Phewy

Today was not what I expected at all....It was worse. I had told James I knew the WBC's would be up and I thought she might need a RBC tranfusion. I was right on both. I said as long as they stay below 100 I'll be okay...Well they went to 103.....grrr. And no idea why.

We arrived at clinic, gave the nurses their Christmas present and got accessed. Only the port didn't want to give blood. This has happened before. Sometimes its just positional and all we need to do is get her to look up or lay down or move her arm. But nothing was working this time. So they put in TPA (drain-0 for the port) to de-gunk the tubes. Sometimes it works right away or in our case it took 2 hours. So we went to lunch (nice to see you C, K, X and B) and went back to clinic. Finally it worked and the blood went to clinic. It was after 1 by this time. We did whatever we could to keep a sleepy Livi entertained and then got into an exam room to see the Doc. Still our counts weren't back from the lab. Finally they came back and we found out all of them were bad.
WBC's 103 (they were 24 last week)
RBC 7.7 (our doc wants them above 8)
platelet's 27 (57 last week)
By this time though it was too late for a tranfusion so we have to go back tomorrow for both. That is 4 hours of tranfusion. But at least we know what to expect and can wear our comfy clothes. Not the Christmas present we wanted. We finally got home around 4:30

I am tempted to think why couldn't we have a Christmas miracle. But then I realize we already have it...we aren't in the hospital for Christmas. How easily I forget that we were supposed to spend the holiday's in the hospital. So I'm choosing to be thankful instead of sad. And anyway if I start crying now I may never stop.

We had our family Christmas with James' side of the family. It was very nice (we were late since we got home so late). Dinner was great (thanks Cynthia) and we had fun giving gifts and watching Alivia open hers. She is so deliberate. Ever last bit of paper has to be off the package and then she can look at the present. So funny. We also took another, more organized family photo. I'm excited to see how they turn out.

I need to go to bed. My eyes are getting blurry and we have another long day tomorrow.

Please pray that Alivia's spleen doesn't get bigger. It already has a bit and the spleenectamy is definetly back on the table. Pray that the tranfusion gets the counts back up. Pray that the Gleevac starts to work again. Pray that she is healed. Pray a special blessing on the nurses and our Doc. They take such good care of us.