I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +31
Alivia had a rough night last night. I'm not sure if it is nightmares, nausea or pain but she wakes up crying and gets more and more upset. She doesn't want to be held and gets really upset if I pick her up. She doesn't want to be touched and if I do she tries to hit me. It is so sad and I wish I knew what was wrong so I could help her. Please pray that it stops happening so she can get a good night sleep.
We are definelty having the endoscopy on Wednesday. We talked to the Doc that is on services this week and he said he also thought it would be a good idea. They are sending samples of her poo to be tested for all different kinds of infection and with the endoscopy we can nail down why she is still having the problems. Continue to pray for these problems.
This evening was a somber evening on the 7th floor west. A patient that has been here the entire time we were here passed away. She was in her teens and had AML. Please pray for her family tonight. She was there only child and I can't imagine how they feel right now.
My dad went home today and will be home till Wednesday. So if you needed to get something to him, had cards for the nurses, or just wanted to see his smiling face now is your big chance. We miss him dearly but are glad he is able to get some work done so that he can come back to us. Miss you and love you Pa.
Thanks to Marmie and Aunt Kathy for the cards.
posted by Alivia's Momma @ 2:42 AM
24 Comments:
Praying for Alivia to sleep more peacefully and for the endoscopy to go completely smoothly. Praying for the family who lost their daughter. I hope things will go well for you to go home on schedule too. It has to be wearying (is that a word?) to have been in the hospital for such a long time. May God bless -
Cathy S.
emily-
we will continue to pray for alivia's bottom to heal and other issues. we will pray for sleep and that she would be peaceful and get rest that she needs.i am praying for the family and their loss. my heart aches for the parents and i pray that God would be big to them in this time. i am praying for strength and continued joy as you serve and care for alivia at all hours of the day and night. love you-jamie
I have my prayer group this afternoon, and Alivia will be on the top of my list for healing. May God continue to be with you all, esp. during the testing on Wednesday, and may Alivia be able to rest or sleep very soon. My heart goes out to the family who just lost their only child. We will pray for them, too.
I was able to see your dad's smiling face in Walmart last night- so good to see him. Know we continue to pray for you to experience healing and peace.
Love, Kim's
You are on my mind and in my PRAYERS ! Always ...
Phyllis
One wonderful thing last evening...Livi in the hallway with her mask riding on Mom's shoulders. She was actually laughing out loud, which is a tiny, musical giggled muffled by her too big mask. But you could see a smile even in her little eyes. A picture would truly be worth a thousand words in this instance Great aerobics for Mom, good sounds for our hearts, and just an all around fun time. It was a bright spot for all, even the nurses were laughing.
It was a great blessing in the midst of 7th west (Pediatric Hem/Onc). Gigi
What an array of emotions! I'm crying and laughing. That's become quite common, hasn't it? Miss you guys. Thanks, Gretch, for finding the bright spot amongst all of the angst. Emily, keep being that cowgirl's pony. Giddyup!
As always, got ya'll in my heart and prayers.
Love, GAL
I have and will keep praying for livi's bottom. I will pray that she won't keep waking up at night. I will pray that the docs will figure out why she is pooping all the time. I will aslo pray for that family. Keep trusting God emily. I pray that one day soon, the Lord will heal precious livi. You are in my thoughts and prayers!
love ya,
moriah
What can I say that hasn't been said ? We all know the drill. Pray, pray, pray ! Love unending from your Marmie
We are persistently with you three and praying as specifically as you direct.
Praying for physical healing and emotional stamina.
It's gotta be tough being in the hospital that long.
Every day there has its own trials, but it's a day closer to being home.
We continue to ask (and expect!) God's graces and blessings to you!
Keep the faith!
Mary Ann K.
Though we have never met I just want you to know that you, Alivia, and you family are in my prayers. Thanks for your example of faith!
I just wanted to say that I am praying for you and i love you all! I am sorry that Livi must endure this pain and suffering and ya know it is harder on you(emily and your husband) because you have to watch and wait! God will use this time in your lives for good. it might not be right now but he will!!!
I just started reading your blog; found the link to it via several other links. I stayed up into 4 a.m. last night to start from the beginning and read your whole journey. Unbelievable! I live in Southern California, a very long ways away. It is amazing that you right now are in that hospital room with your little girl. You don't know me whatsoever but I just had to post to thank you for being so faithful to maintain this blog so we can pray for you. It's amazing for me to see from the beginning how much God has grown you in your own faith and has kept His hand on Alivia. I will keep you both in my prayers and will check everyday for news. I'm also going to post a link to your blog on my blog, so that many here in Southern California may begin to pray for you too. What an encouragement your relationship with the Lord is for you right now. What a blessing He is there to comfort and guide you. You are in my prayers. You and little Alivia.
Thank you,
Melissa P
Praying, girl!
Love ya!
Julie
Pa(Dave)-- Sorry I missed you at my work-( I was in the basement)
I wanted to say HI-- a few of the staff said you stopped..
GOD BE WITH ALL
P M
Just thinking of you all. You are in my thoughts and prayers!
We love you guys and are always praying for you. God put you in a church so you are not going through this trial alone. He is there, with you, every step of the way. So are we.
Love ya,
Pamela Bueche
dear emily,
i continue to read your enteries
and
pray for the needs you post
you are my hero
thank you for all the PHOTOS
of your little princess
hugs & kisses to you friend
Hi Emily, Since this whole ordeal began, I have been sending your blog to as many people as I could think of in as many STATES as I knew people. I kept picturing the whole U.S. with at least one person in every state crying out for God's mercies for Alivia. THEN, I read the post from Melissa P in California. I LOVE TECHNOLOGY! You are reaching the world for Livi, and God hears us all!
Here's a song from Casting Crowns that always makes me think of your family....
I was sure by now, God, you would have reached down, and wiped our tears away, stepped in and saved the day, but once again, I say Amen, and it's still raining. As the thunder rolls, I barely hear you whisper through the rain, "I'm with you." And as your mercy falls, I raise my hands and praise the God who gives and takes away. And I'll praise you in this storm and I will lift my hands, for you are who you are, no matter where I am. And every tear I've cried, you hold in your hands. You never left my side, and though my heart is torn, I will praise you in this storm.
Emily, no matter what happens, you are faithful to praise our God. You are an inspiration to so many. Just know, that our prayers are, of course, for Livi, but also for you and James and your whole family. You are precious! And God will see you through this storm! Jill P.
Emily, talk to the docs about Livi waking up at night...it sounds like it could be night terrors. Its actually quite common and caused by a disturbance in the sleep cycles. If that is what it is, then she doesnt know its happening, which helps feel a little better about it. I work with Aunt ReRe and check in all the time...Livi is always in our thoughts. Hope you both have a restful night! Kellie
Hi Emily. I just read the comment about the night terror thing and wanted to share a few thoughts with you. I have no idea if that is what Alivia has but is sounds like a similar experience of mine. Please feel free to throw this into the unsolicited advice file.
My oldest daughter used to get night terrors and it started around when she was 2. She would wake up in the middle of the night screaming bloody murder and was absolutly inconsolable. I remember one night she screamed deliriously for a whole hour. It would also happen during the day during nap time. It was very helpful for me to later hear that this was something that was very common.
So... if that is the conclusion your docs come up with, I hope that it helps you to know it's "normal", maybe not at all related to all of the trauma she has been through.
You are an amazing, tough mama. I pray that God gives you strength to continue each day.
Lori H.
Emily,
We will continue to lift Alivia up in prayer. May she have a restful sleep tonight and may God hold her close to him. We will pray for all your requests tonight.
Love,
The Scherf's
Emily,
As I read your blog tonight, my heart ached for you. I will continue to lift you and Livi up in prayer (remembering all of your specific requests).
You must feel like you are on a roller coaster of emotion...... holding on, just waiting for the next dip, twist or turn...thrilled at the thought of being able to go home soon, but aprehensive about what will take place before and after that time.
As Gigi shared her story of you carrying Livi on your shoulders, I pictured you being carried by Jesus.... either wrapped in his loving arms or sitting on his shoulders. He has his hands on you and Livi and will not let go. I think of the familiar writing of Footprints in the Sand. There was only one set of footprints during a difficut time of a man's life. He asked God where he was during that time beause there was only one set of footprings. God responded by saying......"That was when I was carrying you."
I agree with Jill's comments related to the song from Casting Crowns. I beleive that God is carrying you through this storm and will never let you go.
I pray that God will continue to reveal himself to you in big and small ways and that he will provide comfort and rest to both you and Livi tonight.
God Bless...
Claudia C.
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