I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +81
James here......Emily is holding Livi, so i thought i would update everybody on the days events. She had the endoscopy followed directly with the CT scan. She was under sedation for both. It was about 2hr that she was under. We all were waiting for the endoscopy to start and Livi was scared and she looked up and said "Home", meaning her room. It was so sad. Things went relatively smoothly. When she was in recovery we realized that her NG tube was in her mouth and not down in her stomach were it was supposed to be. By then the sedation had worn off so we had to pull the tube out and put it back up her nose and down her throat and into her stomach. This of course involved holding her down while she screamed her head off. Definitely not fun for Livi or us. We are all back in the room now and pretty wiped out. It was just a long hard day.
Her breathing is doing well. This was a big concern going into things today. There was a big risk that she would have respiratory problems coming out of the procedure that she had. There were even saying that we might end up in the ICU over night. Another big concern over the next few days will be bleeding internally and infection of the biopsy site. They are giving her platelet transfusions to keep her counts above 100 and also a 24 hour course of antibiotics. She was throwing up blood earlier from the biopsies in her throat. But otherwise she is doing well. We should get some of the results back on friday or monday. Thank you all for your prayers today. We are very relieved that she made is through so well. She is definitely a tough little girl.
posted by Alivia's Momma @ 7:11 PM
43 Comments:
Thanks, James. We continue to pray.
Thank you. We were waiting and hoping for an update of sorts before we went to bed. We told everyone that we knew to pray for Alivia today and everyday. We look forward to meeting you guys when you visit the Almengor's in Maryland with a healthy Livi. Praying, praying, praying.
Good to here the day went okay for Alivia. Praying as always.
Thanks for writing. Please know you, Emily and Livi remain in my thoughts and prayers. First, I pray all three of you will find rest and peace wrapped in God's loving arms tonight! - a friend
Thank you for updating, James! I hope tonight brings peaceful rest and tomorrow starts out brighter for you all
Continuing to pray for all of you - especially that "tough little girl." Hoping everyone will get some much-needed rest tonight. God bless -
Cathy S.
I had to check before I went to bed. Thanks, James, for posting...never feel obliged, though. We will pray no matter what. AS the others have written and prayed, I will be praying for sweet rest tonight for all of you.
Thanks James for keeping us informed about Livi's progress and how the day is going. I pray for God's mercy and love to be poured over Livi and your family tonight...that you will feel and know his presence. I pray that he will reveal himself in BIG ways and restore Livi's health completely. Praying and praying and praying.....
Claudia Curry
So good to hear that you got through the day today. Praying for miracles.
Love,
Amy
Thank you for the update, James. Checked blog a lot during the day but vegged out most of this eve. So glad to get the news now and will go to bed earlier tonight, hopefully tosleep better than the last couple nights. Livie and you all are ever on my mind and the praying goes on thru the nighe as I wake often. I feel encouraged that Livi came out of the anathesia so well and your fears were avoided by God's grace . Peace be with you, my dears. All my love , Marmie
Thanks James for the update after such a hard day. I'm glad I checked before going to bed. You are constantly in my thoughts and prayers.
Carol Landis
Dear friends,
I just read over your past few days and I am compelled to share a few scripture prayers that got me though a difficult time. Be encouraged and stand on God's promises. He will provide for ALL of your and Alivia's needs.
At home group tonight, we discussed John 11 - the story of Lazarus. Be reminded that God is in complete control. He sees all that is happening and His timing is perfect.
I am praying that our powerful God provides the miracle that Alivia needs. Praying that He touches her precious body and restores her life completely.
Please be encouraged and do not allow fear to take root.
Prov. 3:25-26 - I pray that I will not be afraid of sudden terror, nor of troubel from the wicked when it comes. I pray that you, Lord, will be my confidence and will keep my foot from being caught.
1 John 4:18 - I pray that in me there is no fear; because perfect love casts out fear.
Ps 91:11 - I pray that you, God, shall give your angels charge over Alivia, and keep her in all her ways
Ps 56:11 - I pray that in you, God, this family has put their trust and that they will not be afraid.
2 Tim 1:7 - I pray that I know that you, God, have not given me a spirit of fear, but of power and love and a sound mind.
Romans 8:31-39 - I pray that you God, are for me, who can be against Alivia? Shall tribulation, or distress or persecution or peril or sword? I pray for Alivia, that in all these things, she is more than a conqueror through Him who loves her. For I am persuaded that neither death, nor life, nor angels, nor principalities, nor powers, nor things present , nor things to come, nor height, nor depth, nor any other created thing, shall be able to seperate me from the love of God which is in Christ Jesus, my Lord.
Ps 91:4-5 - Your truth shall be my shield and buckler and that I shall not be afraid.
Blessings and love,
Holly W
Thank you sooo much for updating! I thought I'd check one last time before going to bed--I'm glad that everything went smoothly. I'll continue to pray for all of you. Thanks again for keeping us updated-especially after the exhausting day.
In my thoughts and prayers as always, Natalie M
Hang in there Livi. We'll keep praying.
Alicia Joy LeBlanc
Thank you for the update. I was hoping to see one tonight. She is on my mind, in my heart, in my prayers. I pray that she rests peacefully, and as always, for complete, miraculous and sudden healing. With much love, Janet S.
I wanted to tell you that you will certainly be in my prayers tonight..
Thank you for sharing the day's events with all who read the Blog.
Precious Alivia is the center of so many prayers and we really appreciate the updates. I pray for a peaceful day tomorrow ..
GOD LOVE YOU ....My warmest and heartfelt thoughts are with you ..
BLESSINGS TO ALL OF YOU !!
Phyllis
Thanks so much for the update! I have been praying all day. I will continue to pray for rest, miracles and encouragement! - Sue F.
We are so thankful that these tests went as well as could be expected today. Thank you, Lord!!
James and Emily, I was so greatful to be able to visit you at the hospital on Monday. It meant so much to me to be able to be present and pray where you are. I have a better sense now of your lives there. Our hearts are crying out to God Almighty. I know that your hearts have been broken time and again watching Alivia suffer. May God bring abundant blessings to all of you for all you have suffered.
Love, Aunt Anne
We love you guys.
Thanks so much for letting us all know how things went.
You guys are amazing... I know that it is by the grace of God that you are making it, but you are responding so well. He is giving you strength to keep your eyes fixed on Him, and He is being glorified in your lives!
Alivia, you are an amazing little girl! I am praying that you are sensing the mighty, healing power of our Awesome God as you sleep this night.
We will keep praying!
Calvettis
I am going to pray for Alivia tonight , tomorrow and for as long as is needed. Also, please let me know if there is anything Chris, Will, or I can do for you guys.
Love Uncle John
We'll keep on praying. The Plains
Thank you James for updating. I have had her own my mind all day. I too hope you can all get some rest tonight. Tomorrow is a new day and we will continue to pray for God's healing touch.
Vicki Moore
Thinking of you all and praying hard. Thank you James for updating, Livi has been on my mind throughout the day.......praying harder than ever for you and your girls.
James,
Thank you for the news. We are continuing to pray for your "tough little girl". I am moved by all the love, faith and support in all the comments. I feel honored to be among the "Baby Livi" army...out here. Love to all, Betsie
thank you for taking time & energy to keep us up to date on livi...even after such a long hard day. we love you guys and are thinking of you so much right now. praying & praying. xoxo
Relieved to hear things went pretty well. Praise God for His mercies!
James, thanks for the update.
praying...nothing is too hard for the Lord...he alone is trustworthy...
Thanks for updating. I will be praying for you guys, and that next time livi says home she can actually go "Home" and see her new beautiful bedroom. You do such great job at caring for your family. Keep it up. You are all in my thoughts and prayers!
love,
moriah
WOW! Appreciate the update. Glad she isn't in the ICU. It was quite an ordeal, but there was good news mixed in. We continue to pray and pray for you guys!
Love,
The Garners
Thanks for the update! She IS a tough little girl, with extremely strong parents...she gets it from you two! No doubt! We continue to pray in Baltimore....
Love, Jessica
I was reading one of my favorite authors this morning, Amy Carmichael (GOld by Moonlight) and found this ... I thought God would minister to you through it...
".. I know it is not the sense of His presence, it is the FACT of His presence that is our strength and stay. And yet it is comforting when a mother makes some little sign, or speaks some little word to a child who does not see her. And when our Father deals so tenderly with us, then we are very humbly grateful and we store such memories in our heart. And when there is not any feeling we rest on His bare word, "Lo, I am with you always, all the days, and all day long," and are content."
Praying for that touch of the Father, and for the contentment that rests. With much love, Janet S.
James I am praying for you and Emily and Alivia. You are in my thoughts all day.I love you guys.
thanks for the update I'm soo glad to hear that things went so well we will continue to keep you in our prayers
Becca
Thanks for the update, James, especially after the "long, hard day".
What troopers you all are!
Still Praying!
Mary Ann K.
Just wanted to let yoiu know that I've added Alivia's name to the prayer list at the church where I work and also the church where I worship. The power of prayer is amazing. God's grace be with you.
- Mary Lou Moreau
This is Alyssa,Thank you so much for writing on my blog when you are going though such a hard time with your little girl. Me and my mom prayed for you today. We hope you have a wonderful day and that God would be near you. Alyssa
This was on the pray for Ian blog today and I thought of Alivia. Maybe you already read it. If so, perhaps it will refresh you for a second time. I'm praising God for what He is going to do and is doing right now in Livi and in your family:
"This is how to deal with God. Praise Him before you are delivered. Praise Him for what is coming. Adore Him for what He is going to do. I do not think there is a sweeter song in God's ear than the song of one who blesses Him for grace that has not yet been tasted, who blesses Him for answers that have not been received but are sure to come." Charles Spurgeon
we are praying and will be praying that God would heal Alivia and restore her to health.
We continue to pray -- thank you for faithfully updating us on Livi's condition. May your hearts rest in the knowledge that Christ is our only hope, our refuge in times of trouble.
Matt and Kim R
James, thank you for updating the blog after what must have been a stressful and tiring day. You and Emily have been so faithful in this endeavor.We continue to hold you guys up in prayer.
Uncle Mike
Thank You, Lord, for good news, and thank you, James, for sending this along to all of us.
J&J
I am praying for you all.
May God's grace overwhelm you.
Sarah Sensenig
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