I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +92
Last night and today were very long. Last night Alivia may have slept a total of 6 hours. It was an hour here and another 2 there. She slept the best when I stood beside her crib. She didn't even want me to sit in the chair by her. So I got less than 6 hours. She was up and fighting sleep from 6 am on. She only napped for a brief 45 min today and spent the rest of the day crying, throwing up or just feeling horrible. She had fevers on and off all day and now is finally asleep but needing oxygen. Probably all from the infection but she did have a chest and stomach x-ray to ensure that was all it was. A long day for everyone. Poor sweet pea just felt to bad to even sleep. We also found out that the doc that we don't particulary get along with is back on service tomorrow and will be on for 2 weeks. So we won't be going home anytime soon.
Pray that the infection gets under control quickly and that she is feeling much better. Pray that nothing new comes up. Pray that we are able to discern the reality in what the doc says (Since he always tends to say the absolute worse case senario and is never encouraging). Please pray that James is able to make huge headway on our screened porch. We want to get it done so that if we ever get out of here Livi will have somewhere to play outside. Without a miracle he won't be able to get it done before the end of the summer let alone by the time we get home (although at this rate it may be the end of the summer)
We've been here too long. It is wearing on all of us. Home for me seems like a dream. I know because of all the work I won't recognize it but I can't even imagine being out of here anymore.
May people have asked what they can do, what they can get for us. If you really want to get something for us get a gift card to Home Depot. That would be the biggest help. Of if you have amazing carpentry skills and want to donate some hours to our back porch that would the most helpful. Otherwise...Livi likes stickers. Especially foam stickers or glittery ones..or of course Seasame street.
posted by Alivia's Momma @ 9:07 PM
15 Comments:
God bless you all. You have so much strenghth; I cannot imagine what you have been through in the last year. I am not a religious person, by any means, but I think of you every day and I read your blog every day, and God has definitely been on your side. I have 3 children of my own, and I do not know that I would be as strong as you have been.
Thinking of you daily!
Tracie (Heather L.'s sister)
Emily,
You don't know me and we will probably never meet. I stumbled upon your blog somehow through several different links on some friends blogs. I have to tell you, I admire your strength. I have a 2 1/2 yr old daughter and I look at her every day and wonder if I would be able to go through what you are going through with such strength. It sounds as though you have a lot of support and I hope that little Livi gets to go home soon completely healed. Your faith in the Lord is encouraging. The Lord is in control. Praying in Tennessee.
Oh Emily, I'm so sorry your daughter has to go through this. We serve a BIG BIG God who loves us and cares so deeply for us.
Know that He is with you. He sees all that is going on, He knows all of your needs and your thoughts. He will supply for all of your needs, for His glory.
Be encouraged, dig deeply into His word - if you cannot read it, play scripture cd's. He will speak to your heart and encourage you.
Thank you for blogging about your daughter - her life has touched so many people. including me, I have never met you, but I feel like I know you all. Livi is on our hearts so much. I've been reading your blog for about eight months, I received an email with your blog when Ian Murphy was in an accident from Lord of Life. My family visits there, however we attend New Hope Assembly of God in Dayton.
I have four children of my own and my heart aches for you. I am praying for Live to be healed completely for God's glory! I believe with all my heart that He can heal her. I believe that He can meet all of your needs.
"Be strong and courageous, do not be terrified, do not be discouraged for the Lord, your God is with you wherever you go." He sees you at the hospital, He is with you there. Lean on Him to give you the comfort and strength you need.
Blessings to you. Praying more!
Holly W
Dayton, PA
Dearest Emily ... your needs have been heard and pray we will! Our prayers will be heard and Thy Will Be Done! May God grant you peace and rest tonight, so tomorrow will look brighter; renewed hope and strength to care for little Livi. With much love and concern - a friend.
Emily, when you think you are at the end of your rope remember that many prayers will extend it and stretch it as long as needed. I just feel so terrible that precious Alivia has to continue suffering.It's not fair, it just is what it is, and I hate it but will continue praying So much love from your Marmie
Dear Emily, I want to tell you that you will indeed get out of that hospital!!! God is faithful. Bless you ... it must feel like this never-ending saga that will drag on and on until Jesus comes back. Isn't it great to know that ALL things have a season, and God has an end to this too. We are going to pray, again, without growing weary or discouraged, that the Lord heals Livi and that you all are able to go home soon. Sooner than you think, sooner than you could imagine. I don't know that He will answer as I would want Him to, (like, tonight!!) but let's ask again. And, about that doctor ... I am just going to start blessing him in my prayers. Sounds like he really needs the love of the Lord in his mind, heart and life. With you all the way here in Home PA (Hey! That rhymed!) Love, Janet S.
Praying for Dr. Negative that he will be given the gift of positive speech. :) And if that doesn't happen, I'll pray too that you will hear only positive in what he says. Always praying for Livi and you and James and your families. You all have been through so much...I pray that once your dream comes true and she goes home healthy that this whole experience will fade away in your memories like a dream as well.
Isaiah 40:31
"But they who wait for the LORD shall renew their strength;
they shall mount up with wings like eagles;
they shall run and not be weary;
they shall walk and not faint."
Oh, Lord, please send the eagles!!!
I know about 1% of how you feel, Emily.
When I was sick which chemo, I would spend DAYS and DAYs in my comfortable, queen size bed for 22+ hours each day. What had once been so comfortable, now felt like a prison.
Praying, PRAYING and PRAYING that this trial is soon over and that Livi is completely healed.
Janet S. is right about the doctor. I'd like to think that "something" will happen to him that makes even him wonder what is up when his attitude changes and when Livi is healed!
Still Praying!
Mary Ann K.
We continue our prayers from yesterday for a short-lived infection, and an upward path of recovery from here on out.
We don't even get through nice and easy days with out God's grace. Of course we will pray for you over the next couple of weeks as you dread dealing with this doctor.
You have been an inspiration to so many through this immense trial. Consider that the most important person to whom you demonstrate Christ just might be this very doctor.
Oh Emily, my heart aches for you and Livi. I can't imagine the fatigue you feel, both physically and emotionally. You have all been through so much. I pray that the finish line is near. Stay strong and know that we are all praying for Livi every single day. God hears our prayers - unfortunately, His plan doesn't always match ours (I know you know that and I'm not telling you anything new!)
I pray that Livi's infections goes away quickly and that she's back on the road to recovery. I pray that James is able to finish the porch and that you and Livi will be in it very soon!!!
I also pray that this doctor's attitude will soften and you won't have to put up with so much negativity. Hardly what you need at a time like this.
Warmest thoughts,
Vicki Moore
Emily,
God's grace NEVER RUNS OUT!!! Our strength does, our faith waines ,but God, He is never depleated. We are limited that is how He made us. He though is unlimited, HIs grace is sufficent, complete, never ending! He carries us when our strength is gone. He loves us that much! He is carrying you all now! He is being faithful and will continue.
We think of you often and pray daily for you all. I will be added "The Dr." to the list. Consider what the Bueches said about prayers going up for "The Dr." May God use our prayers to soften this person's heart and God intervene in his (or her) life.
Praying, praying, praying,
Dawn Mellinger
WE have been praying every week in sunnday school at church!!And we will keep praying!!
Eboni Freeman
Didn't you just have that doctor?? I thought you'd get a little bit of a longer break from him...
I just bought some fun stickers for Livi yesterday. I will mail them soon! =) Love you lots~Ang
praying, praying, praying. Be encouraged. You will get out of there. Praying for God to multiply James' time and your home to be ready just when you and Alivia need it! God is faithful. Continue to watch Him work!!! You will be a testimony of His faithfulness to the doctor you have this week!
-Sue F.
Emily you looked so exhausted when I came in today...and Livi is so uncomfortable/in pain. The picture you two make sleeping on your bed is so sweet...how we all wish it was at home. I hope our good God lets it be soon.
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