I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +82
If you have visited us you know that Livi (and the rest of us) have fallen in love with another patient named Jackson. He is just the sweetest kid. It is always a highlight of our day to get to see him. They get each other presents and make each other cards. It is too cute.
I am writing now to ask you to pray for Jackson. He has a staph infection and has had a pretty terrible 2 days. Pray that his fever will break, that he will breath more easily and that he will stop throwing up. Pray for peace for his parents. We love Jackson and can't wait to play in the play room with him again soon.
Small update on Livi....she is doing pretty well today. Preliminary tests show no signs of GVHD. THey still are goign to send them to Seattle where they found the GVHD last time. Her WBC's are much more normal. Her kidney and liver functions are normal. It has been a better day. Tomorrow is Rituximab day so it may be tough again but it was nice to have a stable day.
Thanks to...
THe Stoltzfus Care Group
Leslie Yoder
Donna McKelvey
Larua BOl
Sue Forrey
for the cards.
posted by Alivia's Momma @ 8:29 PM
39 Comments:
I'm so glad to hear Alivia had a better day - Praise the Lord for his goodness and mercy! I will continue to pray for lil Livi and be happy to add Jackson to the prayer list. A friend.
Praying for Jackson and all of you too. So glad to hear that you had a more settled day - praying that the days will just keep getting better!
Cathy S.
Praise God for those preliminary tests! Please tell Livi that even grown-ups don't do too well with NG tubes. Tommy fought his yesterday, and now it's in and working just fine. Emma calls it the booger catcher :) There's a lot of hurry-up-and-wait time in the hospital, and in a way, Tommy's stay is a blessing b/c I've had more time than ever to pray for Livi. She is heavy on my heart. Praying that you have some more good days ahead, that Livi will have some cool playdates in the toy room, and that ALL results will be negative! Love you, Beth
Jackson is on the list.
So relieved to hear today was a little better. Can't wait to hear more good news. Throughout all of this I am amazed by many things from you, but how well you can give us the facts so clearly in such a trial is something. Please know that it isn't just daily, it is hourly you are thought of. Tonight we finished our dinner prayers and my 3 year old said "Wait, no one is allowed to eat until we pray for Alivia."
Thank you God for a better day.
Sleep tight
Diana B.
Prayers for Jackson! Prayers of thanks for Livi's better day! Prayers for complete healing for both of your beautiful babies! Prayers for their mommies and daddies and families, too!
We, too, pray for Livi multiple times a day as a family and then I pray silently all day long for her and for all of you. We will pray with you and thank God with you for a better day. I'm so glad things were more stable today and we will be praying for nothing less than a miracle for tomorrow and the next day and the next day. And, that little sweetie, Jackson, is going to be receiving such mercy, too, as you have so thoughtfully enlisted hundreds, maybe thousands of people to be praying for him too.
We love you so much.
I am so happy and thankful for a good day. Em, there will be so many more once you get over this hump. Jackson is so cute and I will keep him in my thoughts as he is going through some difficult times. Have a good evening and sleep well.
Love ya!
Heather L.
Keep thinking about all of you. So glad to hear that you all have had a better day.
Ann P.
Any friend of Livi's is a friend of ours! Pray we will for him and his parents.
Thank you, Jesus for a day for Alivia and family to catch their breath! Let's have some more of that, please. We Pray that Seattle once again finds the truth, this time that there is NO GVHD.
Hopefully the preliminaries will be right! I'm glad to hear that today was better.
Natalie M
Thank you so much for the update! I will be praying for Jackson. I conintue to pray for Alivia throughout the day. Praying for more rest, and encourgement. Praying also for the day tomorrow that the Rituximab will go well.
-Sue F.
Thank God for a more positive day. We are all pulling for you and yours, Emily.
Praying for Jackson tonight.
I thought about all of you today. It is good to hear that today was better.
YOU ALL DESERVE
MANY "BETTER" days...
I will pray that tomorrow goes smoothly.
GOD'S BLESSING ON ALL
GOD BLESS YOU ALIVIA
Phyllis
praying for jackson and livi...thats so cute she made friend. something good that came from this whole thng i guess. glad to hear she's doing better. i have been letting some friends of mine know about livi's story and askin them to pray. more prayer worriors lol. prayin. : )
rachael
I will definitely pray for Jackson.
But I must also cheer God and thank Him for a stable day for you guys. That is an answer to my prayers. Of course I am praying for, and believing, that complete healing is coming - but I also just prayed for you guys to get a break, a respite, a breather, a moment. I just want to thank God for that, an pick right back up with my prayers for healing. God bless you guys,
I'll pray for Jackson and his family before I head to bed tonight! What a sweet face he has. Loved the picture of the two of them. Glad today had some positives. I'm praying for the same news from Seattle! No GVHD!!!
Love ya!
Julie
ahh, i like this good news on livi. will keep praying. and will pray for jackson tonight. xoxo
Praise God that you had a good day and that things are looking up! Praying that all continues to go well and you will receive more NORMAL reports for Livi. We will also keep Jackson in our prayers as well!
C Curry
We are praying and not forgetting to be thankful for your day that it was a pretty stable one for Livi and she wasn't as miserable as she's been. Also praying for today and for Jackson.
I am singing the Halleujah chorus right now...perhaps a bit of an early celebration, but we must rejoice at all good news!!! Praying that nothing will be found in Seattle as well.
Praying for Jackson as well today.
Love, Yoders
Dear James and Emily,
My heart is heavy for all of you. Yes, I have been praying for Jackson, too. Yesterday was Alivia's great granddaddy Bill's birthday. Perhaps he had a word with the Almighty to help Alivia and you have a better day. I remember how my brother hated that NG tube. Praise God for each sign of improvement. Love to all. FAB and FUD
Praising God for a better day and praying for little Jackson.
his mercies are new every morning...great is his faithfulness...
praying...
PRAISE GOD!!!! It was the first thing I said when I read her update. How wonderful to hear that she had a better day!! We are storming heaven for Livi and are being heard!! I pray that she will continue to progress positively and that "home" will be in sight soon!!!
I will most definitely pray for Jackson's recovery and the return of "playdates" with Livi!! I'm sure those interactions with him help her tremendously!!
My thoughts and prayers are with you,
Vicki Moore
PRAISE GOD! Even the little mercies are so good to hear. One step at a time right? We'll be praying for the days to come and thanking God for a good day! And def ill pray for Jackson as well!
Hi, you don't know me but I feel as if I know your family. I am a friend of Beth Chase. I can't tell you how much your family is on my mind and in my prayers. We added sweet Livi to our prayer chain at church. I don't think I have ever prayed so hard for anyone. She is a gift from God and it's in his hands. I am so glad you had a better day yesterday. God Bless.
Thank you Lord for answering the prayers of your people! You are so faithful to us, and we are but dust. Your love is amazing. Lord, we all join our prayers together to ask for a double miraculous healing ... for Livi and for Jackson. You alone know what they each need physically. You are the God Who Heals. Heal them, Lord. Let Your Name be glorified and praised forever. Amen. Janet S.
They look too cute in the picture! I will definitely pray for jackson and for you guys too. I can't wait till the day you write that you get to go home! I am praying for a miracle, and that the Lord will give peace to you and james. God Bless!
love ya all,
moriah
it is soo good to hear some good news and that Livi is doing better thank the Lord I will definately be praying for lil' Jackson
Becca
Praise God for GOOD days!
Such a cute picture, too!
Still praying!
Mary Ann K.
Hello from Indiana
We saw PA today for a few moments.. we were happy to see him.
We are keeping Alivia in our hearts and prayers are being offered.
We will say prayers for Jackson also--We pray that he and Livi will play together soon.
GOD BLESS YOU VERY MUCH
Love from our Staff
Phyllis
Dear Ones,
Thank You, Lord, for a good day for these dear ones - Alivia, Emily, James, and Family! I pray that each day, things are better and better. Praise His holy Name!
J&J
We are thinking of you. We lit a candle to pray for Alivia in Notre Dame Cathedral. I hope she feels better and there are good days to come. I hope Jackson feels better too. Hang in there! Lori
I,m so happy for a "good day". We will lift Jackson up with Alivia. God is in control, not the doctors.Thank you for updating us so quickly. We pray for you all many times a day.
Love,
The Scherf's
Just wanted you to know that Lily (my 2 year old)has a favorite word ... it is "Baby". She says Baby about 100 times a day. Many times when she says "Baby", I will say, "Let's pray for Baby Livi ..." and we will pray. Lily prays too (she must have her own prayer language) and then she claps rather than saying Amen. I like her version of 'saying Amen' better than mine, so I clap too. And, the whole little thing gives me the hope that someday soon you will be doing this with Livi. My heart aches for you. But hang on to the Lord. He is faithful. Love, Janet S.
Praying, praying, praying...praying for you all. You are on my mind constantly...and each thought evokes a new prayer.
Praying daily for you, Livi, and now, Jackson, too! God bless you.
--a friend in Pittsburgh
What grace on your life that you are caring for Jackson in the midst of your own trial. Praying every day for you guys.
Thank you for the updates of Livi's test results. I was praying for her earnestly this week. (And you all,too.) I would encourage you to read the psalm that matches the day # of your hospital stay. (ie. Ps 85 or 91 or whatever). I asked the Lord to bring Livi outof the hospital and to her home by the time you get to the end of Psalms ends (150). That's my faith prayer for you.
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