The Report

Here is our tale to tell today. The numbers came down. Not enough to rule out Vincristine forever but enough to rule it out for today. Her WBC are at 90.4. Since the numbers did come down the doc felt it would be okay to wait till she got the port before they gave it to her. The Vincristine is dangerous and must be put into a really good IV otherwise it will burn the skin. With a port there is no chance it will burn the skin. So Monday morning we will go into the office and get an IV put in and get her CBC done. Mainly to check her platelettes but also to check the WBC. If her platelettes are low (which they were today) then she will have a transfusion before surgery. And if here WBC have gone down more they won't give Vincristine. But it they aren't down enough then they will give the Vincristine once she is out of surgery and has her port in. It only takes 5 min to give the Vincristine.

Pray....
...her WBC come down even more and there is no need for Vincristine
...the surgery is scheduled late morning so she won't have to go too long without eating. (just another hard thing for her)
...the surgery goes really well
...that she is healed

Thanks to...
...my parents for going with me and putting up with me being snappy all day
...Cynthia for cleaning my house while we were gone...so nice to come home to a clean house
...The kids of Crossway for the super cute poster. I love it and Livi will too (when she wakes up from her nap)
...the nurses at HMC for being amazing. I am newly blessed by you each and every time I come for a visit. You go above and beyond to treat Livi like a princess and try to keep her happy even through all the hard things. This experience would be even worse if it weren't for you. Thanks so so so much.


by the way if you want to write a thank you note to a nurse that would be great. We mainly deal with Holly, Joann, Lois, Cindy, Denise and Pam. These ladies deal with really sick kids all day, everyday and they do it with huge smiles and sweet words. I dont' know if there is anyway to thank them for the work they do. But it you would like to write one or all of them a letter please send them to me and I will deliver them. Thanks. (our address is 2768 Lititz Pike, Lancaster, PA 17601)

By the way I dropped of the designated donor permission sheet today so go ahead and donate those of you who gave me your name and birthday. Know that in order for her to use it you have to donate 4 days before she needs it. Thanks so much for making this huge sacrifice.