Grrrrr

we can't go home till we have 24 hours without oxygen. She wasn't on oxygen from 6-11 tonight but as soon as she falls asleep her stats drop and we are back on oxygen. don't know how long that will go one. it is pretty frustrating just being here for that. all her meds are now oral, she isn't even on any IV's and so she just accessed for no reason (just in case) and we'll be here indefinelty. obviously it will be at least Sunday now before we're home. Even if she spends the entire day off oxygen tomorrow we have to make it through tomorrow night without it. pray for strength for me and for everyone else. nights here are so long and no one gets much sleep. its hard to entertain her all day long in the little tiny room when she feels fine and would like to be running around playing. At least tomorrow she'll only have to pulse oxygen monitor so she'll be able to get around faster. I definelty think its harder to be here when things are going well then going poorly (not that I'm wanting poorly). but when things are going really well you just want to get out while you can and its hard watching another day go by with no hope of going home.

obviously i'm overtired and a bit discourage tonight. excuse my ramblings.