I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Another day
I woke up to the most beautiful sound this morning. My little girl cooing to herself in her crib. She was laughing and screaming (happy screams) and being her cute self. I walk in her room to see her giant smile and silly belly wiggle that she does when she's excited and even better to find no new rash (thank you Lord!!!!)I told my dad she looks like she got ahold of some self tanner and just put it it spots all over her body. Its no longer red and doesn't seem itchy either. (Thank you again Lord!!). She is taking her naps like normal, cruising around and laughing at everything. All in all a great day. We stayed home, did laundry washed the kitchen floor and just had a fun time playing.
Yesterday was hard but today is a little breather. I am blessed to have this tiny window of "normal". Today she is the closest to how she was before our first big hospital stay. I know there are hard times ahead and that we aren't at the end of this journey. I am just so thankful for today...for no new developments and a day just to breath and have fun. Even in the midst of all of this there is great joy.
posted by Alivia's Momma @ 4:27 PM
16 Comments:
Emily-God's grace in your life is AMAZING!! You are such an example to me of rejoicing in the midst of trial! Thank you! I love you! -Ang
oh, this post made my day emily!!! the Lord answered my prayers!!! yippeeeee! xoxo tina
I feel that I saw Emily today because your dad has hung a big bunch of (very adorable) pictures of her in the guidance suite at school! So great that you had a happy day - such a blessing!
Cathy S.
You know I meant to say "Alivia." Where is my head??
Cathy S.
hey emily,
just wanted to say hi, and tell you that i was thinking of you and the baby. Something you wrote in one of your blogs really struck me. It was when you said that sometimes all you can pray is "heal my baby". Sometimes those are the best prayers. I am deathly afraid to fly in planes, but everytime I fly I pray a prayer that priest from Notre Dame told me to pray when i am scared. It is a very simple prayer: "Come Holy Spririt." I repeat it over and over and i am comforted. I thought it might help you too. Love, Leslie Malito
So glad that you had some "normal" today.
It is so encouraging to hear/read how you are finding joy in the midst of this amazing challenge. It would be so easy (and who in the heck would blame you????) to just sit at home and feel despair. But, thankfully, the joy of the Lord is your strength. Hebrews 10:39 says, "But we are not of those who shrink back and are destroyed, but of those who have FAITH and PERSERVE their souls!" Your soul is perserved through this crazy time. You have a Savior that is loving you and walking through this with you. Ultimate comfort amidst the worst trial I could ever imagine.
Hang in there, we are praying all the time!
Love, Les
ps- she was still cute even with the rash!!!!
i was so excited to hear you were able to just enjoy your sweet baby girl today! i sat this morning with tears just pouring down my face hoping and praying that you could enjoy every minute with livi!! - april stoltzfus
God is so gracious to us, isn't He? I read yesterday's post and immediately wanted to write a thousand words to you, offering perspective and encouragement, but I felt the Spirit prompted me to pray instead on your behalf. I prayed with such confidence that God was going to meet you right where you needed to be met in the way you needed and with the words you needed. And, today's post assures me that once again He has been God and He has been good!
I love these words from the worship song we sing at church, "...if my hold should ever fail, Your wondrous love will never let me go."
Emily, I can't tell you how many times my soul has rested upon those words. You're probably not going to walk through this perfectly, with a faith and a hope that never wavers from time to time. In those times when your hold on God's goodness begins to fail, rest in the knowledge that He will never let you go.
It is a mark of His grace upon you that you were even willing to write what you did yesterday. It's humble to express when we're faltering in our faith. God will bring grace to the humble and He often does it through others in His body. And, I saw that to be true once again through the posts left to encourage you and prayers uttered on your behalf.
I'll never be shocked by any place you find yourself emotionally or spiritually and neither will God. He's got you hemmed in, my friend. He has laid His Hand upon you and upon your family. (PS. 139)
I have continued to write some thoughts on getting through grief at Judah's blog, www.judahupdate.blogspot.com. See if it might encourage you in this journey you're on. Know that you're not on it alone.
I rejoice with you for the semblance of normalcy today. What a generous gift from our Father above who LOVES to give good gifts to His children.
I'll be behind the screen, petitioning faithfully before the throne of grace on your and Livi's and James' and your families' behalf on the good days, "when the sun's shining down" and on the harder days, too.
Love you so much, friend!!
Glad you had a good day - baby giggles are the best.
Thought of my little dancing Ally McBeal Livi baby at work today. My new co-workers are already seeing the tiny pic on my monitor and asking if she's mine. I tell them a)no need to be all up on my screen and b)I I wish she was, but I can't imagine how I would have handled a 10 pound diva. We're already collecting pop - ooopps - I mean soda can tabs in the break room.
Love you guys!
Rach
so glad to read this. God is so kind. i love you,
beth
Belly wiggle and self tanning spots? Just put a grass skirt over her diaper and a flower barrette in her hair and the outfit is complete!
:-)
Hope today is a good day, too!
...still praying!
Mary Ann K.
Emily,
So good you have learned to take joy in the moment. No matter what the circumstances of the day, or the season in our lives, "our boundries have been set in pleasant places". Now if that isn't a loose paraphrase of some old testament scripture. I first read it in some Elizabeth Elliot writing at some earlier time in my life. It stuck with me, hard. So much of our lives feel very "unnormal" at times, for a variety of individually unique reasons. We each have our own set(s)of trials which come and go or stay. But,...no therefore, a big therefore, you can see why I had to cancel the use of the word but...we must hold fast and treasure long to the sprigs of joy and contentment that press into our hearts from time to time. That you have learned this precept so young is a gift from a God who loves you very much. I remember a night years back, sitting on my deck, the sun setting over the pine trees nearby, two of my sons spashed and screamed at each other, in a rubber pool; inflicting pain I am sure. Both were probably too old and too large for the tiny pool; this made the moment all the more precious. Seems like an ordinary event. Why it affected me I am not sure. But the memory is vivid and the emotions it stirred still strong within my mothers heart. Hold fast to the Father's sweet love and the precious little gifts He drops in your laps. Love and laugh in the moment, and you will have a solid foundation; a joy in all things.
sek
sandy kimmel
Prise God you had a great day yesterday! I hope today is the same and that the rashes continue to fade. We continue to pray daily for you!
Today the UPS man asked how she was doing.(I've never met him before.) I think he knew because he was at Hershey at the same time you guys were and recognized the name. He said that his granddaughter, Samantha - 2yrs. old, has Leukemia and is currently receiving treatment from home. He knows Tracy F. and Sean T. He's praying for you.
It breaks my heart that these darling little girls have to endure such trials when they're just starting out in life...my comfort comes only in the knowledge that God is soverign and in control of all of this. He wouldn't let one of their hairs get hurt if it weren't part of his good and perfect plan.
love,
Viv
I don't know you at all, but please know that I am praying for you and your little girl today. I have been reading your posts and my heart is aching for you. God's grace is shining through in your fight to remain hopeful and cast yourself on Him.
Praise God. He is a miracle worker. I am gald you had a good day. I will keep praying for your fam and that livi will heal completely very soon! Keep on praying! You and james are such a big example to me in how you are trusting God through this whole thing. Thank you!
Love,
Moriah Freeman
How kind of God to speak to you through the giggles of your little girl! I'm rejoicing to see some "normal" for you in this entry. You needed it, I'm sure. I pray that you continue to see the kindness sovereigntyof God in all this. I am praying hard for you and your family. Thanks again for being so faithful to keep us all posted with this blog!
~Laura Carroll
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