I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +16
I'll post pictures in the AM but for now a brief update. Livi's counts did drop rather dramatically but that was what was expected. Her WBC's are now 2.8. The doc said this is okay cause these are her own cells with no help from the meds so tha is good. She also said that this week is when the real healing begins. Also this week is when the VOD could start or the GVHD. So they are really going to watch her closely for both. In a few days she may need another dose of GCFS to boost her white cell growth but for now this it okay. THis week will be one of watching everything closely. Her diaper rash is back with a vengence. She cries whenever she goes to the bathroom and gets really upset when you change her. She didn't ake her meds this morning..well she took them but they all came back up. First thing in the morning a lot of transplant patients throw up for months after transplant and it seems she is on the same track. She actually had quite a few times of throwing up today but that seems to be the norm right now. I hate to watch it and just feel so bad for her. She ate half a banana but couldn't keep it down. Then later after some Zofran she ate 10 pretzels and took all three of her meds and they stayed down. We were all so proud of her.
Otherwise she had alot of fun todya. She is amazing to me, she can throw up one moment and be back to smiling and playing the next. She is the toughest cookie I know.
Please pray for her diaper rash. Pray that she can keep more food down and that she will have increase desire to eat. The doc's have said that after all the meds your taste buds are a mess. Older transplant kids say that nothing tastes the way you expect it to. Livi was picky before the transplant. Please pray she is able to eat more and more. Pray that VOD and GVHD stay at bay. Pray that she is able to hold her counts on her own.
Thanks to Gup and Rere for the visit. It was sonie to see you guys and Livi woke up from her nap and the first thing she said was "GUP?" and I said "he went home" and she said "yea..GUP, Rere...home" too cute.
posted by Alivia's Momma @ 1:29 AM
11 Comments:
She is quite amazing with all that she endures in a day and as often as possible, with a smile on her face!
I will be praying that green beans will taste like chocolate and chocolate like green beans, and that she'll keep all the food she eats down.
love you much, friend
She is one tough little cookie. Amazing. We will be praying for her appetite and taste buds and the vomiting. And, that there is no GVHD.
Love, The Yoderleyheehoos
Well said, Patty!
It is just amazing to be privy to all of this.
Zofran was a wonder drug for me, both with chemo and other times when I would become dehydrated. It stopped all the throwing-up. They tried Compazine (sp?) on me and it didn't do a thing.
I'll be praying "extra hard" this week for all your requests.
Thank you so much, Emily, for the update.
Mary Ann K.
Hi ! sweet girls. Great hearing your voice last night, Emily, and the little voice in the background. OK if I use this place to say Happy Birthday to you know who ? Being with Livi will go a long way toward making it a good day for him. Praying for Livi's good progress to continue and relief from nausea and all other nasty things. Loving you, Marmie
We are glad that Pete and Maria got a chance to visit with Livi before their journey to California.We continue to pray for all of you daily.Praying especiallly that this important week in the transplant process goes well.
I am not going to be nearly as discreet as my Mom (Marmie),and I hope Emily you do not mind that I use this space to wish my brother Dave a HAPPY BIRTHDAY!!!!!!You are a wonderful Father, Husband, Grandfather (Pa) and brother.We love you.God Bless You
Mike ( The California Mikes)
Hi Emily, You are such a wonderful Mom to your little sweetheart. I think you have enough knowledge to take those state boards for your RN. Well, at least the bio. section.
We are so grateful to God for her smiles and resilient attitude. We continue to pray for her and all of your great family.
I want you to know that my husband donated platelets in Alivia's name this morning in Johnstown. He has been donating since 1991 and usually goes every two weeks. He recently recruited Rodney A. to go along on this wonderful mission. The Lord is so good. Our love, the Goods
Happy Birthday, Pa!!! So exciting another birthday! Hope you enjoy it with your girls!
Keep up the road to recovery Alivia!!! You are doing so well!!
Quick change of plans...Ryan and I will at the med center playground today around 3:30 if you want to stop down. We'd love to see you!
If not, I'll catch up with you and maybe we can get together later this week.
So great to finally be back at my computer and able to check what is happening with Alivia! We've had a little incident of our own here this weekend.
Alivia is very bright and very adorable! And that's not just true to you because you're her mom. I can't wait until we can all see her again and share in her cuteness. It's been months! Although thanks to your blog it never seems like you are very far away.
Much love,
Julie
Okay, the allen's are taking over the blog. I myself, Gigi, want to say how dear the whole allen family has been to livi, emily and james and dave and i. The outpouring of love, prayers, gifts and all, has been humbling to say the least. To Marmie, Lisa, Rob, all Pete's, all Mikes and all aarons & andrews thank you. Not to leave any lageman's out (e.g. camps and mcvicker's) thank you for keeping in touch, the gifts and prayers and being family! and last but not least, happy birthday to my husband of 34 years (how did we ever get so old!!!) Hugs and kissessssssssss, gretchen
Happy Birthday Uncle Dave,
I'm sure you couldn't ask for a better present than to be there with your three favorite gals - Gretchen, Emily and of course, Livi.
Have a good one!
Betsie
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