I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +105
Alivia will get pherisis AGAIN today. Her IGM more than doubled since yesterday. She only slept about 2 hours last night due to belly pain and gas. It was so hard to watch. If she continues we will have a CT on monday to rule out a hematoma in her intestines from the endoscopy. During the anesthesia they will also pull her pherisis cathedar. It can only be in a week and Alivia's has been in for almost 2. Then she will have another one placed in the other leg.
She has been puking and going to the bathroom over and over. It seemes as if we take one small step forward only to come falling backwards. I'm tired, Livi is tired, James is tired (and sick at home this weekened). We could use some good news, some relief.
posted by Alivia's Momma @ 12:41 PM
28 Comments:
Emily,
We will continue to STAND and pray with your family.
Holly W
Can't conceive what you guys are going through. We will keep praying...
When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you; when you walk through fire you shall not be burned, and the flame shall not consume you. Isaiah 43:2
O Lord Jesus, You have promised never to leave or forsake us. I pray that this flood of suffering would not overwhelm Alivia, James and Emily and their families. Lord, thank you that you are with them. Please fill them with tangible strength, hope, joy and a sense of your love. Please have mercy on Alivia and heal her from head to toe. Thank you Lord Jesus.
Mark A
I'm so sorry, Emily!
We love you and pray believing in all God can do!
Dan & Julie
Praying for complete healing for little Alivia - that the Lord will bring immediate relief from the belly cramps and uncomfortableness and a total healing of her little body! Praying for peace for Emily and James, that the doctors are doing everything they can for sweet Alivia; strength for you all as you sit in that hospital day and night; and an end in sight that will get you all home where you belong. Praying that James is feeling better soon so he can be with his family. Praising God for all he has seen you through and will continue to see you through.
A friend in prayer, Beth Fulmer
Continuing to check in regularly and praying for a miracle for Alivia and the sustaining grace of the Lord to carry all of you!
Will be lifting you before the throne of grace in your time of great need.
Blessings,kathi
oh emily, sounds so rough right now. praying for your strength and some good news to come your way. xoxo
Big Daddy Weave - Every Time I Breathe Lyrics
I am sure all of heaven's heard me cry
As I tell You all the reasons why
This life is just too hard
But day by day
Without fail
I'm finding everything I need
And everything that You are
To me
Chorus:
Every time I breathe You seem a little bit closer
I never want to leave
I want to stay in Your warm embrace
Oh basking in the glory shining from Your face
And every time I get another glimpse of Your heart
I realize it's true
That You are so marvelous God
And I am so in love with You
Thought of you last night when I saw the music video for this song. God is there. He is listening. It's so hard to see sometimes. Continuing to pray for little Alivia. Praying that God will heal her comepletely, soon, and in the meantime, continue to use your testimony. Praying also for James to get better quickly. I can't imagine how hard it is. Prayiing for little steps forward and no steps backward. Keep trusting Him. - Sue F.
I just got back from youth camp with the girls. Loretta had to give me the gist of the last wo updates until now.
I carried you with me through the grass, in the barn and in my tent.. and still now that I am back home.
I am Praying For BABY LIVI and
I pray you find continued strength.
God Bless You
Phyllis
I bet you are tired. I pray that this will all end soon and you will be able to go home and get some rest. You are such a brave mommy, and when livi is old enough to understand, I know she will be thankful for all that you did for her. I am praying for you guys.
love ya,
moriah
Emily,
Matthew 11:28 Come unto me all who are weary & I will give you rest.
We can only find complete rest in His arms. I pray that all 3 of you feel the arms of Jesus wrapped around you tight tonight .
We love you guys!
Love and prayers, Brandi & Family
Em,
As I read your blogs I feel so selfish to think my life is complicated. I have no idea how you are doing this! I'm so frustrated for you and would give anything to make this go away. But, I know thats not possible so...I'm praying baby.
Love Shannon
"Cast your burdens unto the Lord and He will sustain you." Psalm 55:22
"He will guard his flock like a shepherd, He will gather the lambs in His arms. He will carry them in his bosom and gently lead those that are with young." Isaiah 40:11
Praying for you, Haughery family, for complete healing, and that in the midst of this trial,you would be able to feel your Savior carrying you. --The Ross family
I am praying for renewed strength for your entire family.
Kristen E.
I know why I always write ... Praying for complete healing and wholeness for Livi ... because I can hardly even begin to imagine what I could possibly say that would even begin to help or minister in the smallest way. And then, I always come back to the bottom line ... God loves her and He is faithful. I can't even begin to understand this kind of suffering, but I know that He LOVES her and He is faithful. And, I stop there. And pray that Jesus would completely heal her. And, that is where I am again tonight. Praying for Jesus to completely heal Livi and get her home tomorrow! Love in Christ, janet s.
Oh Emily, I am truely at loss for words except to say the prayers continue unceasingly. You know my heart aches for the pain Livi is experiencing and yours seeing your precious little one hurting. I have been thinking a lot lately about the surgeries and hospital stays I had as a child. I can honestly say that those experiences left very little imprint on my memory. I remember recovery at home and pain leading up to each surgery and hospital stay but the actual being in the hospital is not in my memory bank. It's just not there. It may be so for Livi when she is home again and has all good new memories of childhood taking over. t That will be one of God's special mercies. Love to all, Marmie P.S. Love Livi's puffed sticker art work. I am displaying it prominently where I can see it all the time.
I am so sorry, Emily!
We will continue to ask the Lord for complete healing for your precious, little Livi.
We are praying with you and for you!
Rochelle Calvetti
Visiting here day by day. Nothing else to do but pray. What can I do or say? To comfort you from so far away. I have to count on Him to stay by Livi's side, every moment come what may.
Aunt Marcy
Dear Emily & James will are prying for you everyday. I,Lois,read your blog everyday and pray.
wow...it was hard to read all that and i can only imagine how u guys are feeling but please know that i am praying for you.
dear God, please give them the stregth to keep going in all this and too rely on u in this crazy and stressful time. i pray for alivia that she will be healed and that they will get to see her smile more. i pray for james and emily, that u give james the strength to get better and that u just be with emily and hold her and comfort her. thanks God.
hope tomorrow is better : )
made to worship,
rachael
I hope you know there are so many people out here who are praying and holding you in their hearts and yet who have no idea of what to say that would be the "right thing" - I am definitely one of them. I can't pretend to make sense of what you are all experiencing. Just want you to know that we wish you were not having to go through this and we pray for healing and peace for all of you. Praying for your strength and for refreshment from this aching weariness. God bless you -
Cathy S.
Oh, Emily!
You are SO brave! To say that you are "tired" has got to be the understatement of the century!
Like so many others, I'm at a loss for words but full of emotions and perservering prayer that you are granted a MIRACLE!
Dear Lord Jesus,
Please grant refreshment to Emily, James and their families. Please make Your strength known to them. Give them wisdom, comfort and focus for this trial. Please heal Your little lamb, Alivia. We know that You hear our prayers, Lord. Please move in a mighty way, we ask in Jesus' name.
Still praying!
Mary Ann K.
Dearest Emily,
We prayed for you in church corporatly today! I think of you often & we pray for you many times through out the day! God is molding you into a beautiful diamond shining for Jesus!!! Keep trusting, keep up your strong faith & keep praying. God is right next to you hearing your prayers, knowing your weariness & feeling your pain as you watch your baby go thru this trial day by day! He loves you sweetie. We are praying hard for blessings to come, for the sun to shine on these rainy days & for lots of rest & strength.
God bless you Emily,
Hannah Byers & Family
At times I am tempted to feel scripture is not helpful in facing the quicksand of this terrible disease. At times I am even tempted to charge the Lord God Almighty, but He died for all my sins...even those! And His word says: "For I AM the Lord your God, who takes hold of your right hand and says to ME, 'DO NOT FEAR; I WILL HELP YOU." iSAIAH 41.13 AMEN AMEN AMEN Lord grant us that promise in the face of this trial.
I'm praying for you and think about you guys a lot. God will use this trial for good and everything that happens should be for HIS glory.
Pamela bueche
Continuing to pray for you all often.
Carol M.
We aren't forgetting about you guys just because this is stretching on so long. We still pray for Alivia all the time and for strength for you guys. You are always in our thoughts and whispered prayers as we go about our normal stuff. We check the blog and are so glad when there's an update.
I have read some good news on your blog. Alivia survives! God answers prayer! All good news.
We're still with you. aunt cheryl
We are all praying for you here in Pittsburgh. Betsie
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