Day +86

Today was a better day. Still nowhere near out of the woods but she seems to be a bit better. She is still not walking at all. In fact she is more and more afraid/unable to stand everyday. Her EBV (epstien bar) is lowering. That is a good sign for her PTLD. Unfortunetly, she is still pooping blood. The doc who did the endoscopy came to see her today and said she wasn't suprised that she was still bleeding internally due to the number of biopsies requested by the doc who ordered it. She said she actually did less than requested because it didnt' seem safe to do as many as he wanted. She is getting daily platelet transfusions and has gotten quite a few packed red cell transfusions. If you match her and have donated in the past and want to donate again now would be the time. Her White cell count is on the rise again. Hopefully it won't go much higher or they will have to start doing blood cutures again to see if she has an infection in her blood. We have still not recieved the results from Seattle about the GVHD. Even though they didn't see anything here that doesn't mean they won't find something in Seattle. They are the ones who found the GVHD last time. There was passing mention of GVHD of the skin again today.

There was some laughter today and a ton of art work. She is still loving stickers and we go through sheet after sheet each day. She gets it in her head who she wants to make a picture for and then we have to write the name of the person who it is for on the paper really big, then she proceeds to cover the name completely with stickers. It's sometimes hard to remember who the card is for but she always reminds me. Its the sweetest, cutest thing. Some people (like her "Da" get lots of cards) Lucky duck.

Jackson...our buddy down the hall got some good news today. He doesn't have fungus or mold in his lungs. Instead he has strep that spilled over into his lungs. He actually smiled when I saw him today. Yea for Jackson!!

Pray Livi's WBC's stop rising, that her internal bleeding stops, less need for transfusion, no GVHD anywhere!! Continued healing of the PTLD, strength to return to her so she could walk again.

Also please pray for the Amish family down the hall. They got terrible news today and are having to make tough decisions. We have grown to love them and are aching for them right now.

Thanks for the cards from...
Julie Garner
Barbara Meyers
Marmie (the best grandma a girl could ask for!!)
Jamie Sentz and the Summit Quest 4th floor
Sue Forrey
Tootie and Dick Yake
Mrs. Kachur (my high school English teacher...my favorite teacher in high school because she pushed me to work harder)
Lynn Bassler (also for the generous gift)
Beth Young (also for the gift certificate)
Maryann Plesnicher (for the generous gift also)

Carol for the purse for Livi and for taking such good care of Livi so I could relax and sleep.

Thanks to Erin, Sonya, Ang and Bri. You know I love you girls and it means so much when we spend time together.

And to my sweet hubby for the great date. Love you tons.