I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.What time is it?
I have lost all concept of time. Maybe its because we are waiting around for a bunch of tests all day or because I slept less than 2 hours last night. Either way I am confused. I thought it was midnight and it was only 9:20. Didn't help that I feel asleep for a while right around 8: something.
We got some good news and some mixed news and some possibly scary, bad. After all the stress and trauma of the last few days her white cells dropped to 43. That is so great. All the doctors we expecting a spike from the stress. Seems like the medicine is working. The meds that were to clear up the fluid in her lungs don't seem to have worked. She is still breathing rather quickly, although her oxygen saturation is a little better. We had an EKG and it looked fine but we have an Echo schedules for "first thing" tomorrow morning and another chest x-ray. We have been handed a bunch of different scenarios and no real answers as to why this is happening. First is fluid overload from the surgery, Second, allergic reaction to one of the medicines used for intubation, Third, the beginnings of cardiac failure. Obviously the last is the scariest. The first should go away with the medication she took earlier, the second should go away with time as her body works out the reaction and the final one they haven't really told us what they would do to deal with it. I think because I'm so tired I'm sort of numb.
Thanks to...
...Ang for spending most of the afternoon with us
...Corey and Kathy for both stopping by (at different times) and bringing dessert
...Pete P., Doug P., Kurt W. and Lyndon and Jamie S. for driving up here to see us and pray for us.
...James' family (Bill, Cynthia, Uncle John, Uncle Chris, Uncle Matt and Aunt Vivian) for spending the evening with us
...my dad for sacrificing and only sleeping about an hour all day so he could help out. I couldn't have made it through last night without you Daddy. I love you tons.
Livi is so lucky to have you for her grandpa
Pray for...
...good Echo (sonogram of the heart)
...clear lungs
...slower heart beat and breaths
...good oxygen saturation in room air (She's still on oxygen and hasn't been without it since the surgery)
...sleep
posted by Alivia's Momma @ 9:36 PM
22 Comments:
Emily, I don't know how you can even think to write for others in the midst of all this, but thank you for giving us a post at "bedtime" (for those of us not on hospital time). I am praying already for everything you listed. It's great that the white count is down at least. Just want you to know that so many are praying for all of you.
Cathy S.
i am praying for you. i pray that you get some sleep, and everything goes well tomorrow. run to God for comfort, he will not leave you. you are an example to me. Thank youfpr keeping us all updated. please give you livi and james a big hug from me.
rest in Gods arms,
Christi B.
Em-
I'm asking the Lord to give you guys rest tonight as you so desperately need it.
The love that you give to Livi & the way that you care for her is absolutely amazing!
Sweet Dreams!
You are all on my heart and my thoughts and prayers go out for each of you tonight. I am praying for great results in the morning.
Love,
Caroline
i am praying.
i love you,
beth
Emily,
Although I have prayed for you all since Alivia became sick, this is my first visit to your site. My recent worries of the financial crunch of how to make ends meet with a single-income family of five boys who are always hungry really pales in comparison to what you are living. May the Lord equip you with all you need this moment...and moment by moment.
Grace Louther
Emily -
I know I haven't commented lately, but I wanted you to know that you and Alivia are never far from my thoughts. Despite all of the last minute wedding stresses, I am checking your blog for updates at least once a day. I know I haven't seen you for a while, but it is so nice to have this blog so that you can keep everyone posted. I can't wait to see you guys soon... I'm still knitting (very slowly, but surely)
love times ten million,
Sarah
Praying and praying and praying. Can't sleep, so more praying. Praying that you could sleep! Praying that you would get some good news tomorrow. Praying that you would sense the Loving arms of the Father embracing you. Praying for that miracle! Lord have mercy on this little one!!!
Love you, Les
emily,
Thank you for loving Livi with all that He has given you each day to pour out to her. Thank you for loving your husband and caring for him when the days are long. Thank you for continuing to welcome others into this season of life with you even when we can certainly say the wrong thing or the insensitive thing. I'm praying that even if you don't find out what His purpose is in all of this - that you will trust that it really is all about Him. When days are hard or the news is tough - it's about Him. When the reports are good and the medicine is working - it's about Him. He's bringing others before His throne on your behalf. He's hearing every prayer. He's speaking thru His Word to encourage your heart (& others as we seek to understand what happened to your "normal" too :).
For this reason I bow my knees before the Father, from whom every family in heaven and on earth is named, that according to the riches of His glory He may grant you to be strengthened with might through His Spirit in the inner man, and that Christ my dwell in your hearts through faith; that you, being rooted and grounded in love, may have power to comprehend with all the saints what is the breadth and length and height and depth, and to know the love of Christ which surpasses knowledge, that you may be filled with the fullness of God. Now to Him who by the power at work within us is able to do far more abundantly than all that we ask or think, to Him be glory in the church and in Christ Jesus to all generations, for ever and ever. Ephesians 3:14-21
And may even the familiar passages be rich to your soul and fresh to your ears as His Spirit brings comfort to you!
Praying now for rest.
love you, kathy
thinking of you this morning too.
praying for your day and that the echocardiogram goes well! :)kb
emily-praying for the x-ray and echo this morning and for clear results and that the fluid has cleared up. i am amazed at the love, care, patience, and faith the you are walking out through this time. may you continue to know and feel his grace today. praying that alivia will be healed.love jamie
Thinking of you first thing this am. Praying for good news and a miracle for your baby girl!
Love you much, Les
Lawrence and I prayed last night before we went to bed... remember that place? It's probably a foggy memory at this point. :)
I read this passage this morning and actually thought about sending it to you last night. Here it is. I pray it encourages you to set your mind on the One who controls even the wind and the waves, lungs and hearts and WBC's, too.
From Mt. 8:
Jesus Calms a Storm
23 And when he got into the boat, his disciples followed him. 24 And behold, there arose a great storm on the sea, so that the boat was being swamped by the waves; but he was asleep. 25 And they went and woke him, saying, “Save us, Lord; we are perishing.” 26 And he said to them, “Why are you afraid, O you of little faith?” Then he rose and rebuked the winds and the sea, and there was a great calm. 27 And the men marveled, saying, “What sort of man is this, that even winds and sea obey him?”
Emily,
We have been praying hard for you. Hope you all had restful sleep. Anxiously waiting for news... praying for your miracle.
Continuing to pray for Livi's health and your family's sanity! I'm also asking God to take away just one of your tears for the many He's allowed me to shed on your behalf.
Maureen
My heart aches for you and james. I don't know how you go through all this, but it looks like you are doing a good job. I was brought to tears when I read this post. Emily thanks for caring for you daughter and james so much. I am praying for you guys comstantly. I pray they will figure out why livi is so sick and will heal her. I am praying that the Lord will send that miracle for livi. Get as much rest as possible.
Call out to God,
moriah
praying tons...
~Bry Freeman~
Emily,
I have never known of a family or situation that has touched so many lives. It's like we, who don't even know you personally, truly love you, Alivia, James and your family. You have become a very real part of our lives and hearts. No words can express our yearning to see Alivia completely healed. We love you!
Maryann P.
Emily & James,
Altho' I haven't previously written, you have been continually in my prayers. I pray for continued healing for precious Livi. I pray for you both that you would continue to be upgirded with an astounding fortitude, enending courage, and a resilience that can only come from the power of a living God. Let your focus be always on the One who never disappoints. I am encouraged in the Lord, through you both & I will be praying with the many others!
Love, Cynthia Snyder
Emily and James,
My heart is aching for your sweet Alivia, and the heartache that both of you are experiencing through this trial. I have and will continue to pray for Alivia to be healed. I have also been praying for God to continue to give you strength and peace (and praising Him for giving you strength and peace).
I pray these scriptures from God's word will encourage your heart, soul and mind.
Isaiah 40:28-32
28Do you not know? Have you not heard? The LORD is the everlasting God,the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom.
29 He gives strength to the weary and increases the power of the weak.
30 Even youths grow tired and weary, and young men stumble and fall;
31 but those who hope in the LORD
will renew their strength. They will soar on wings like eagles;
they will run and not grow weary,
they will walk and not be faint.
Isaiah 41:10
So do not fear, for I am with you;
do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
Much care and love,
Lori
Dear James and Em,
Thanks for taking the time to keep us posted with everything! We are praying, praying, praying for you all. We do pray that all the tests today will be clear and result in good news. Hope that today will bring some sunshine your way! Hang in there. Love, The Knutsens
Jesus, Jesus, Jesus! Hear our prayers, each one. We are asking, pleading, crying out. We worship, trust and lean on you. Only you. There's no one else! Let humility and repentence be the order of the day for any of us who need it (that would probably be all of us) Then, we will cry out with one voice together, for complete healing and restored health for Livi. For our joy, and your glory.
Aunt Marcy
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