I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +110
I really need to stop getting excited by "good" days. Seems like there is always something harder around the corner. Livi has been getting feeds the last few days to try to get stomach to work. Instead it was just making her throwup over and over. SO they stopped them. Her stomach may be parallized by the one chemo drug (should go away with time) or some other med is causing the problems. Regardless she will be getting an NJ tube. Her NG tube will be removed and a new tube that completely passes her stomach and goes to the top of the intestines will be placed. She will have to be under anesthesia for it because they will need to us some machine to watch and make sure the placement is right.
Also her IGM and EBV levels have started to rise again which means this is most definelty a full blown lymphoma. Or doc will be researching the correct chemo to take care of it. This is the beginning of yet another battle we didn't want to face. Lymphoma is a hard cancer to fight.
posted by Alivia's Momma @ 12:57 PM
39 Comments:
Oh, Emily!!! How much more?!? Praying still! I will not stop. Thanks for taking the time to update us.
Hang in there, Livi!!!! You are such a strong baby! You can do this!
Christi
I'm so sorry Emily. I will continue to pray for Alivia's complete healing. You are all so loved.
Maryann Plesnicher
The Plains will keep on praying. Gina
God is bigger than Lymphoma. Praying, praying, praying for encouraging news. God is faithful. Praying that the dr. will have wisdom divine for Alivia!! Trusting that you will continue to feel God's presence and see His Hand on this horrible journey! - Sue F.
UP and Down, up and down. I can only imagine how difficult it is to stay steady emotionally with the constant change of Livi's status. Praying by God's supernatural power that not only Livi will be healed completely but also God will keep you all steadfast in Him, assured of His love even in these dark places.
love you much, friend
Your plight reminds me of the ride I took on the Exterminator at Kennywood last week. It whips you mercilessly up and down and round and round. Fortunately, at the end I walked out giddily dizzy and chuckling out loud. That's the outcome I pray for Livi once she's off this lymphoma ride. Hold on tight, Livi!
Luv ya all, GAL
I really like Sue's words - God is bigger than Lymphoma. She's right! Livi can beat this. I wonder how many more speed bumps this baby will have to endure before her recovery. Praying for her miracle every day!!! Thank you for updating us. I check all the time. I pray for the day that you can get
Keep holding His hand Emily - He will bring her and you through it!
Vicki Moore
Praying for Alivia's healing and praying for God to strenghten your heart.
Carol M.
I don't even know what to say. I am so sorry for this bad news. Know that we are always praying. And, if ever I forget during a mealtime prayer or bedtime prayer, Eden always reminds me...."Don't forget Livi!" She even reminded her grandparents while we were gone.
We love and miss you!
Yoders
I have been following your blog for some time now but haven't posted a comment. My name is Lanie and I attend a Sovereign Grace church in NC. I just wanted to let you know that my momma heart is hurting for you and I have been praying and will continue to pray for Livi and you all.
Emily,
I'm thinking and praying so hard for you, James and Livi. Gracious, girl--- you are so strong to be handling all of this so beautifully. I wish there was something I could do.
Love you,
Steph C.
Dear Emily, My prayers will join all those who are going to the Father for His healing. May He give you His peace in the midst of all of this. Thank you for taking the time to write.
Love,
Susan
Sending you a warm and sincere cyber-hug, and wishing I could do more. The best thing I can do - or that anyone can do - is continue to pray for, and believe in, Livi's complete healing on earth. I BELIEVE. And I also believe that all of our prayers will be heard and answered. God bless you guys,
always praying and praying,
love you so so much,
beth
Emily my prayers and thoughts are with you each moment of the day, always. Praying harder for Livi, you and James as well as the rest of your family. Stay strong, you and your Livi are loved so much.
Dearest Emily
Baby Alivia is in our hearts and everyday we pray.
We want you to know you are being thought about more than you know..
God Bless You
Praying for comfort and healing
Phyllis
I am so sorry to hear this Emily. You continue to pray and pray for good things to happen and they will. Livi has the best parents, family and friends to get her through this. She is a tough little girl and you have to keep reminding yourself that. I think of you constantly and hope and pray for only good things to come. Take care! Love you guys!
Heather L.
"I really need to stop getting excited by "good" days." your right you shouldn't get too excited over good days but think of how encouraging they are and what hope they bring even if the "good" day only lasts alittle while it is still helpful...I am praying that soon it would be normal for Alivia to always be having "good" days and that she would be healed of lymphoma continue being a little tropper Livi you really are soo strong I can't begin imagine going through all this but God is faithful and he will guide you through this trying time
My dear Emily, This was not the news we wanted to get. It just means we keep praying with fervor and continuously. Love and more love from Marmie
Don't lose heart, Haugherys. You are great heros for Alivia.
We are all behind you in thought and prayer.
Emily,
I'm not sure about all of the details of what lymphoma is. But I do know the One who does. I know our Creator's desire is for our bodies to be whole. I know His desire is for us to "prosper and not be harmed." Jer. 29:11
I will continue to cry out to Him on your precious baby's behalf. I pray that even in the valley you will not grow weary. I pray that He will strenghten Livi, you, and James. I pray that Livi will be healed and made whole.
Rejoice in your good days. There you are encouraged and built up. And remain in God's word. There is so much comfort there. Rest in the Lord, and Trust that His plan is for good. (I'm sure it's easier for me to write that than to walk it out - I'm sorry for that - but I do beleive God will heal Alivia.)
Continuing to pray!
Holly W
I wish I could give you a big hug...I am so sorry to hear that Alivia has lymphoma. You and James are so strong, in so many ways; I am sure you will handle this with grace...just like everything else...you are AMAZING!!!
Always praying for you.
Neysa
Emily,
Thank you for continuing to post and keep us updated, even during these difficult times. Someone previously likened this to a roller-coaster ride. On a coaster we hang on tightly, but sometimes let go, because the seatbelt and straps hold us safely and securely in the seat. In that same way, God is hanging on to you and holding you tightly, keeping you close, and He won't let go. May you feel His arms enfold you today. I continue to pray expectantly for God's healing. ~~Kathy S.
James and Emily, just wanted to let you know our thoughts and prayers are with you and Livi. May you know the Lord's nearness continually.
Kathy and Gary Teaman
Oh Lord WHY???? My heart breaks for all of you and cannot help but wonder Why? I am praying for you all and will continue to ask for the miracle we know is in His power.
"In Christ alone my hope is found;
He is my light, my strength, my song;
This cornerstone, this solid ground,
Firm through the fiercest drought and storm."
praying for you guys
Brooklyn asked if she could start praying out loud like Gabe at meals. Her language isn't always clear, so I wasn't sure how she would do. She says "Baby Livi sick. Jackson sick. Amen" So many people praying...
God can heal her lymphoma...we pray it His will.
Stay strong in Him.
Emily,
Thank you for the kind comment about BJ's or CostCo. Yes I wish too for a trip to CostCo for you!
I continue to pray for God to heal Alivia...
I'm also praying that Emily, you'll be able to trust in God and his goodness even though everything around you seems contrary. We don't understand how all these things can work out for Alivia to be completely healed, but we trust you Lord.
I pray that you would "put the use of ordinary means and a trust in God into proper perspective (and) look to trust to God to use the means He has provided." Trusting in God by Jerry Bridges, pg. 202. God has provided EVERYTHING and will continue to do so with Alivia, you and James. No detail is too small and nothing is too hard for God to accomplish.
We love you guys!
Hey I just noticed the counter at the bottom of the blog is close to 100,000.
You guys are loved!
So sorry you are having such a roller coaster ride. Doesn't seem fair. Have you read the book 90 Minutes in Heaven? It's a great and inspiring book that reminds us of God's miracles.
As saddened as I am by the news, all I can say is that I will not give up asking the Lord for a miracle, nor lose heart or grow discouraged. Jesus Christ is the same yesterday, today and tomorrow. He healed then, He heals now. Praying for Livi's healing! Love, Janet S. and friends
Emily,
God loves you so much. Don't be afraid on the good days.
Alicia Joy LeBlanc
Praying and praying for you. Wisdom for the DR's, peace, patience and strength for you and your family and blessed healing for that precious baby of yours.
thank you for updating this site, many in the Reading church have you daily in their prayers.
~d. madison
Hi Guys,
Just wanted to say I am think, praying for and missing you all. For some reason I had a really strange dream about Celebration last night, but you all (James, Emily, Livi, Dave and Gretchen) were there. I wish I was there at the hospital with you though, and that Livi gets better.
Love, Erin
God heals lymphomas!
Still praying!
Mary Ann K.
Dear Emily, James, Alivia, and Family,
We continue to pray for you daily. Hold onto the Lord. He has all of this is His hands. We rejoice in the strength and faith the Lord has given to you all and in the witness that you give to all who read these updates.
Jean R.
I'm checking on you daily and sending down prayers from the north. Please don't stop being excited about the good days...they'll get you through this. I will pray hard for more good days to give you optimism, faith and hope.
Praying for you today Livi ... that Jesus heals you completely from EVERYTHING! Love, Janet S.
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