Drained

You would think that a day of waiting wouldn't be that big of a deal but it is. Every once of strength is put into the waiting, entertaining and calming the baby. And watching her cry and be stuck and scream because she is scared and confused. I am with her on the scared and confused. We learned not much new today. Her white count was up to 180, reds up to 97 and platelettes down to 54 (not dangerous but not good). He thinks the rash on her legs is from the antibiotic so we are stopping that (her ears are fine anyway). He did say that it was a bit more rash than they usually see with an antibiotic reaction but we'll see if it clears up. She also has what looks like dry skin on her face and around where her collar would be and he thinks that is from the sunscreen I used the other day (those are the only 2 places I put it). With both we have to watch them (oh goodie more to look for) and see if they get better. If not then we will have to get a skin biopsy by a dermatologist.

We are going for a surgical consult next Wednesday to schedule a bone marrow biopsy, lymph node biopsy (she has 2 new ones under her arm) and possible a liver biopsy. He also got in touch with a Dr. at Children's of Pittsburgh and that doc said that he should rule out ALL infectious diseases and parasites before diagnosising. This is hard to do in a baby though since it take a lot of blood to test for each disease and obviously she doens't have a lot to offer. So they have to start ruling them out as they can. Also they expect the final test results in regard to JMML tomorrow (from Alabama). He will either call tomorrow or Monday with the results.

So more waiting.

Here are the prayer requests....
Wisdom for the doctors. (especially Dr. Powell)
No signs of distress
Results from Alabama to be negative!!!!
Both the rash and the dry skin to clear up quickly.
plateletts increase (otherwise they will have to transfuse before the biopsies... In that case I hope we have enough time between the consult and the surgery for people we know to donate so she can use their blood!)
Peace for us. We are tired and drained and need a boost. I keep hopeing for some good news. Instead its either bad or just the same. Good news would be so nice.

Thanks for today
My parents for driving here last night just to go to the DR. visit today and then going back home.
Cynthia for going with us today.
Dinner from Christine Lewis and Kathey Booker (now I don't have to cook tomorrow either)
Cards from Marmie (the greatest grandma that a girl could ask for....I love you Marmie!), my Aunt Marie and fam and the card and gift from the Lutheren Ladies Aid Society. I don't know who you are but what a blessing. Thank you so much.