Day +108

Livi is so glad to have the pherisis cathedar out of her leg. She was sitting up within 15 mins of coming out of anesthesia. It has made such a huge difference to her mood too. She constantly wants to do stickers and is making jokes. It is so good for all of us to see her happy. I will get a photo later today because with the steriod taper she is starting to look more and more like Livi! Her eyes are clearer than they have been in months.

The CT showed NO blockage, no swelling and smaller lymph nodes... All really good things. there is fluid in the coils of her intestines which could be just from the slow motility, C-Dif or GVHD. So far the C-Dif tests are all negative and her stooling hasn't increased so we are hopeful it isn't GVHD (pray hard it isn't...another flair would be fatal) Her stomach appeared smaller than it should be and could be a result of all the anti-nausea meds she is on. So we are trying to cut them out and add feeds. This will mean more throwing up for a while but could help to kick her stomach into gear. She really needs healing in her stomach. She hasn't actually eaten anything in probably about 6 weeks. I can't imagine not using your belly for that long.

Livi has started to play possum when someone talks to her. She closes her eyes and sits there until they go away. She sometimes peeks out just a bit to make sure they are gone then gets right back to her day. It is so silly. We all love that she is playing and doing new things to make us laugh. She even did it to Pa when he got back from Indiana yesterday. It only lasted about 2 seconds with him though.

James is feeling better. He still isn't going into the room with her because her WBC's are so low from the chemo. Oh her RBC's came up a bit on their own. We were expecting a transfusion today but won't need it since her marrow is starting to make cells again. Also her WBC's are slightly increased.

All in all most of the news was good. We needed some good news. I am not getting overly excited because I"m always nervous of the next hurdle but I am so thankful that God gave us some good news right when we needed it.

We are also excited because our little friend Jackson comes back today. Not excited that he needs to come back but selfishly excited to see him again. He has 2 more rounds of chemo both of which are tough. Please include him in your prayers as the next few weeks go by. He is tough and has done a great job so far. We expect nothing less from this round.

Thanks to my Uncle Rob (Livi's GUR...Great Uncle Rob) for the stickers. She used all the fuzzy ones already. Love you