Clinic

Today is our first clinic visit since the surgery. I am interested to see how much she weighs now. She is eating so well and being really active so I bet she didn't lose any weight. She is sleeping a bit better. Not getting up less but she seems to really be sleeping when she sleeps. It always seemed before that the slightest sound could wake her...like she was never really in that deep of a sleep. She is sleeping much more soundly now.

I have about 100 questions for the doc. Like how do you give a bath with the broviac? We did yesterday but it was really hard. You can't get any of it wet so we taped a bag to her chest. If we have to give a bath everyday that just won't work. Or how do I clean her lines? The hospital told me one way and the home care nurse another. They are very different so I need to figure out who is right and who is wrong. And finally are we sure? If this was our doc's child would she proceed? There is nothing else in the whole world that might cure her? What if its a simple thing and we're missing it? It will be good to get some answers.

Pray for wisdom for the docs and for us. It may come down to us making the decision whether or not to proceed. I'm not sure how to make that decision.