Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Thursday, June 01, 2006

Frustrated

I am trying to remain positive. We had our doc visit today and Alivia's WBC count was up to 200 AGAIN!! So the chemo hasn't started to work yet. GRRRRRR. I want instant results (thats impatience if your wondering). Also her blast (the bad white cells that are big and sticky and make your blood thick and cause all kinds of problems) percentage is up and so now we have to up the dose of chemo and also get her blood checked 2 times a week. Poor baby. I hate getting her blood checked. At least the one check is going to be in Lancaster so it won't be a whole day affair. We can just run up the street to the hospital (less than 5 min away)and have it done Monday mornings. If the blast percentage continues to rise then we will have to do florisis (I can't spell so thats phonetic). That is when they place a needle in the groin area and take out her blood, filter it and put it back. We would be back in the ICU if that happens. Also if that happens they will put in a port (the access to a vein that stays in for a year). That will change our lives pretty drasticly. I will have to learn to take care of it and she will have to learn to sleep on her back. It is good because they always have a way to get blood or give meds but it opens up a whole new way to get infections. Very scary to me.


Oh and we found out why she had a fever and was so fussy. She has a molar. It is poking through the skin. No wonder she was such a crab. I didn't even think to look for molars. She only has 4 teeth in the front and now this one. Very weird. I have to give the pediatrician a call and see if that is something we need to worry about. Another thing for the "list".

A good friend asked us to a birthday party for her daughter and I went to check my calendar and realized I have nothing planned for the entire summer. If you know me you know this is very unlike me. I am social by nature. I love hanging out and having parties. But it is currently impossible to plan anything. We never know from week to week where we'll be. That is something I really look forward to when this is all over. I am going to throw the biggest party ever and invite everyone and celebrate that my girl is well. That is my dream, that is my goal, that is my daily prayer.

Thankfully Alivia did really well today. She even let the doctor listen to her heart without screaming. She has let others listen but never the doctor. Usually the second he walkes through the door she starts to scream. She also let them take her blood pressure, her pulse oxygen (98% thats an A+) and take her weight (I understand why this one makes her cry...no women wants her weight taken). Still cried when she got measured and when the doctor looked in her mouth and ears and felt her lymph nodes. But there were definetly improvements. She is starting to learn what actually hurts and what is just scary. What a big girl.

Thanks for today
...Cynthia for going with us and keeping us company
...everyone who is praying

Prayer requests
...lowered WBC count
...continued good reaction to chemo (we are going to try one day without the anti-nausea meds to see if she can do without it.)
...lowered blasts
...good sleep now that the tooth is in.


Just heard back from the pediatrician...he said that this is a normal variation on for the teeth. Woo-Hoo something normal.

19 Comments:

Anonymous Anonymous said...

Livi is such a trouper! (much like her mother) Glad to hear that she did so well today.
Your idea for a huge party when livi is better is great! We will be there! (even if it's a Sat. night =))
Love you all!
-Ang

4:48 PM  
Anonymous Anonymous said...

I am thinking about you every day, and right now I am praying that you all get some good, solid sleep.
Margot Cole

4:54 PM  
Anonymous Anonymous said...

I definitely want to be at that "all better" party. Sorry that you had some unsettling news today. We will pray that this chemo gets figured out and that the scary stuff doesn't have to happen. And, if it does, I am sure you will pull through like the trooper you have been all along, knowing that your Savior is walking beside you and holding you up during this crazy time!
We love you and are praying!
Love, Les and the Yoder fam

5:10 PM  
Blogger Tori said...

Emily, whether you are walking on hills or in the valleys, our Lord is the same. He is constant in the midst of our rollar coaster circumstances. The tighter we cling to Him the less we will feel the ups and downs. Instead we will experience His steady grace, care, and love for us. You are in my prayers as you continue to bring glory to our Savior for your faithful walk through this trial. He brings hope to the hopeless.

5:22 PM  
Anonymous Anonymous said...

Okay, so I had expectations of today's doctor visits...just didn't realize it. But after crying through my phone call with Emily...SHE encouraged me. We hate for Livi to have to be poked and prodded anymore...God please show Dr. P. what meds to use and bring relief! Oh, by the way, Livi gives no indication (e.g. cuteness or mood) or being sick. I am thankful. Gigi

5:26 PM  
Blogger Tori said...

This comment has been removed by a blog administrator.

5:26 PM  
Blogger beth said...

thinking of you all and praying for you... Psalm 30 is so encouraging... I pray the Lord uses it to encourage you too...

[2]"O Lord my God, I cried to you for help,
and you have healed me."

[5]"...Weeping may tarry for the night,
but joy comes with the morning."

[11]"You have turned for me my mourning into dancing;"

7:01 PM  
Blogger Sara Rankin said...

Emily,

Hey there. Thanks for keeping us updated on Alivia's treatment. I'm sorry that yesterday was not as expected. To encourage you, I am going to place an excerpt of a post I wrote yesterday on my own blog
http://www.stanknrankn.blogspot.com/

------------
Hannah's last book, "The God of All Comfort" ends with the chapter titled "God is Enough." Nancy shares three passages that were really amazing and full of truth. They make me want to put the book on my wishlist. Here they are:

1. "No soul can be really at rest until it has given up all dependence on everything else and has been forced to depend on the Lord alone. As long as our expectation is from other things, nothing but disappointment awaits us."

2. "Feelings may change and will change with our changing circumstances. Promises may seem to fail. Everything that we have believed in or depended upon may seem to be swept away, and only God is left. Just God. Simply and only God."

And finally,
3. "Nothing can separate you from God's love. God is enough for time. God is enough for eternity. God is enough."

Nancy ends sharing about Hannah's story with this challenging question:
"The question is: "Do we really believe that [God is enough] or do we believe that we need God plus something or someone else, that we need God plus a bigger house; we need God plus children who are walking with God; we need God plus a husband; we need God plus a husband who is a spiritual leader?" Hannah Whitall Smith, having experienced so many disappointments from an earthly point of view, came to the conclusion that God is enough."

May you experience that God IS enough through this time.

Love,
Sara

8:59 AM  
Anonymous Anonymous said...

When you have that party, I'll clear my schedule and fly up there. I'm ready! I love parties too, especially family/"Family" get togethers. So much love.
Aunt Marcy

10:07 AM  
Anonymous Anonymous said...

Josh's teeth came in like that too. When he was about a year old, I saw molars in his mouth when he laughed. Aunt Cheryl

12:12 PM  
Anonymous Anonymous said...

i am thinking and praying for you. i pray that her WBC goes down. rest on the Lord.

Trust in the Lord with all your heart, lean not on your own understanding. In all your ways acknowledage Him, and he will make your paths straight. Be not wise in your own eyes; fear the Lord, and turn away from evil.

Proverbs 3:5-7

12:25 PM  
Anonymous Anonymous said...

PS. that last comment was mine. forgot to put my name :-D

Christi Boronow

12:26 PM  
Anonymous Anonymous said...

The same thing happened with Benjamin's teeth- suprise molars, and i was puttiing Oragel in the wrong spot! still praying for you- amanda kim

12:47 PM  
Anonymous Anonymous said...

I am praying for you emily, and james and livi. keep on trusting God.

love ya guys,
moriah

2:14 PM  
Anonymous Anonymous said...

Well, if it makes you feel better. Aks is teething too. And, I thought that I was "on top of it" mom and had the orajel on his 2 incoming incisors. Well, he has been such a grump and today while he was having a screaming fit, I noticed two more popping through on the bottom. Man, those teeth are sneaky!!!
Love, Les

2:48 PM  
Anonymous Anonymous said...

sneaky teeth...........hmmmmmm .. don't recall that with my three, but, yes, I suppose...
Aunt Marcy

9:51 PM  
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