I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Day +117
Livi is currently being put on a ventilator in the PICU. Today her breathing just got worse and worse. It isn't a lung thing but instead because her liver is huge and pressing on her lungs. Also her throat is constricted.
She will be on for anywhere from 1 to 2 weeks. They said we will know within the first week whether or not she is going to make it. She will get chemo and rituxin and we will continue to cut her immune suppression. If it is going to take care of the lymphoma we will know shortly. Otherwise she will not make it.
posted by Alivia's Momma @ 10:09 PM
81 Comments:
Praying fervently for each of you. Maureen
Emily-
Thank you for sharing with all of us even when the facts are sobering...Scott & I are still hanging on tightly to prayers for a miracle for your precious daughter...As God has recently reminded us of His power in "impossible situations"---He has strengthened our faith & with that faith we are praying for Livi.
Luv you so so very much.
Sincerely~ Scott & Ang
You all are in our thoughts and prayers. May God comfort you and give you strength.
We love you,
The Scherf's
Praying for you!! I can't imagine!! I am praying for comfort and strength and I am also praying for peace!! Keep Looking to the Lord.
Steph from WV
(Psalms 27:13-14 NKJV) I would have lost heart, unless I had believed That I would see the goodness of the LORD In the land of the living. {14} Wait on the LORD; Be of good courage, And He shall strengthen your heart; Wait, I say, on the LORD!
i dont know what to say...please dont give up hope that things could turn around, miracles happen every day. my prayer is that god carries you through these tough times and that you will find peace in your heart whatever the outcome may be. bless little alivia, she doesnt deserve this. donna
Emily and family,
As many others, I sit here and have no clue what to type. What can I say to you to comfort you when you are walking this terrible valley? As a mom my heart goes out to you. Thank you for sharing to deeply with all of us. God has brought you, James and Alivia to mind many times. I am praying that the great Comforter will offer you the comfort that He can give. I am beliving in a miracle and praying for one from the Great Physician. Alivia surely is the cutest girl around! - Sue F.
Thanks for taking the time to update us on Alivia. We are praying for you all...
Love,
The Angel's
Just looking at Little Livi's beautiful and hilarious pictures and praying for her all the time. Also for you Emily, and James, and Pa & Gigi et al.
Love you guys very much!
-andrew
Emily - I am amazed by your strength. The news is not easy for you to post and yet you still take the time to update us. Thank you!! You are all on my mind constantly and I am always checking for updates. I will continue to pray with all of my heart because I truly believe a miracle can still happen. Please continue to have hope - SO many people are praying for your precious little girl!!!
My heart and my prayers go out to you...
Vicki Moore
oh LORD, we cry out for your mercy and healing........
laura m.
Praying you find hope and rest in our God and that Alivia is healed. Gary & Patti
Remember my affliction and my wanderings, the wormwood and the gall!
My soul continually remembers it and is bowed down within me.
But this I call to mind, and therefore I have hope:
The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is Your faithfulness.
The Lord is my portion," says my soul, "therefore I will hope in Him."
Lamentations 3:19-24
None us ever know what God is going to allow in our lives. But what we do know is that God is with us through ALL things. I'm praying for God's comfort and peace to be upon Alivia and you and James and your families. I do believe in miracles and am praying for one.
peace to you
Carol M.
You are all in my thoughts and prayers throughout each day. May you feel God's love as never before.
C.J. Frederick
Oh, I don't even know what to say. We are praying and praying. Livi is always on our hearts and minds. Praying for God's miraculous touch. Praying for peace. Praying.....
Yoders
Continuing to pray. - Jenn Grover, Pittsburgh
Petey and Lisa just left here. We feel the need to be together as we wish we could be there with you. We do know, Emily and James, that you have wonderful support ther from "Pa" and "Gigi" and all the Haugherys. We just hope that you keep feeling the love and prayers from your Pittsburgh family and Rob who is keeping contact and sending love for sweet Alivia. God bless you for your caring in posting updates for the many who are so concerned about Livi and you. Love you all more than words can say. Forever love from your Marmie
Emily - You are a strong mom to a brave little girl. We pray for you every day... for strength and for peace. Hug each other tightly. We await good news :o)
Much love,
Lynda, Isabel and Evie
Praying for you so much
You are all heavy on our hearts; we are praying, praying, praying.
Drew, Sandy, and Jeremiah Kimmel
Psalm 34
17 When the righteous cry for help, the Lord hears and delivers them out of all their troubles. 18 The Lord is near to the brokenhearted and saves the crushed in spirit. 19 Many are the afflictions of the righteous,but the Lord delivers him out of them all. 20 He keeps all his bones; not one of them is broken. 21 Affliction will slay the wicked,and those who hate the righteous will be condemned. 22 The Lord redeems the life of his servants; none of those who take refuge in him will be condemned.
James,Emily,Livi
You haven't left our thoughts and prayers.
Diana B.
Praying...praying...praying.....
Mike and Sue Minich
I can't imagine the pain you must feel...seems to much for anyone to handle! Please know that even though I don't know you, your husband, or
Alivia you all are heavy on my mind and heart...know that as these hours go by you are on all of our minds and hearts!
Praying in Abingdon, Maryland...
Amazing grace...
Praying from our farmhouse in Lancaster County...
Lord thank you for constantly holding little Livi's hand and heart.
Praying in Mount Joy.
Kristen E.
The Plains are praying. We know God holds Alivia in His hands. We are praying for her, for you and James, and your dear parents on both sides.
I just don't understand all of this...is the cancer getting worse or are most of her problems coming from the treatments at this point? I'm trying to figure out where everything started to unravel and it's so hard to understand, I know it is for you as well.
If you have a moment to give us a brief breakdown of what went wrong, I'm sure many of us would appreciate it.
Emily and James,
It is rare that I am at a loss for words -- this is one of those times. I just pray for little Livi and you guys and Dave and Gretchen and all of the Haugherys. It is truly never too late for a miracle. God bless you guys.
Love
Uncle Mike
it takes humility to invite others into your life.. and you have done so. thank you so much.
...i havent seen livi in a while. im sure shes still beautiful.
it occured to me today. it doesnt do any good to pray for something that i somewhat doubt will ever even happen.. it takes faith.
therefore, i dont just pray out of habit, as is easy to do... but i am saying to god with each and every word "i trust you are able heal this little girl.. and i trust that you will do your will and glory WILL be brought to your HOLY name." He is worthy of the glory that HE will receive, regardless of how he chooses to work that out in our lives....
love you guys. even though i hardly know you. its not hard to do. linda
It's a very sober moment. I know there have been so many.
I prayed along with the Minichs tonight for your strength, comfort and peace and for Alivia's healing.
We are thinking of and praying for your family every day. God bless.
The Duffees
Dearest James, Emily & Alivia,
We are praying very hard tonight. I know I will be awake often tonight praying for you 3! Praying for peace, grace, wisdom & trust in Christ, He is the ultimate healer! My heart is so heavy for you! I just can't even wrap my mind around Alivia's health conditions & what each of you are going thru!
Lord Jesus, please I pray give grace & mercy, patience & peace to James, Emily & most of all dear baby Livi! Lord please help Alivia to be at peace as she struggles to take in each breath tonight! Help James, Emily & Alivia to not be afraid or to be overwhelmed, but to please fill them with overwhelming peace! Clear their minds of any worries, because what better place is there then to be in the arms of YOU Lord! PLEASE God give them a miracle, help Alivia's lungs to take in air easily! So many of us take for granted each breath we take & don't think twice about it! Lord as I am breathing this very moment I thank you & praise you for the ability to be breathing. Lord help us all thru the Haughery's trials to become more thankful & grateful for the health we have, the roof over our heads & for the freedom to enjoy the beautiful outdoors whenever we want because we aren't stuck in a hospital room. Thank you for strengthening our faith thru Alivia's illness. This sweet 2 year old is really growing so many peoples faith in you! I know & trust that you Jesus are watching over Alivia & holding her baby little hands & that alone gives me peace. Give each of the Haughery's & their extended families rest tonight! In Jesus name I pray, Amen.
God bless you 3!! Love,
Hannah Byers, Scott, Tirzah & Naomi too.
james and emily, im praying.
RW
As we continue to pray, Jesus is also interceding for each one of you.
Romans 8:34,35
Dear Lord,
Be with the Haughery family tonight. Cup dear sweet Livi in your huge and powerful hands. Care for her, Lord Jesus, and for her mom and dad, as only you can do. May James, Emily, and little Livi feel your peace, your presence, your hope, your joy, your kindness, your compassion, and your love in new and amazing ways tonight. Strengthen and uphold them Father.
Praying from Colorado
This is Emmie in Central Texas, grandmother of 13. Found you through Pray for Ian. I am praying for you and your dear family. When your heart is overwhelmed, go to the Rock who is higher than you. He is our shelter.
Emily, James and Alivia,
My heart aches for you. The words you wrote tonight were difficult for me to read. I can't imagine how difficult they were to write.
You have fought long and hard these past several months and you have sought out the advice of all the medical experts. But we know that Livi's life rests in the hands of the Lord Jesus. He hears your prayers, He sees your tears and He feels your pain.....and he knows how much Livi has already endured. She's a fighter. And you all have such courage and faith! I cry out to God tonight to please provide the miracle we have all been praying for..... to restore Alivia to perfect health....so she can be a living testimony of his great love, mercy, grace and power. May God be with you and give you peace during this difficult time.
Claudia Curry
Lord, we cry our for your hand of mercy to heal Livi!
I am so sorry you have not been getting the news you want to hear. Our God is an awesome God and He still does miracles. I am praying hard for one for Alivia. I'm so sorry for the pain this is causing you and James. Keep the faith.
Emily and James,
Thank you for allowing us to see into your lives...we have all truely fallen in love with your daughter. Your child has captured the hearts of so many...and she is heavy on my heart tonight.
For each person who posts a comment, there are many many more who are reading and praying. May our prayers be heard lound and clear in Heaven tonight.
With love,
krissy evans
Jesus,
Just as you sent your angel to save the three in the fiery furnace, without even the smell of smoke on their clothes when they came out, will you please bring out little Alivia? She's small and weak Lord, and you love to show your strength in our weaknesses. Show her the tenderness of your healing touch, and bring her out of this condition. As with everything, we need you to work, for we cannot do it on our own. Please demonstrate your mercy to James and Emily in this way, Jesus, and help us all to humbly seek you for them.
What a difficult time this is for you, James, and Livi. We cannot understand what God has in store at this time for you or even in the moments to come, but God will not abandon you. We don't know what tomorrow will bring, but we do know the One who holds tomorrow.
With love and much prayer,
Norm and Pat Burns
Indiana, PA
Such terrible news...we are praying for a miracle.
Love,
Neysa & Nathan
Praying for you, praying for strength and healing...
Praying
Jesus, heal Livi.
Janet S.
Emily and James,
Praying so hard for you all.Please Lord heal Alivia. We love you guys so much,
Victor and April
Tracy and I are both praying for Livi and Mom and Dad. We love you all and put our trust in God.
I am praying! I am lost for words, but I am praying.
Praying...
Amy
Friends,
Read about your trial this morning. My heart and prayers go out to you. "I must cast my cares upon the Lord. I call to God and the Lord saves me. He ransomes me unharmed. I will cast my cares on the Lord and He will sustain me. He will never let the righteous fall. I will trust in the Lord."
In His Holy and Precious Son's name Jesus Christ I offer this prayer. Amen.
The Sweigarts are praying.
I'm praying for you all Emily!
- Nicole
Praying for a miracle - that our God is very capable of performing. Praying that God will wrap His arms around each of you and give you peace.
Praying, praying, praying.
Buddy, Teresa & Nicole Baker
Oh how my heart aches for all of you. You have all been so brave and Livi has been such a fighter. Hoping beyond words that Livi will be able to overcome this.
Ann P.
Praying all through the night for all of you and for safe travel for all the family.
The Wallworks
we don't know each other but i've been following this blog for a long time. please know that i'm praying, praying, praying.
We are praying for a miracle.
Ed and Susan
We prayed for sweet Livi and all of you last night as a family, praying here this morning also. Lotinskys
emily, i am at a loss for words. know that i am praying today. asking God for miracles and to be your comfort. much love.
This morning I read Psalm 139:13,16: "You formed my inward parts; you knitted me together in my mother's womb. Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there were none of them."
I thought and prayed for Alivia and you all, then I read this update. My prayers and tears join with yours. God is so glorified through your lives. May His comfort and peace overwhelm you as you cling to Him. And, yes, we plead for precious LIvi's healing.
Slept very restlessly last night thinking of you all. Each time I woke up, Alivia was first on my heart. I kept asking God to demonstrate His power by healing her in every way. Also praying for Jesus to comfort and come very near to you & James. We won't stop praying for you all.
much love, L&K McKelvy
We have not stopped praying for your family.
The Hevesy's
Abingdon
Emily,
I don't know what to say.
Stay strong--we are praying for Alivia.
Tracie & Family
We don't know each other, but I have fallen in love with your daughter through the last several months of following your blog. I carry her on my heart and pray for God Almighty to heal her just as He is able to. And I pray for you, Emily and James - that God would protect you as you walk through this darkest valley. May the love that surrounds you sustain you.
James and Emily,
Please know this, many are praying for you all. This morning at our Friday morning prayer meeting we spent most of the time praying for livi and the 2 of you. We care deeply for you all and want nothing more than to see livi restored to good health. God cares more for you all than anyone else. His love abounds to the highest heights and the lowest low. His steadfast love endures forever and his mercies are new each day. May God give you strength this day as you walk in the midst of uncertainty. We love you and are praying for you.
-The Weaver Family
Praying!
Nicole in Massachusetts
Oh, God!
We are weak and we don't know what to do! But Your Word tells us:
"Likewise the Spirit helps us in our weakness. For we do not know what to pray for as we ought, but the Spirit himself intercedes for us with groanings too deep for words."
(Romans 8:26)
Holy Spirit, intercede for us!
Dear Lord, please heal Alivia!
Praying!
Mary Ann K.
Emily, James and family, Still praying here in Uniontown PA. Once again another storm to praise him in.
Have not I commanded you? Be strong & courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go. Joshua 1:9
You are all in our hearts.
In him, Mindi Breakiron and family
We feel the burden of your suffering, and continue on praying for you 3 and your families. May you feel God's arms upholding you today.
We love you,
The Stoltzfus'
Thank you for letting us know what is happening. I continue to keep all of you in my prayers. May you especially feel God's healing presence during this time of need.
Cathy S.
Praying with all that is in me,
Maryann Plesnicher
Praying without ceasing.
Vicki G.
two scriptures came to me through the night as I was praying for Livi.
Joshua 1:9 - "Be strong and courageous, do not be terrified, do not be discouraged. For the Lord, your God, is with you, where ever you go."
Isaiah 41:10 - "Do not fear, for I am with you. do not be dismayed for I am your god. I will strengthen you and help you. I will uphold you with my righteous right hand."
Praying for peace in this storm. Praying for a miracle. Praying for strength. Praying for God's will to be revealed. Praying for no more hurt. Praying against fear.
Praying for healing for Livi. God please do this for Your Glory!
Holly W
Dayton, PA
We will continue to ask the Lord to stretch out His healing hand to little Livi. May you know His peace today and rest in His unfailing love.
The Kings -SCGIndiana
Emily,
Thanks for sharing this post even though it might not have been one that you would have want to have written.
Lord, we trust you, and we are thankful for the doctors and the treatment Livi is receiving at Hershey. Though Lord, we need you to bring a miracle and heal Livi. We know Lord that NOTHING IS IMPOSSIBLE for you. You sent your Son to die for your enemies' sins and bring them to Your presence where they could not come before. That is the greatest miracle and we are thankful for that! And we know that if you did the greatest thing for us, then you can heal Livi. Please heal her Lord. Please bring the miracle many of us are waiting for. We wait for you Lord. We wait and we trust.
praying...
My heart just breaks and cries out for you. I cannot type without sobbing. The other night I was going through a trial & woke up in the middle of the night. I knew God was calling me out to pray and as I was praying this song came into my head:
I'm giving you my heart,
and all that is within
I lay it all down
for the sake of you my King
I'm giving you my dreams,
I'm laying down my rights
I'm giving up my pride
for the promise of new life
And I surrender all to you, all to you
And I surrender all to you, all to you
I'm singing You this song,
I'm waiting at the cross
And all the world holds dear,
I count it all as loss
For the sake of knowing You
for the glory of Your name
To know the lasting joy,
even sharing in Your pain
****
My heart broke even more when I realized I DIDN'T want to surrender everything to Jesus. I wanted this little part to hold onto. I was scared to give it up b/c of the fear that something else would creep in. We trust in a mighty, sovereign God. He is bigger than everything and will tend to all our needs. Your trial is much bigger than mine, yet my prayer for you is the same - to trust and rest in our God who is bigger than all the pain. Love you so very much & we are constantly praying for Livi. I cannot go even a moment without her coming to mind.
hi this is bella i know you wouldn't expect this from me but i do read your blog i also just wanted to let your family know that you have and always will be in my prayers
Bella Miranda
Still praying to our good and loving, wise and powerful Father - John Q, Bethel Park, PA
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