Day +42

Just a quick update. Alivia is official not Neutropenic (who knows if that is spelled right) anymore. It means that she has an ANC count of over 5000 and thus is less likely to get an infection. Avoiding infections is huge!

Her liver functions have been elevated and they have had to stop 2 meds and the lipids (fat) of her IV nutrition. Then once the numbers come down they will add the most important of the meds back in and hope that it is not the culprit for the high liver functions. Hopefully they will be able to figure this out soon.

Her WBC's and platelets seem to be engrafted (for the last few days her platelet numbers have risen slowly instead of drop) Her RBC's are slowly decreasing but seem to be holding on longer than usual. She hasn't had a transfusion since the 11th.

She is still having major stooling issues. Hopefully the increased steriods will combat the GVHD and thus clear up those issues. GVHD can become pretty major. You can die from it if it reaches stage 4. Not sure what stage Livi is but it is lower. Pray that they are able to get in under control because it can get out of hand rather quickly.

She had an overall good day today. She walked all over the place (where she's allowed to go) she hasn't had this much energy in a long time. She usually walks for a bit then wants to be carried. Today she walked up and down a very long hallway twice. It was good to see.

Over the next few weeks you will hear from James, my dad and maybe others. My dad will be going home again this week. So if you have anything to add to the nurses gift now is your big chance. Please consider doing this as they have truly made our lives so much easier.