I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +93 part 2
Livi got her pheresis catheter placed this evening in the PICU. She did fine. It is not a good looking thing. It makes me very nervous. She can't sit up because it will crimp or kink or something. How to tell a 2 yr old she has to be laying down or at a 30 degree angle for a few days is...almost impossible. TOmorrow the official decision about pheresis will be made but it looks pretty certian that she will get it. The goal is to lower her IMG level and see what happens. If they number stays low that is good but if it shoots right back up then it means it is a true lymphoma and she will need more chemo. It is all very techincal and hard to truly explain. I'm not even going to try. Pray she gets better. Pray she doesn't need more chemo and that there are NO MORE complications.
posted by Alivia's Momma @ 12:18 AM
24 Comments:
Emily,
It is hard to read about the difficult times you are experiencing now. The great hope that we have is that this is not a surprise to God and we know He is the author of all things. My prayer for you is sustaining strength, wisdom, and faith that will not be shaken.
Praying for you all...
Trusting God to rid Livi's body of fever and infection...
Asking for an extra measure of grace for you with this Dr...
Asking for increased measures of wisdom and discernment...
Love to all,
Lynn
morning emily and family-
we will continue to pray for alivia and that she would be able to rest today and that there would be no more complications and no more chemo needed. praying as new difficulties arise that your eyes will keep looking up to the Lord for help, strength, grace, and hope. love you all-jamie
I prayed for Alivia on the way to work this morning, and will pray multiple more times throughout the day...as usual. Grace to you.
Continuing to pray for your precious daughter. Aching for you all and lifting you before the throne of grace.
Blessings,kathi
Poor sweet Livi - the things you are going through - my heart breaks. Continuously praying for an end to the infection, for a softening of this doctor's bedside manner, for no more chemo, for a light at the end of the tunnel, for strength for all of you and for a constant supply of hope.
Vicki Moore
Dearest Emily, James, and Family,
Alivia is always on our mind..
I want you to know that
she is very close
to our hearts.
God Richly Bless You
We are Praying~
Phyllis
Oh Emily! PRAYING! Always praying.
Along w/everyone else, I'm praying for your precious daughter.
May you feel Gods touch as never before.
Love,
Maryann Plesnicher
praying for your little girl praying for her to get better, not to need anymore chemo, and for you to go home soon I can't imagine all that you are going through but rest in God's abundant grace
Becca
Continuing to pray for Livi, no more complications, and continued grace for all of you. As these things continue to happen, keep your eyes on the Lord - He will sustain you as you make decisions and care for her. Praying and praying.
Love,
D
Dear Family, Love from Marmie as we continue to pray without ceasing.
I'm praying for all that you have asked and believing God will work all things for good.
Carol M.
You are right. What she needs is the healing touch of the Lord, not more chemo. And, let's (all) not grow weary, discouraged, or faint-hearted in the face of this, but look to the Lord our Healer and Deliverer. If He gave His only Son for us, won't He graciously give us all good things? I am praying for her complete wholeness and healing. Hang tough onto Jesus, family! Love, Janet S.
Hey everybody!!! Let's not forget to PRAY really PRAY for this doctor. He needs the wisdom and revelation of the Lord, not what it looks like, or what he speculates it MIGHT be, but, this doctor, whom the Lord has allowed to be there this week for a specific purpose, needs the Lord to reveal to him what is actually going on in Livi's body. Please join me in praying for this doctor, and that he will be cautious in testing on Livi, that he will care for her as if she is his only daughter... that the Lord's love will be poured out upon him and that his eyes will be opened to see Truth, not reality. Thank you. Janet S.
praying and praying
love you
Praying here also. We think of you all the time.
Lotinskys
My daily affirmation calendar has today's scripture as, 'For we walk by faith, not by sight'. By faith, I believe that Alivia will have no further complications and will NOT need any additional chemotherapy. By faith, I believe that she will fight off this infection. By faith, I believe she will get better and better. God bless you guys!
You are in my thoughts and prayers. I am praying for a miracle for cute, precious, livi!
love ya all,
moriah
I pray for her every day!!!!
Eboni Freeman
I'll be praying for her.
Pamela Bueche
Emily,
Our family reads your blog daily and have been lifting your sweet family, especially little Livi, up in prayer. I don't know you but from one mom to another my heart aches for all you are going through. May the peace that passes ALL understanding guard your heart and minds in Christ Jesus. love, The Lowe family
Praying...
Emily, I've been out of town w/o a computer since last week. The first thing I did when I got home was to read your site. I just HAD to know how Livi was doing. Praying like crazy, as usual. Praying for you too. Continually praying for a complete healing. Stay strong today. Love you, Beth
Dear Emily, James, Alivia, and Family,
I echo what Lynn says.
Hold onto the Lord.
Love,
J&J
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