Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Friday, February 02, 2007

Yesterday

Our visit to the clinic went fine. All of her counts stayed pretty much the same. The RBC's were the only ones to go up. The WBC's and platelets came down but not enough to change anything. Alivia got her IV antibiotic that she gets each month and got her dressing and caps changed (on her broviac). It went so much better than last week. The home nurse did it last week and Alivia was terrified and it definetly hurt her when the tape was removed (the nurse used alcohol to remove tape!! Ouch). This week it was Joanne who changed everything. Alivia knows and likes Joanne so she wasn't scared at all and Joanne didn't use alcohol to pull the tape off. She was patient and careful. Thanks Joanne.

We talked to our transplant doc and she gave us some dates....Yikes.
February 13th is the consult
February 19th is the eye exam
February 20th is another bone marrow biopsy and nasal wash
February 27th we go into the hospital for the transplant...unless the cord blood is coming from Europe then we will go in the following Tuesday.

Inbetween now and then we also will have an Echo, EKG and Chest CT along with our regular clinic visits. I personally thing spending 6-8 weeks there is more than enough time but obviously I am wrong.

On one hand its good to have a date so its not just looming out there in the unknown but on the other hand I was still holding onto the idea that if we never plan it something will happen and she won't have to have it. We could still get a miracle but I'm not sure thats what is going to happen. I still can't imagine actually walking into to the hospital with her as healthy as she is now and hooking her up to meds that might kill her. My brain doesn't work in that area.

I know that people are going to want to send cards and maybe gifts to Alivia when she in the hospital. That is great but there are some very clear rules on what kind of gifts she can have. With cards please don't lick them. I'm being overly cautious but its my baby and I want to do everything possible to keep her healthy. So use a little water. Second, no stuffed animals. We are allowed to take a few from our house (we have a million) but she can't have any others cause they hold onto germs. I will lay out the whole list in the coming weeks. Thanks everyone.

7 Comments:

Blogger momofcolin_chloe said...

Praying for Alivia and you. Hope that the coming appointments go smoothly and without causing you to have a breakdown. :) Not that you would! You always remain so calm. Please keep us posted and let us know if there is anything, big or small, that you need...besides our daily prayers, we have those covered!

9:55 AM  
Blogger Jude's Mom said...

Prince Jude wanted to tell Princess Alivia that he misses her and can't wait until she is better! He looks forward to swim dates with her for many years to come! :-)

I miss you too, Emily!

Praying for sleep and peace...(among so many other things)

Julie (and Jude)

10:40 AM  
Blogger Briana Almengor said...

I'll be sure to put those dates on our calendar and be praying for you. No apologies needed for looking out for Livi with what to send/not send. You're not being paranoid, just responsible.

Praying that the peace of God which transcends all understanding will guard your heart and your mind over the next days, weeks, and months. Phil. 4:6,7

love you much, friend.

2:41 PM  
Anonymous Anonymous said...

Emily,
Elaborate, please.
Why an eye exam on Feb 19th?

Still praying!

Mary Ann K.

3:45 PM  
Anonymous Anonymous said...

My mind is like yours, Emily, it doesn't contain these wierd scenarios - I go into a numbing, foggy, dreamlike place. I am sure God made us this way as women, and especially as mothers. Some things just will not fit through the door of our brain. Even if our body goes through motions, our brain is resisting, trying to right all these wrongs that are happening around us. We can pray only with our hearts. And I am and will, even as it is breaking at the mere thought of any more harm coming to that little sweetheart. She most definitely is the cutest girl around these days.....
Aunt Marcy

4:42 PM  
Anonymous Anonymous said...

Loving my girls, missing you all, but knowing Grandpa is taking good care of y'all! Mom

8:10 PM  
Blogger All the Millens said...

We send our love to you all. You are being so brave, facing each new day with its news. May God continue to give you sweet grace, gentle grace and overwhelming grace in these days.

Katherine

10:14 PM  

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