Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Thursday, June 14, 2007

Day +96

I'm holding hands with livi as i try to type so there will be no capitalization. she had a fine day as far as days full of pherisis go. it took about an hour again with the same results as last time. it cut here igm level and viscosity by about half but since the levels rebounded in between pherisis it didn't change much..just made her more comfortable for the evening. tomorrow at 9 she will begin getting chemo again. this is something we dreaded. supposedly it is the same as an outpatient dose and the side affects should be minimual. but still...its chemo which is basically poison. she could get nausea, loss what little hair she has grown back, get mouth sores, higher risk of infection. she also gets rituxin. it is going to be a long busy day.

thanks to
marmie for the stickers and generous gift for gigi and i.
the beamesderfers for the cutest socks ever...everyone keeps commenting on how sweet they are
the kim's for the stickers
dishy for the yummy baked goods
the borghi's for the cookies
kelly tonkin for the stickers
april for the hilarious note and stickers
sonya and bekah for the fun


Anonymous Monica C. said...

Praying for no side effects from the chemo. and for the chemo to do its job. Thank you, Lord, in advance, for healing Alivia.

6:45 PM  
Anonymous Anonymous said...

Praying for rest for you Emily and Alivia. May the chemo go smoothly tomorrow with no adverse effects.
--The Clemmers

6:57 PM  
Anonymous grande aunt lisa said...

I would give up shifting and capitalizing any day to hold either of your hands, Emily & Livi. My heart and prayers go out to you continually. We ask for NO SIDE EFFECTS & COMPLETE HEALING.

Gargantuan love to you all,


7:16 PM  
Anonymous Anonymous said...

TO all of you !
I have you in prayer

7:28 PM  
Blogger Bueche said...

"Hang in there" says Loretta. Me too. We will hang in there as well with our prayers.

Yesterday was my last day at work until the fall. The secretary that I mentioned weeks ago whose husband is "alive today because of highly experimental procedures" made me promise to routinely update her on Alivia's condition. Even though her husband is in a real bad way health-wise, she will not hear any words of encouragement or sympathy from me. She tells me to save them all for Livi.

7:30 PM  
Anonymous Anonymous said...

Would that I could hold Livi's hand and yours, dear Emily. Praying for the dreaded chemo to do it's work with no side effects. It is possible with God's help. Trusting in that help with all my might. Trusting in a healing process to begin, please Lord!! Love, love, love from Marmie

8:21 PM  
Blogger momofcolin_chloe said...

Praying as always!!!

8:26 PM  
Blogger Jude's Mom said...

Awe! Love that you and Livi were holding hands. Sweet girl! Give her a smooch from me and Jude!

Love you and we are praying (does that go without say these days?).


9:46 PM  
Anonymous Anonymous said...

Yeah to a mom holding her sweet baby's hand!! I will be praying especially tomorrow for all involved - Alivia, Emily, James, family, dotors, nurses and everyone you come in contact with at Hershey. Emily, I thought this the other day, do you realize what a testimony you are RIGHT now, RIGHT where you are? Your blog is a catalyst for prayer for so many. Continue to be encouraged! - Sue F.

9:50 PM  
Anonymous Anonymous said...

Thanks for writing. I will be thinking/praying extra hard at 9 tomorrow...& i'm sure i'll check the blog a ton of times to see how things go----luv, luv, luv, Ang

9:59 PM  
Anonymous Anonymous said...


praying for your precious girl - Lord God, please do not allow her to suffer one more day. Oh precious Father, please heal Alivia from the top of her head to the soles of her feet. Oh God, I ask that you give this family hope and comfort to know that You are near, know matter what. Thank you God for hearing our prayers.

Blessings to you all,
Holly W

10:44 PM  
Anonymous Anonymous said...

I thought of this hymn when I read your blog entry Emily.

What have I to dread
What have I to fear
Leaning on the everlasting arms
I have blessed peace,
with my Lord so near,
Leaning on the everlasting arms.

I know it's an easy thing to say, being outside of the situation and all. But I believe that every time you are holding Livi's little hand, God's holding your other one. And He won't let you go.

Praying for blessed peace.

Alicia Joy LeBlanc

10:58 PM  
Anonymous Anonymous said...

Dear family of Livi, as I read your blog with great sadness at this new trial to start, the verse that leaped to mind is Mk 16:17-19. And these signs will accompany those who have believed: in My name they will cast out demons, they will speak with new tongues; they will pick up serpents, and if they drink any deadly poison, it shall not hurt them; they will lay hands on the sick, and they will recover. So then, when the Lord Jesus had spoken to them, He was received up into heaven, and sat down at the right hand of God."
And we will pray that this deadly poison will not hurt her, just as we have been praying that she will recover. Love, Janet S.

5:33 AM  
Anonymous Anonymous said...

Peggy is still praying for Alivia. I loved what a person named Alcia just wrote: "Every time you are holding Livi's little hand, God's holding your other one. And He won't let you go." I beleave this. What a beautiful vision.

6:10 AM  
Anonymous Anonymous said...

I too love what Alicia wrote - it brought tears to my eyes imagining our Father holding your hand and Livi's other hand - to form a circle of love. And in that circle, the healing will come - I feel it so deeply. I trust that God will bring her new life with a healing of this disease. Unfortunately, she has to have these bumps in the road first. I pray with all of my heart that this poison will do it's job without hurting that precious baby with side effects!!! I'll be thinking of all of you in about an hour as she begins the treatment.
Many prayers and thoughts coming your way,
Vicki Moore

8:07 AM  
Anonymous Anonymous said...

Emily, James, Alivia and all your family......I have friends who attend Lord Of Life church in Indiana. Many months ago they shared your story with me. I visit your blog (as well as Ian Murphy's) almost daily. It was while reading Ian's blog from the 14th that I decided it was time to leave you a comment.

I just want you to know that you are in my prayers daily. Even though I don't know you personally, I still share the heartbreak of what you are going through. I pray that you will continually be encouraged and uplifted by the many prayers that are said on your behalf.

I am sure it is hard to keep this site going at times, but I thank you for allowing us to share what you are going through. It really allows us to be able to pray very specifically for all of you.

Frequently, when I think of you, I think of the 'Footprints in the Sand' poem. I pray that you will feel God's presence as you walk through this very difficult time in your life. I pray that He will give you the strength and the grace to see you through. I pray for Alivia to be healed.

Gods' Blessings to you all!

Brenda E.

8:53 AM  
Anonymous Anonymous said...

Praying for you all, esp. this morning, and for miracles to take place. Love from the Lotinskys

9:05 AM  
Anonymous Anonymous said...

praying really hard for Livi praying for the chemo to go well and for Livi to experience NO side affects may God give you increased strength and grace

10:01 AM  
Anonymous Moriah said...

May the Lord give you strength and comfort during this time. I pray that the side effects aren't as bad as last time. I am praying for a miracle...who knows what God has in store for your family. I am also praying that you can go home soon. Hang in there Emily.

love ya,

1:56 PM  
Anonymous Anonymous said...

Praying for a miracle.

6:02 PM  
Anonymous Anonymous said...

We continue to lift you to our heavenly Father to ask Him for a complete and total healing for Livi and strength for you and James...God is there with you...listen, do you hear Him, do you see Him? He will touch your little one, press on and touch his robe...the healing will come
The Burns

11:49 PM  
Anonymous Anonymous said...

I'm not even going to try and play it off like I'm okay with this...

Love you, Love you, Love you...

Em...I feel so hopeless...is there anything I can do...anything...I mean it!!!

Love Shannon

12:51 AM  

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