murphy's site...
I pray that you will be filled with faith as you wait for His promises to be fulfilled in your lives. May you be blessed and encouraged in small ways today, and in larger ways over time as well.
In Him,
~Deborah
Just wanted to drop a line and let you know I'm praying for both Livi and for you!
Praying for all of you guys!
Livi, you cute, spunky little gal! Hang in there, you are doing great! No more "yuck, mama!", OK?
Miss you, too, Gigi!
Still praying!
Mary Ann K.
I am sorry yesterday was so rough. I pray today is better, with no throwing up. I am sure it is hard to watch your little girl go through all that, just remember God is there for you. I am praying for you guys.
lots of love,
moriah
It's probably not as hard for Alivia right now as it is for you, Emily. Her body is going through a lot but it's probably harder for you to watch. Everything inside you wants to protect your baby from any harm. But you ARE protecting her. You are doing what's best for her and you're dealing with the fact that it stinks for you right now. I hope Alivia never knows what it cost you to be there with her while she threw up. I am cheering for you, Emily. You're doing good. We are so proud of you and James. James, you are doing good too. We are so proud of you both. Keep running this race. Love, Aunt Cheryl
Hope Livi’s day is going better. Missing you guys a lot and praying a lot.
One day at a time. Emily, take care of yourself too. (Are you drinking lots of water?)
I am sooo praying for sleep for you two or what has felt like a good rest. I am excited to know that God will give you one or the other or something else even better. He knows and loves you more than we can imagine. I pray today is better
Love,
Diana B.
thinking about you guys tons~
Thank you for sharing so specifically and openly about your day and how we can be praying for your family. My one month old and I are spending our night time feedings praying for you and Livi. I often wonder if you are up praying with us at that time. God bless you.
thinking of and praying for you often!
Prayed this on behalf of your little one this morning:
Ps. 6
2 Be merciful to me, LORD, for I am faint; O LORD, heal me, for my bones are in agony.
4 Turn, O LORD, and deliver me; save me because of your unfailing love.
Praying you see His deliverance today.
And, pictures of our cuties are up on the blog. :)
love you much, friend.
praying for grace & trusting that God knows the details of her body & how she responds to the chemo... praying for strength and refreshment from the Lord...God has given Alivia to you to be her mother and you are amazing with caring for, loving, and sacrificing for her...you are such a great mom!! love, D
I was unable to get to my computer for over a week now, so I was so happy to be able to check in on your family. I have been faithfully following your lives and have thought about you so often. I am amazed every time I read your blog, of your unfaltering faith and upbeat attitude. Not only do you request prayers for your family but for all the medical staff that you encounter. You must be a blessing to be around. I only wish that I could meet you in person and give you a big 'Canadian' hug! I will pray for all you and keep you in my thoughts. As a parent of two children with medical issues, you have become an inspiration to me. Thank You for that gift!
Much Love, Carmen
it's good to see your face emily! more emily pics! more emily pics! (hee hee) thinking of you guys a bunch. owen officially can spot livi in a picture. we have her v-day pic up downstairs and her Christmas pic is in O's room. praying for your day today.
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