Day +9

Livi woke up with just bangs and some fuzz today. Here face is also starting to get a little puffy from all the steriods she is on. She is looking more and more like a kid with leukemia. Today had its ups and downs. We were quite a few times last night. Not unusual for us but when we were up it was hard to console her. I realized she is definetly starting to feel so pain. She threw up a few times when she first woke up and there was some blood in it. They gave her a platelet transfusion to help with the bleeding. Otherwise, she had a good morning with Pa and so I got to catch up on some much needed sleep. Then when we were brushing her teeth the nurse looked in her mouth and noticed some mouth sores. So after some consultation with the docs and nurses we started to give her a bit of morphine every 2 hours to help her out. It seems to make her feel better...so much so that after she gets it she is incredible hyper. It was funny but also a bit nerve racking because she was crawling, rolling, jumping and moving all over her bed with no regard to all the tubes hooked up to her. On of the biggest concerns is that she might hurt her broviac by pulling it out or tearing the tube. These things would be horrible because they can't realy fix it right now since she can't leave the room. Instead she would have to have a central line or get stuck all the time. Neither of which we want to do. Everything seemed to make it harder to rest for her today. She fought sleep more than usual. I'm hopeing tomorrow is easier Thankfully the mucusitous isn't horrible. Please pray it doesn't get any worse. Her bottom is the same. It still looks pretty raw but it hasn't gotten worse. Pray that this continues
On other blogs of older bone marrow transplant patients they have mentioned tingling in their hands and tonight she wanted to wash her hands in cold water over and over and I wonder if that is why...or it could have been a stall tactic to delay sleep. Again she was saying new things today...our favorite from today was when she was standing in her crib looking at a screw in the wall. She pointed to it and said "hole" and then "da". After asking some questions we realized she wanted Daddy to fix the "hole". Almost as soon as he got her she started to say "hole" and point to the screws. James put stickers over all of them and she felt much better.

Here are two photos from today
Gigi trying to get Livi to sleep...obviously someone was fighting sleep. Oh and watching TV.

During one of the many hyper times. She is way to cute.


Thanks to whoever dropped off the gift certificate to Hershey Pantry. We are excited to try it out. All the nurses were raving about the food when we said we had a gift certificate.

I wanted to let people know that if they want to they can donate blood in honor of Alivia. As of the the transplant her perfect donor for platelets has changed. It is now A+. I'm not sure I understand why but I will talk to the doc about it to find out. Even if you are not A+ (for platelets) or O+ (for red blood cells) if you are in Pennsylvania you can donate and say it is for Alivia Haughery at Hershey Medical Center and we will get a credit so we don't have to pay for it. If you want to be a donor for her specifically you have to be donate in Hershey and I have to fill out forms that make you a designated donor. Please consider donating as there are tons of people who need it and the credit will help Alivia. And thanks to Uncle John who goes every 2 months even though he doesn't like needles. Thanks for loving Livi so much.