Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Monday, June 26, 2006

Crazy day

I am currently sitting in front of the computer in the lounge of the hospital eating a cold hamburger. Not what I planned to be doing at 11:30! Today started out wonderfully. We got to the hospital around 9:30 and got the IV started and blood drawn. Then we waited for her counts to see if she needed platelettes...which she did. But the good news was that her WBC's came down to 50! So good. So thankful. No vincristine...again! The doctor is hopeful that the meds are really working and she will just keep taking them. We also signed for permission to do another bone marrow biopsy since she would already be sedated.

We sat through the platelettes (1 hour) and by the end she was getting pretty crabby since she hadn't eaten since 8am. Finally we took her over to the same day unit (surgery and going home on the same day unit). By this time she was pretty upset and hungry and tired. We did everything we could think of to keep her happy. Then they came in with the happy medicine that is supposed to calm her and make it easier to hand her off to go to the OR. Well she was calm and sedate and silly for about 20 min at the most. And it took way longer than that to get everything ready for the OR. So she was pretty upset when we handed her off. I could hear her crying as we walked away. We went and had lunch (worst lunch ever...all I could think of was her and how she wasn't getting to eat). Then James and Dad went to pick up her perscription and I went to wait in the waiting area. They got back and we all sat around and talked till the call came that she was out of surgery (thanks for visiting with us Dr. Booker...always nice to see a friendly face...makes me laugh to call you Dr. Booker).

I got a bottle and went right down to see her. She was really upset and just wanted me to hold her. She was really flushed (almost bright red) and hot to the touch. But when they took her temp it was only slightly elevated and went down to normal pretty quickly. Her pulse oxygen level wasn't good, she was breathing quickly and her heart rate was really high. So they watched her for a while in recovery and then decided to take her down to the same day recovery area. That way we had our own nurse and constant care. We got there around 4:30 and by 7:00 her stats hadn't gotten much better unless she was on oxygen so they decided to admit us to watch her over night. They think that she didn't react well to the kind of anesthesia that they gave and that some of her smaller airways (bronchials) might have collapsed. The doctor (not our regular oncologist) said that she thought that it would clear up overnight with continued oxygen and if not they will give her a diaretic tomorrow to clear out any fluid. (I just stopped typing for a moment and realized how crazy it is that I'm even saying these things about my little girl...what happened to our lives?)

She has the oxygen tubes in her nose...which she hates and keeps trying to take out, so they taped it to her face. Right now James is holding her and she is sleeping. Its going to be a long long night. Thankfully its already part way over. Don't think I'll get much sleep.

The port looks...fine, I guess. It is a large bump in the middle of her chest. One of the residents asked me what that bump was....okay seriously did you read the chart before you came into our room? But it will make it much easier on her little veins and so that will be good...once we get her back to breathing right. Definetly not what I expected from today...but then its not what I expected from my life either. Guess that's why we shouldn't have expectations.

Thanks to...
...Angie for the meal. The boys (James and Dad) loved the sausages. Might need you tomorrow after all...in a different capacity. I'll call.
...my Dad for being with Alivia and I every step of the way today.
...James for driving back and forth twice and working when he would much rather have been with us.

Better get back to my girl and my husband.


Anonymous Anonymous said...

Expect the unexpected. Luv you guys! Hugs to bumpy chested lil girl. Luv you guys so much. Can't wait to see ya in a couple weeks. She'll be the hit of the wedding.


Grande Aunt Lisa

11:22 PM  
Anonymous Anonymous said...

So sorry to hear about the rough patches today. Will be thinking about all of you and praying for smooth breathing for Alivia in the morning.



12:26 AM  
Anonymous jamie said...

morning emily-
i am thankful that the meds are working and that the WBC went down. the Lord has made you a loving and caring mother for alivia as you continue through more test, blood work, and unexpectated overnight. i will pray that her breathing will come with ease this morning and whatever amount of sleep will be sufficent and give you strength for today! love you-jamie

7:07 AM  
Anonymous Audrey Drago said...

Dear Emily,
It is so evident that God has continued to pour out his grace on you, James, and the entire family. You have loved and cared for Alivia so well. I will continue to pray for His continued grace and for His strength for today...

7:18 AM  
Anonymous tina said...

wow, what a day. thankful for the good WBC. praying for the little sweetie & quick recovery from this reaction. and for your strength. xoxo

7:22 AM  
Anonymous Anonymous said...

Wow, don't even know what to say...you had quite a day! Good news about the WBC! Sorry that everything else was so tough. Glad that James could be there and your dad too. We were praying all day and constantly checking for an update. So, glad to hear that so far, all went well. Hope her night went well.
Call if you need anything at all!

Love, Les

7:26 AM  
Anonymous Anonymous said...

Good morning...though I know your morning probably didn't seem much different from the night...I hope and pray that reports today will be brighter. Thanks Dave for being so upbeat when you spoke with me. You guys are truly laying down your lives for this little precious one of ours, whom God loves more than us! Mom

7:29 AM  
Blogger All the Millens said...

Oh Emily, it breaks my heart to read your post. How hard for you. I am grateful for the news about her counts. So grateful you have your dad and James to be alongside you. I think of you often and pray. Love you! Katherine

9:36 AM  

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