Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Tuesday, June 26, 2007

Day +108

Livi is so glad to have the pherisis cathedar out of her leg. She was sitting up within 15 mins of coming out of anesthesia. It has made such a huge difference to her mood too. She constantly wants to do stickers and is making jokes. It is so good for all of us to see her happy. I will get a photo later today because with the steriod taper she is starting to look more and more like Livi! Her eyes are clearer than they have been in months.

The CT showed NO blockage, no swelling and smaller lymph nodes... All really good things. there is fluid in the coils of her intestines which could be just from the slow motility, C-Dif or GVHD. So far the C-Dif tests are all negative and her stooling hasn't increased so we are hopeful it isn't GVHD (pray hard it isn't...another flair would be fatal) Her stomach appeared smaller than it should be and could be a result of all the anti-nausea meds she is on. So we are trying to cut them out and add feeds. This will mean more throwing up for a while but could help to kick her stomach into gear. She really needs healing in her stomach. She hasn't actually eaten anything in probably about 6 weeks. I can't imagine not using your belly for that long.

Livi has started to play possum when someone talks to her. She closes her eyes and sits there until they go away. She sometimes peeks out just a bit to make sure they are gone then gets right back to her day. It is so silly. We all love that she is playing and doing new things to make us laugh. She even did it to Pa when he got back from Indiana yesterday. It only lasted about 2 seconds with him though.

James is feeling better. He still isn't going into the room with her because her WBC's are so low from the chemo. Oh her RBC's came up a bit on their own. We were expecting a transfusion today but won't need it since her marrow is starting to make cells again. Also her WBC's are slightly increased.

All in all most of the news was good. We needed some good news. I am not getting overly excited because I"m always nervous of the next hurdle but I am so thankful that God gave us some good news right when we needed it.

We are also excited because our little friend Jackson comes back today. Not excited that he needs to come back but selfishly excited to see him again. He has 2 more rounds of chemo both of which are tough. Please include him in your prayers as the next few weeks go by. He is tough and has done a great job so far. We expect nothing less from this round.

Thanks to my Uncle Rob (Livi's GUR...Great Uncle Rob) for the stickers. She used all the fuzzy ones already. Love you

35 Comments:

Blogger Jude's Mom said...

This is AWESOME! WOW!

The pretend sleeping is cracking me up! Livi! You're funny!

Give the girl a squeeze from me and the Judester!

Love ya!
Julie

11:04 AM  
Blogger Steph B. said...

Glad to hear the good news. Still praying.

I am tickeled at her little game, :) so cute.


Steph

11:11 AM  
Blogger pashoff said...

We are so thankful for the news!

Where would we be without the mercy of God?

Continuing in prayer,
Pat

11:13 AM  
Blogger beth said...

Love hearing good news!!! Praying for more of it...

Beth

11:29 AM  
Anonymous Anonymous said...

Ahhh!
This good news is like refreshment on this hot day! To see your sweetie playing again AND making up new games must lift your heart!
Thank you, Emily, for your keeping us up to date!
Thank You, Lord, for your grace and mercy towards Livi! Please open the floodgates and send her more and more!

Still Praying!

Mary Ann K.

11:43 AM  
Blogger Bueche said...

I' m with Mary Ann. I just came in for a break from mowing. As I read this post I completely forgot about my wet shirt and burning skin (although that obviously didn't last long seein' how I just mentioned it).

Good news won't cause us to relent in our prayers, it only increases our faith for more.

12:03 PM  
Blogger Jack and Gina Plain said...

Thanks for the wonderful way that you describe Livi's antics. We're so relieved to hear that she is feeling more like herself. And for taking time to update us so faithfully. It really helps us be able to pray more specifically. Love, The Plains

12:06 PM  
Anonymous Anonymous said...

Dearest Emily
Thank you for sharing your great news
We pray for continued healing.
GOD LOVE YOU
Phyllis

1:26 PM  
Anonymous tina said...

i'm loving this good news! keep it coming! that livi is amazing. such a sweet & resilient girl! thank you Lord! xoxo

1:29 PM  
Anonymous Anonymous said...

Great news!! I'm so glad to hear that things are looking up. There's got to be more to come--it is so deserved!

Natalie M

1:36 PM  
Blogger Briana Almengor said...

It is so good to read this. I am so glad she is playing again and making y'all smile! What great news. We will continue to pray. Judah prayed today, "God please heal Livi's body; give her mercy. Thank you for Livi. Amen." No way that didn't melt the heart of God so much more than it did mine.

love you much, friend.

1:47 PM  
Blogger momofcolin_chloe said...

Thank you! Thank you! Thank you! YIPEE! Praying for Jackson as well!

Christi

1:50 PM  
Blogger Sara said...

Emily,
Thank you for updating us with the news. Will continue to pray for even better news to come...

Sara

2:53 PM  
Anonymous Monica C. said...

What a tremendous answer to prayer! I am so thankful that Livi was feeling better and also that her good mood gave the adult a MUCH needed and deserved boost to your spirits! Thank you, God! I am always praying for - and believing in - Alivia's healing!

3:00 PM  
Anonymous Anonymous said...

whoopie!! Best news in a awhile.

It is always double the pleasure when the joke/giggle comes from a child not feeling well. And that is funny!!
NO GVHD!!
Diana B.

4:35 PM  
Anonymous Anonymous said...

Praise God! We continue to pray for you guys. ~Mike & Destiny Bell

5:05 PM  
Anonymous Anonymous said...

So good to hear good things... We will keep praying!!

Rochelle Calvetti

5:12 PM  
Anonymous Anonymous said...

Praising Him for the good news. Praying He continues to move in your family - with healing and strength!

Praise the Lord!
Holly W

6:25 PM  
Anonymous Anonymous said...

Rejoicing with you at the good news. Praying for the other concerns.
Love,
Yoders

7:20 PM  
Anonymous Anonymous said...

Thank goodness for good news! Livi sounds so cute. I am glad to hear that she is having a happy day! I'll continue to pray for contine good days ahead.

Betsie

7:53 PM  
Anonymous A Canadian Friend said...

What a blessing to hear good news:) We pray that this continues and Livi can get some well deserved rest and happiness!

8:01 PM  
Anonymous Viv said...

So glad she's more herself and that her numbers are good! Can't wait to see pictures!
love,
Viv

9:05 PM  
Anonymous Anonymous said...

Emily,

It was great to read the good news. Praise be to God!

Thanks for continuing to share with us all Alivia is going through. We are steadfast in our prayers for the healing that we know our Awesome God is able to do.

Pauline

10:04 PM  
Anonymous Anonymous said...

Tears of joy! Praise God! I was concerned when God prompted me to check the blog, but now I am so glad He did!! Praying that the miracles will continue! Praising God for what He's done and trusting Him for more. Glad that Alivia will have a friend to play with; praying for Jackson's chemo! - Sue F.

11:11 PM  
Anonymous Anonymous said...

We are so excited with your news...what a blessing, but that won't stop us from ever pounding on heaven's gate for you and your precious one.
God bless and hold you all,
Love
The Burns

1:36 AM  
Anonymous Anonymous said...

My heart gave a little flutter to hear that Livi is joking around. Thank you for the updates. Still praying for Alivia.

Peggy

10:59 AM  
Blogger vandernecks said...

We are so happy that you had some good news and that Livi is feeeling better and well enough to play games and act silly and make you all laugh with her. We pray she can begin to eat and feel better each day, and you all are continuong to be full of God's faith and strength and grace. God bless you all. We are praying for God to heal Livi quickly! Love, The Vandernecks

11:27 AM  
Anonymous Anonymous said...

So very thankful for good news! Will be anxious to hear of more!
Praying,
Maryann Plesnicher

2:52 PM  
Anonymous Anonymous said...

We are so thrilled to hear this news!! We are praying that it is just the beginning of more good news.

Thanks be to God!!!

Aunt Anne

3:01 PM  
Anonymous Anonymous said...

Thank God! Just when the night seemed so dark, He sent you hope. I pray this new trend continues.
Linda Nance

3:23 PM  
Anonymous Anonymous said...

Yeah!! I was rejoicing with you as I read all of the good reports. Praying that there won't be any more hurdles.

Love,
Amy

3:41 PM  
Blogger Brandon, Amy & Gary Wilhoite said...

So glad you have a break from the catheter, and a smile on Livi's face. God certainly knows when we've reached our limit on what we can handle. So thankful for His mercies!

6:13 PM  
Anonymous Anonymous said...

Thanks, Emily, for your wonderful descriptions of life with Livi and just for sharing every little thing. It blesses me beyond words. Thank God for little joys. You will never take such things for granted ever again.
Love you guys,
Aunt Marcy

11:05 PM  
Anonymous Anonymous said...

Em,

I am SO happy to hear that you and your family are having a better day. Still praying...

Love Shannon

12:37 AM  
Anonymous jamie said...

Emily-
Thankful for the good news and an a happy Aliviia. Praying for healing and strength. love you-jamie

7:04 AM  

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