Day +10
I get to fall asleep tonight in a beautifully decorated room. My dad and I went streamer and paint crazy after Livi fell asleep so she will wake to her first birthday suprise. I'm excited for her to see it.
Her blood pressure was much improved today. Not perfect but no where near the high numbers of yesterday. I'm so thankful. She had a pretty good day...rough moments but overall pretty good. The meds are being controlled a better and so her sleep is more peaceful and her nausea doesn't seem to be an issue. She has mucusitous but it seems to be staying the same (not getting worse). Her bottom is still raw but no worse.
I only took one photo today. Guess I just forgot. But here it is...Miss Alivia taking a bath. She wears this visor to keep the soap out of her eye and she wears Glad Press and Seal over her broviac to keep it dry. The tub is really small but perfect for her. She gets to be unhooked from all her tubes for that little bit each day and it is nice to see her without them.
I got all the info for those who want to be designated donors for Alivia. If you are A+ you can donate platelets and O+ you can donate red blood cells. I need your name as it appears on your drivers license and date of birth to get you signed up to be a designated donor. You can either donate at the Donor Center (670 Cherry Drive, Hershey) no appointment necassary, Monday through Friday 8-4 or at the Hospital Blood Bank (by appointment only...call 531-8232) Weds 5-7:45 or Sunday 8-3:45. You have to be on the list before you donate in order for Alivia to use it. If you just want to donate for the credit (any blood type other than A+ or O+) then go to your local donor center (not sure what to do outside PA but you could try) and say that you want the credit to go to Alivia Haughery at Hershey Medical Center.
We got a ton of cards today. It was fun for everyone reading them.
Thanks to....
The Camps
Matt, Viv, Nicholas and Hannah (cute photos...I think Hannah looks like you, Viv, when she smiles)
The Walsh's (loved the family photo)
The Kisic's (cute dog and it was great getting to show my in-laws who you were)
Aunt Marcy (loved the photo reenactment...you are the best)
The Rice's
Great Aunt Lisa (the famous GAL...call me about a visit)
Yoders (T-minus 2 days...)
Kathy McVicker (the toys were a huge hit. We raced the penguins)
The Plesnichers
Dick and Barbara White (loved the family photo)
Marmie
Marge Lageman
Max and Laura Mohney
Grace and Samual (Livi laughed outloud when she saw the picture of you guys. She misses you like crazy. We hung one of the pics in her bed and each time she sees it she laughs. Giant Hugs from Mimi and Livi)
Jessica Bennett (I can't believe you bought the table for Livi...it is so sweet and exactly what I wanted. Thank you so much!)
The Wallworks (Alivia played the song in the book over and over and when she saw the picture of Erin she said "ern ( her version of Erin))
Dan and Deb VanHorn (Livi liked the cows)
Stella (you have gotten so much bigger since you were at our house)
Bill and Cynthia for the Tinker Bell toy. Livi really liked it (as you saw)
Scott and Ang- Loved seeing you tonight. Livi is going to love playing with the play dough toy. and the Dora candle was such a great idea (I was wondering what I would do for a candle) Love you guys.
We are saving all the packages to open tomorrow so it feels more birthday-ish. I will take lots of photos tomorrow and try to get a picture of the photo wall which has grown a whole lot.
55 Comments:
I'm up after the middle of the night feeding and ran down to grab a peek at the latest update. Glad to hear the day was better for you all and with so many packages/cards to open! What a great idea to put streamers all over the room for Livi to wake up to.
Praying she has a fantastic birthday, filled with lots of smiles and laughter for everyone.
love you much, friend.
Hi everyone! Happy Birthday dear sweet Livi!!! Hope it's a wonderful peaceful day!! Wish we could all be there! Let us know if there's anything you need. Huge hugs and kisses for all of you especially the Birthday Girl! We love You, The Pete's
Glad yesterday went better. And, we just have one thing to say: HAPPY BIRTHDAY LIVI!!!!
Love, The Yoders
Adding another to the many HAPPY BIRTHDAY greetings you are sure to receive today. So glad that yesterday was a better one. The decorations sound great - super idea! God bless -
Cathy S.
HAPPY BIRTHDAY, LIVI!!! May God bless this special day and carry you all through the weeks ahead!
Happy Birthday Alivia! I hope you have a wonderful day filled with family and fun!
Natalie Murdick
Happy Birthday Alivia! Glad to hear it was a better day yesterday. I wish I could see her reaction to her decorated room. Looking forward to seeing you tomorrow.
Miss you,
April
Happy Birthday Livi!! Hope you guys have a good day today!
Happy, Happy Second Birthday Sweet Alivia! You are so loved by so many! Some who have never even had the privilege of meeting you!!! We are all celebrating as you turn 2 today!!
The kids were just sitting on my lap looking at the picture of Alivia in the tub. They couldnt figure out why their Dad was giving Alivia a bath. Guess your Dad and Vic have the same arm hair! They just sang Happy Birthday to her picture.
Talk soon,
April
Happy Birthday Livi~
Have a wonderful day celebrating together.
Love
Audrey
Praise God that today was better. I will keep you in my prayers. And HAPPY 2nd Birthday precious, adorable, livi!!!
love ya,
moriah
HAPPY HAPPY BIRTHDAY LIVI!! Hope your day is full of fun and laughter!
KAT
Guys,
Have a blast of a birthday celebration today!!!! Great idea with all the decorations.
In responsse to your thoughts of yesterday..I hear the anguish in your words. None of us, if in your shoes would be able to endure without (probably many)moments like you've had.
You are being forced to re-define "normal" for your family. You are having to endure what most people who've lived longer than yourselves have had to suffer. We read this morning (James, Jonathan and I) about Elijah. When there was no rain that caused a drought and famine, Elijah asked a poor women to give him something to eat. She only had enough flour and oil for one more meal for her and her son. She trusted the words of God's prophet and gave the little that she had and God supernaturally supplied her need. The jar of flour and jug of oil did not run out after that. God can do that for you and your family. The flour represents the bread of life (Jesus) and the oil represents the Holy Spirit.
Emily, you are giving others such a gift by recording your story in your blog. So many others have walked where you are walking but few (outsiders) know what it is really like. Someday your words will be able to comfort others. I personally am looking for a co-author for your future book.
Lots of love,
Aunt Anne
(PS Any troubles or inconveniences that I may encounter today I will offer up as a prayer for all of you.
HAPPY BIRTHDAY, LIVI!
That tub picture with the visor is just the cutest!!!
Who'da thunk a Glad Press and Seal could be used for a medical purpose? I think you should write the company and get free Glad products for life! And the Glad company would get a GREAT BIG bonus seeing the world's sweetest 2 year old modeling their product!
God bless all you guys today!
Still praying!
Mary Ann K.
Happy Birthday Livi!!!
So glad to hear that yesterday went better and hope that today is a blast.
We have a gift for Livi when she comes home and a little surprise Cynthia might bring today.
with love,
aunt Viv
HAPPY BIRTHDAY ---
BLESSINGS TO YOU ALIVIA !!!!!!!!!!!!!!!!
~HAPPY BIRTHDAY ALIVIA~
We're praying hard for you!!
Love,
John and Maryann Plesnicher
Happy Birthday to the most precious and special little girl who is two years old. She is a blessing beyond belief to all who love her. The pictures continue to fill my heart with joy as it is so hard to be so far away. Would see you all to the point of nusiance if close enough. Emily, you go girl! You are the best mommy ever. So much love from your Marmie.
Me singing,
Happy Birthday to You,
Happy Birthday to You,
Happy Birthday dear Livi (you lil monkey)
Happy Birthday to YOU!
I'm A+. I'll call ya.
Luv, GAL
Hey guys, I hope you have a tremendous day today enjoying the gift of Alivia's life! I hope she has a very happy birthday!
Though it's nearly impossible to go what you are going through, its evident that God is helping you make the most of it, playing, decorating, loving... I bet the nurses love taking care of Livi and getting to know you, who wouldn't?
Psalm 138:7-8
Though I walk in the midst of trouble, you preserve my life;
you stretch out your hand against the wrath of my enemies, and your right hand delivers me.
The Lord will fulfill his purpose for me; your steadfast love, O Lord, endures forever.
Do not forsake the work of your hands.
Happy Birthday, sweet little Livi!!! Praying your special day is full of happiness and fun! You are simply precious!
Love,
Julie D.
Happy Birthday sweet & precious Alivia!!!
C.J. Frederick
Happy Birthday, Alivia! How many two year old girls have as many friends as you do?! NOT MANY!!!
Happy Birthday Livi, we are praying for you everyday!! Love, the walkers
Happy Birthday Alivia !!
from way down yonder (near) the Chattahoochi
Aunt Marcy
Alivia-
We want to wish you a
very
HAPPY BIRTHDAY!!
emily- i remember coming to the hospital after church to see alivia and you and james the new proud parents. the love that you had for her before she was born was amazing to me and your excitment to be a mother was evident. your love for her has increased beyond measure as you care for her. my mom always stated that childrens birthdays are more a celebration for the parents than for the kids as the mom's were the ones who have labored and care for the children each year that passes. i know alivia will look back and see how you made her 2 birthday memorable for her! love you and praying for healing-jamie
Happy Birthday Livi! Hope your day is showered with many blessings.
Emily... glad yesterday was a better day. Praying for a great birthday celebration with no adverse issues today.
Happy 2nd Birthday Alivia!! Tons of happy thoughts, well wishes and prayers coming your way!
Jessica
Happy Birthday, Alivia!!!
Glad yesterday was a better day and that today, her birthday, will be such a blessing for you!
Julie
HAPPY BIRTHDAY precious Livi! We love you.
I just caught up on the past few days. I know you are all so weary. I hope the mucositis is easier on her -- one thing that may help is "magic mouthwash." They gave it to me after transplant. It contains milk of magnesia, lydocaine, and possibly a few other ingredients and can be soothing. Lydocaine doesn't hold very long for me, but since she's little it may help. (Now of course I don't know if it's an option because she's little...our transplants have been almost identical as far as meds go, but I'm certainly no doctor.) I can't say the stuff tastes that great, but it's o.k. to swallow, so you wouldn't have to worry about that. I also found that sometimes just "sucking" on a warm, wet rag helped a little. I couldn't have morphine and the dilautid didn't help much.
Praying for you all the time. I have come to appreciate all the sacrifices my caregivers made to be by my side 24/7. You're doing an amazing job. Thank you for continuing to share your story with us.
Happy Birthday Livi! We hope you have a fun day & enjoy your pretty room that mommy & grandpa decorated for you!
Prayers & Blessings,
Brandi & family
Thinking of you all, and wishing Alivia a Happy Birthday!!!
Happy Birthday Livi! We're so glad that you were born.
Uncle Matt
HAPPY BIRTHDAY Livi,
Hope our birthday box arrives on time.
God Bless You
The Mikes
HAPPY BIRTHDAY TO YOU!
HAPPY BIRTHDAY TO YOU!
HAPPY BIRTHDAY SWEET LIVI!
HAPPY BIRTHDAY TO YOU!!!!!!
AND MANY MORE!!
HUGS AND PRAYERS,
CHRIS TROUTMAN
Happy Birthday TO Precious ALIVIA--
MANY HAPPY CALMING
Moments TO ALL OF YOU ..
PM
You know what, I'm gonna party like its your birthday! Happy Birthday!!!
Heidi
Thinking of you all on this special day. Happy Birthday sweet Princess!
Happy birthday Livi!
love,
Cousin Sarah
Happy Birth Day Livi!
I was looking at your pictures below and you are still in-style with your swoopy bangs!
Sending you birthday hugs and kisses!
Love, Erin
Happy Birthday Livi!!!
Christi
HAPPY HAPPY BIRTHDAY Alivia!!! Sounds like your mama has made it a FANTASTIC day!! I pray that you have had a good (low pain, side effects) day sweet girl!!
Here's to many, many, many more birthdays for you!!! :)
(Emily, I am THRILLED to be able to donate at the Med Center. The name on my driver's license is Victoria E. Moore and my bday is 9-1-70. I don't know if you are reading these and get this info - I hope so. I will go on Sunday to donate. Please let me know, if you can, if there's anything else I need to do - vemoore@comcast.net.)
Prayers and hugs for you all,
Vicki Moore
Happy Birthday, Livi!
HAPPY BIRTHDAY ALIVIA!!!! We are all praying for you. You are a strong and amazing little girl! Hope you had a fun day and we will all see you soon.
Mike,Leigh and Katie Dowgiewicz
We wish you the happiest Birthday ever! What a joyous day to all be together. Our neighbors are Jim and Jean McClemets and they have kept us updated on all the progress, Little Alivia has made. We will continue our prayers for your family, as we know what cancer does to a family.
Always,
Shaun, Melissa, Tyler, Anthony, Emily, Lillian Walker in CO
Happy Birthday Livi!!!!! We hope that you have a terrific day.
Love, Chris, Heather and Cameron
Happy Birthday Little Livi. You Are So Cute. My School And I Pray Everyday That God will Bless You With Many, Many More Birthdays To Come.
LOVE
Pamela Bueche and Lancaster Christian School!!!!!!
hi emily! I'm finally coming out of the stone age and using the internet:) i have been asking everyone how things have been going so jason got you blog info from james so i could find out for myself. this site is amazing. i had no idea you could keep so many people connected. it helps to get it out and have the support from family and friends. everyone at daymaker has been sending their thoughts and prayers out to livi. now i can keep them updated more closely. i don't know why it took me so long to get on this computer it is easier then i thought but now i can drop in on you every couple of days. i miss you and livi. jason and i are praying for a quick recovery. love darcy and jason ps HAPPY NUMBER 2 LIVI!!!!!!
Happy Birthday, Alivia!!! Thank you for sharing your last year with us. We know there can be no "terrible twos" because your "ones" have earned you a freebie! Can we get "Toddler Livi" bracelets now to honor the big girl? May this truly be the best year ever. Love, The Angels
Dearest Livi,
Happy Birthday to you
Happy Birthday to you
Happy Birthday dear LIVI
Happy Birthday to yoooouuuu!!!!
We hope you have had a fantastic day celebrating your birthday with your sweet Mommy & Daddy & all your extended family! WOW you have so many friends & family who love you so much, but most importantly JESUS loves you too, baby! God created this day just for you to celebrate your second birthday & this day is so VERY special! Your Mommy & Daddy will never forget all the special memories you have given to them over the last 2 years! From your first cry when you were born to your first tear, your first smile, your first bath, your first giggle, your first attempt to crawl, your first word, your first tooth to your first steps you took! You give your Mommy & Daddy kisses & hugs & thank them so much for how much they love you & take care of you all day every day! Your Daddy works hard at his job to provide you the very best care at Hershey as your Mommy doesn't leave your side! She is a super Mom in my eyes & I know when you grow up you will see how much they both have done for you & how much they love you! Jesus chose you to have very SPECIAL parent's & grandparent's! My daughter, Tirzah & I prayed for you today & she kept saying Happy Day Livi, Happy Day!!! May you have a very Happy 2nd Birthday today on March 20th!!! God bless you baby!Remember live each day to it's fullest! Everyday is a great blessing given to us as a gift!
Love,
Hannah, Scott, Tirzah, & Naomi Byers
Happy Birthday to you,
Happy Birthday to YOU,
Happy BIRTHDAY DEAR LIVI,
HAPPY BIRTHDAY TO yoooooooooooooooooooooooooooooou!!!
Happy 2nd Birthday Livi! We are praying for all of you every day. Livi is such a source of inspiration. We just love her, and hope to have the privilege of meeting her one day! God bless.
Love,
Karen & Joe
happy birthday livi!
i've opened the last 2 things my mom picked up for you (not that i needed the dora bracelet myself, i just like opening things...and the bead bracelet was edible so i had to open that one) anyhow, we have been thinking about you and praying for you throughout the day! happy 2nd!!!
love, xan
Happy Birthday Livi!
So glad to hear your birthday day went well!
Praying for more birthdays to celebrate!
Sara
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