I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Friday night...I think
Once again I have lost all track of time and days. It was after 3 when we had lunch and after 7:30 when we had dinner. Alivia did really well the rest of the day. No more throw up so that was a relief. They really think that it was the steriod that made her sick. We won't be taking it anymore. They say that the steriod can make you have crazy mood swings and we saw a glimpse of that today. She had some moments when she was really really really mad/upset and just couldn't be consoled and there was no reason that we could see (ie things that hurt). But the rest of the day she was chatty kathy..babbling a mile a minute and laughing at everything. She found a new game that she loves...she pulls up(with some help since she can only use one arm cause of the IV which they have wrapped in about 20 layers of gauze to keep her from picking at it...we call it the club) then quickly sits back down. She thinks this is a blast. Gets a little tiring for mommy (who is the only one she wants to help her stand right now) but it makes her so happy and it makes the time go by so we give in.
Pray for...
...sleep (as always)
...no throw up tomorrow (that will mean it was the steriod and not the chemo!)
...a good CBC tomorrow (didn't do one today..but if tomorrows goes well we probably will go home Sunday)
...continued good mood for the girl.
thanks for today...
cookies and other goodies from Kathy Booker (Superwomen) and a great visit with you and the kiddo's (Livi loves seeing kids!)
Panera gift card and Big Bird from James and Pauline Williams (food other than cafeteria food will be such a treat)
Lyndon and Jamie Sentz and Cynthia for the visits tonight. We love seeing friendly faces.
till tomorrow
posted by Alivia's Momma @ 10:22 PM
9 Comments:
I'm praying ya'll get home asap, and that Livi will do well with the chemo.
Do they have something called a "bootie" to wrap around her IV? We had one for Judah's IV and it helped significantly to keep him from picking at it. You gotta love the gauze and tape. Another little tip: see if they have something called, "Uni-solve"; it's like an alcohol swab, but it has some special solution in it that helps get the sticky off their skin from all the tape and monitor tabs.
Judah threw up himself today: twice, and I can't seem to get the smell out of my hand. Yuckers.
Praying both our babies do not puke again!
Really hope we can see you soon.
Will pray for a good night's rest for you all!
Love you much.
All in all a good day...the first day of Livi's chemo for "atypical myloproliferative disorder"...but she has been in a great mood, as long as Mom is close at hand, and when Livi is happy we all are happy. Bri, we continue on similar paths, puke and all. Saw Jen today, (?), yesterday (?) and she thought all was well. So it was GREAT to read your blog. Good to see friends/family here today...where is home anyway? God is good to bring faithful encouragers to us. Love, Gigi....
My heart goes out to both Livi and Judah and their mommas & daddies tonight. When your beautiful babies are old enough to fully understand what has happened, they'll look back and be amazed at the families they were born into and how much their moms cared for them and how much their dads quietly worried for them.
Stay strong and know that there are lots of people praying and thinking of you tonight and always. Love you!
Sleep well tonite. Glad that Livi seems to be tolerating things well.
I am off to bed myself. Still praying and praying!!!
Love, Les
so i need to get a sitter or a larger version of the baby bjorn...way too many interesting wires and buttons around for xander- thanks for extending patience! it was great seeing you all - especially since we enjoyed livi's sweet side of the mood swing. i will be praying for those moments when she's swinging the other direction too...that His grace will be evident and you will feel His presence. "As for me, it is good to be near God. I have made the Sovereign Lord my refuge; I will tell of all your deeds."
Ps. 73:23-24
sleep tight on that big old comfy feather bed (it's all in your head). muchas love, kb
Emily,
You don't remember me, I'm Sherman and Elaine Good's daughter Jennifer. I've been following your story and your sweet Alivia's day to day. You and your munchkin are in my prayers. God is awesome, as you know, and oh so faithful.
Hope you all are sleeping tonight.
Blessings,
Jennifer
i am praying for little livi. i hope you all had a good night sleep last night. look to God when you feel down. thank you for you example to me, it is nice to have someone else to look up to. you are a great mom/wife.
Have a wonderful day!
Christi Boronow
Dear Emily and Gigi, Reading Rachel's comment about Livi learning about God's hand on her life when she is older reminded me of my sister Monica's story.When she was about 7 our family was attending a horse show where a horse was spooked and ran into the stands.She and my brother were taken to a hospital for treatment of their injuries.When they xrayed Monica they detected a brain tumor at the base of her scull.She ended up spending the next 3 months in a children's hospital in another city.My mother moved there, lived with her mother-in-law and got a job in a drug store to make ends meet. She had a very serious condition with a fairly hopeless prognosis (they didn't have the treatments we have now)
She is now a 54 year old woman with a large scar on the back of her head that her pretty blond hair covers.What is worth noteing is that she has lived her life with a remarkable sense of God's mercy on and purpose for her life.
She frequently expresses her conviction that God brought about the events that revealed her life threatening condition and in His mercy spared that life.It has always given her the assurance of His love and mercy.(one that is very personal and tender)Every little scar that now marks Livi's once perfect skin will someday be a reminder to her of God's good providence.Love, Mary Murphy
emily-
praying for you this morning and that the chemo stays down and that it starts to shrink that spline of hers. again i am praying that you will have grace for each hour of this day! Countinue to see God's hand in the details of the day because he is at work. praying too for the mood swings .
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