I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +98
The chemo went fine. It is always uneventful during the actual infusion. She had chemo from 9-10 then a platelet transfusion from 10-11 then rituxin from 11-9 last night. It was a long day. She always starts to throw up about 24 hours after the rituxin starts. today was no exception. it is so hard with the pherisis catheder in to get her into a position where she can throw up. We didn't do a very good job the first time. hopefully all the anti-nausea meds will help there not to be a second time. Unfortunetly her IGM level still went up even though she had chemo so she has to keep the pherisis cathedar in and might have pherisis again tomorrow. Chemo takes a few days to really start to work for we'll see then if it is going to kill this secondary cancer.
Two days ago our dear Amish friends came back to the hospital late at night. Their daughter Katie Mae was too uncomfortable and couldn't keep oral pain meds down anymore. Katie Mae always hated the hospital and never wanted to come in so they knew she really must have felt bad when she asked to come. So they brought her in for IV morphine to keep her comfortable. They kept her as pain free as they could and this morning around 7:30 she went to be with the Lord. For her transplant she was in the room next to us and would always worry when she heard Alivia cry. She would want her mom to make sure Alivia was okay. We are blessed to have meet them and our lives are richer from their friendship. I am so sad for them. Pray for comfort, peace and grace for their family during this time.
posted by Alivia's Momma @ 11:29 AM
16 Comments:
I am sad. Is this the Amish family that is helping James with your house? Regardless...how heart breaking!
Oh, Lord, please heal Alivia! I was reading again yesterday about the Official who asked Jesus to heal his son. Jesus merely spoke the words and the man left to find his son healed. Our Lord has that power. He CAN do the same thing here if that will bring Him the most glory! We continue to pray...
We love you, Emily! (And James & Livi too)
The Garners
We are praying the chemo begins to work immediately and Livi's healing comes quickly. We are praying for all of you through these very long, hard days and that the Lord will comtinue to bless you with strength, faith and grace through this ordeal.Emily, thank you for sharing Livi's story and allowing us to share our prayers and our love with you all. God bless you all. Love, the Vandernecks
Praying!!!! For comfort and peace for the Amish family but also for you.
Praying for Aliva spring this time.
Oh Emily! I'm so sad and sorry that your dear, sweet little friend, Katie, went to be with the Lord. Not sorry for her, of course, but for you and her family and your family; those who she left behind the veil. She's seeing the Face that is Paradise Himself. There is no power on earth that could lure her back here. She's finally in the land where she belongs.
I'm so sad that Livi has to go through what she is. I'm so sorry and sad that you have to go through what you are. No one knows, except those who have or are going through it, and Him.
I'm praying that He brings her through this like He has brought her through every rare and delicate situation that she has been through. I'm praying for you. I'm praying for some rest for your heart. I don't know how He can do it, but I know that He can.
He is here.
We love you all so much,
kristi
how sad for this family and for you. I'm so glad this is not our permanent home and that this sadness will not last forever. How long O Lord? At the moment, this IS our only forever and it is long, because every moment hurts. I pray for a glimpse of the true Forever today for us, for this Amish family and for everyone who is suffering "endlessly" today. Come quickly Lord Jesus!
Aunt Marcy
So sorry to hear about Katie Mae I will be praying for her family as they go through this difficult time I am also praying for Livi that the Chemo would work and that God would heal her little body
Praying for Livi to be healed. Praying for rest for you all.
Trust in the Lord with ALL your heart and lean not on your own understanding... It's hard to see "why" this is happening. But He tells us to trust Him. I'm praying you continue to do that.
Just think of all of the people in heaven you may meet who will tell you how your daughter touched their lives. I know I have been changed reading your blog.
Be encouraged today. God will continue to be there.
Hey Emily,
I was so sorry to hear about your friend. Cynthia was telling me how much you cared for them and got to know them. i cant imagine how that must be for you. im still praying for Alivia. and i think about you and pray for you and james all the time.
maybe next time im in lancaster, livi will be home. i will be praying for that.
love you,
rebekah
I am so sad for the Amish family. Will keep them in my prayers. Praying so hard for the chemo to be working for sweet Alivia . I awoke early today and it has seemed like a realy long day, but the more waking hours the more time for praying for my dear family. Love to all from Marmie
The Kimmel's are praying for you all and for your dear friends. Jesus is bigger than all our pain; knowing makes it all bearable but not necessarily easier. Many are praying for healing and peace.
Much love,
Drew, Sandy, Jer, and Ned
Dear Emily -James -Grandparents-
I definately will keep your friends in my thoughts. Thank you for sharing this will us.
Darling Alivia is constantly in my thoughts and she is being prayed for (many times throughout the day.)
You are an inspiration to everyone.
We pray for healing and comfort.
God Bless You
Phyllis
Praying for the Amish family...how sad...how sweet that she cared for others while she was suffering. Praying for this chemo to work quickly and for Livi to be COMPLETELY healed...no miracle is too big for our God.
Dear Emily,
God's grace is SO evident in your life!
You were gracious enough in your last post to keep us up to date typing with only one hand while holding your precious Livi's hand.
And now you are carrying the sadness of Katie Mae leaving her loved ones.
I pray comfort and strength for Katie's family, for you and your family and complete healing for Alivia.
Our God is BIG and He is able!
Still Praying!
Mary Ann K.
praying, praying, praying, for Alivia, for you, for all involved and for the Amish family. It's so good that God hears our prayers, our sighs, our cries!! God is faithful! - Sue F.
Yes, as another said, God's grace IS evident in your lives. You are thinking of others in the midst of your dark valley. Praying, praying.
We truly have learned much from Katie Mae's mom. As you told me yesterday, Emily, Katie's "make-a-wish" was for a new home. Her mom Barbie told her as she was dying, "Katie, you are getting a new home, and it is a mansion". Such faith in such sorrow! Gigi
P.S. I wish your trip out of the hospital was to a funeral, but I hope you and James can enjoy each other's companionship while driving.
Post a Comment
Subscribe to Post Comments [Atom]
<< Home