Frustrated

I am trying to remain positive. We had our doc visit today and Alivia's WBC count was up to 200 AGAIN!! So the chemo hasn't started to work yet. GRRRRRR. I want instant results (thats impatience if your wondering). Also her blast (the bad white cells that are big and sticky and make your blood thick and cause all kinds of problems) percentage is up and so now we have to up the dose of chemo and also get her blood checked 2 times a week. Poor baby. I hate getting her blood checked. At least the one check is going to be in Lancaster so it won't be a whole day affair. We can just run up the street to the hospital (less than 5 min away)and have it done Monday mornings. If the blast percentage continues to rise then we will have to do florisis (I can't spell so thats phonetic). That is when they place a needle in the groin area and take out her blood, filter it and put it back. We would be back in the ICU if that happens. Also if that happens they will put in a port (the access to a vein that stays in for a year). That will change our lives pretty drasticly. I will have to learn to take care of it and she will have to learn to sleep on her back. It is good because they always have a way to get blood or give meds but it opens up a whole new way to get infections. Very scary to me.


Oh and we found out why she had a fever and was so fussy. She has a molar. It is poking through the skin. No wonder she was such a crab. I didn't even think to look for molars. She only has 4 teeth in the front and now this one. Very weird. I have to give the pediatrician a call and see if that is something we need to worry about. Another thing for the "list".

A good friend asked us to a birthday party for her daughter and I went to check my calendar and realized I have nothing planned for the entire summer. If you know me you know this is very unlike me. I am social by nature. I love hanging out and having parties. But it is currently impossible to plan anything. We never know from week to week where we'll be. That is something I really look forward to when this is all over. I am going to throw the biggest party ever and invite everyone and celebrate that my girl is well. That is my dream, that is my goal, that is my daily prayer.

Thankfully Alivia did really well today. She even let the doctor listen to her heart without screaming. She has let others listen but never the doctor. Usually the second he walkes through the door she starts to scream. She also let them take her blood pressure, her pulse oxygen (98% thats an A+) and take her weight (I understand why this one makes her cry...no women wants her weight taken). Still cried when she got measured and when the doctor looked in her mouth and ears and felt her lymph nodes. But there were definetly improvements. She is starting to learn what actually hurts and what is just scary. What a big girl.

Thanks for today
...Cynthia for going with us and keeping us company
...everyone who is praying

Prayer requests
...lowered WBC count
...continued good reaction to chemo (we are going to try one day without the anti-nausea meds to see if she can do without it.)
...lowered blasts
...good sleep now that the tooth is in.


Just heard back from the pediatrician...he said that this is a normal variation on for the teeth. Woo-Hoo something normal.