Sum up

Today has been a faith building day from beginning to end. I think we all needed a day like today. it started with her sitting up when I came to see her first thing, to getting all the tubes (except the central line) taken off, to giving her a bottle, to getting a new room when we hated the first room, to talking to the doctor. Yea he had almost good news. Not a definetly but they are 2 steps closer to ruling out the worst kind (JMML). They did two more tests that made us one step closer to ruling it out. Not completely out yet but still, we'll take anything at this point. the rushed a blood sample off to the University of Alabama and the University of California were the lead doctors on JMML are located. They will run one more test and if that is negative then it will be ruled out completely. We also ruled out CML pretty completely. All preliminary tests came back negative for CML. So we are down to the rarest ones on the list. And they are back to testing for parasites again. they said it was off the list but now its back.....who knows. We would be so happy to rule out JMML completely but that test takes a few weeks. Regardless God has been so gracious and kind to us today. We are overwhelmed (in a good way). We serve a powerful, merciful God...I may have to come back and read this post when the chemo starts. But I pray I will be able to continue to trust in Him.

Our only low note was that Livi's white blood cell count went back up to 120 today. We came to the hospital at almost 200 and got down quickly to 71. But today it started to go up again. It would be wonderful if it would come down again. the higher it gets the closer we get to forisis (spelling). So pray that it stays the same or even better comes down. The needle that they would have to use for forisis is much bigger than the needle that her body could handle so it would be really bad. and she would probably have to be intubated again. Not what we want. If you are praying that is a huge request. And the test results are another.

All of your words build us up so much. James is sitting at the computer beside me reading all the posts from the last few days. He thanks you all too.

Here are some more thanks for the day... Dinner was great Ang thanks! We all were in such a good mood too that we all ate the most we've eaten in days. It will surely give us extra strength for the days to come. Thanks for visiting Ang, Dwayne and Tina, Anya, Bill and Cynthia, William, Jeremy Landis, Caleb Lewis, Andy and Sonya, Jess, Bev, and Amy K. thanks for the mags, HAND LOTION!!! and cookies (Jess), the daily verses (Bev), the flip-flops (Anya) and the basket of goodies, book and puzzle (everyone has gotten a good laugh from the sound a guinea pig) (Amy)

Another huge blessing we are slowly learning about is called the 4 diamond fund. If Livi is diagnosed with leukemia then it kicks in instantly without us applying or anything. It will pay for all medical bills that insurance doesn't cover, it gives us meal vouchers, gas cards and phone cards. We got our first phone card today. We just feel like we are in the best place possible for us. What a blessing to have this hospital so close to home.