I spent a large part of my day on the phone with people from the national bone marrow registry. No... we haven't been told that we have to have a transplant but I need something to do and in case Alivia does need one I want to be prepared. So I got all the info on holding a bone marrow drive. My friend Rachel (one of the greatest organizer I know) is going to head up the committee to plan one. Even if we never have to have one I want to add to the registry so other families who need help can find it. I guess that is the first thing I learned today. If they test you it won't just be for Alivia. It is just too expensive to test for individuals. If they did that for everyone that is all they would be doing and it wouldn't be productive. So if you want to get tested you must realize that you will be added to the national registry and you may get called to donate for someone else. If you are tested you will recieve a card and you will be eligible to donate till you are 60. So its a big commitment. But if it could save a life why wouldnt' you want to. And it is a 1 in 20,000 chance you will match anyone. Getting tested isn't a big deal though. All you do is fill out a health form and get your check swabbed.

If you aren't from the Lancaster Area and want to donate on your own please click HERE and they will send you the info to get registered.

Tomorrow is another doc visit. We will do counts,see the doc and have a chest X-ray. I don't know if we'll have a transfusion. I don't really feel like talking or dwelling on it right now. Today was good was good and I'm going to go spend the rest of my evening with my family. I'll write when we get home tomorrow.

Pray that we never, ever, ever need to have a bone marrow transplant.