Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Saturday, April 21, 2007

Day +42

Just a quick update. Alivia is official not Neutropenic (who knows if that is spelled right) anymore. It means that she has an ANC count of over 5000 and thus is less likely to get an infection. Avoiding infections is huge!

Her liver functions have been elevated and they have had to stop 2 meds and the lipids (fat) of her IV nutrition. Then once the numbers come down they will add the most important of the meds back in and hope that it is not the culprit for the high liver functions. Hopefully they will be able to figure this out soon.

Her WBC's and platelets seem to be engrafted (for the last few days her platelet numbers have risen slowly instead of drop) Her RBC's are slowly decreasing but seem to be holding on longer than usual. She hasn't had a transfusion since the 11th.

She is still having major stooling issues. Hopefully the increased steriods will combat the GVHD and thus clear up those issues. GVHD can become pretty major. You can die from it if it reaches stage 4. Not sure what stage Livi is but it is lower. Pray that they are able to get in under control because it can get out of hand rather quickly.

She had an overall good day today. She walked all over the place (where she's allowed to go) she hasn't had this much energy in a long time. She usually walks for a bit then wants to be carried. Today she walked up and down a very long hallway twice. It was good to see.

Over the next few weeks you will hear from James, my dad and maybe others. My dad will be going home again this week. So if you have anything to add to the nurses gift now is your big chance. Please consider doing this as they have truly made our lives so much easier.


Anonymous beth said...

praying and praying,

11:33 PM  
Anonymous Anonymous said...

God is with you all the days and all day long. Praying, Janet S.

7:14 AM  
Blogger Jude's Mom said...

Just wanted you to know that we remain with you! Praying always!

The Garners

10:29 AM  
Anonymous Anonymous said...

Continuing to pray for healing for Livi. Praying also for strength and a refreshment of spirit for you. Thankful for the improved ANC, WBC's, and apparent platelet engraftment - praying that the other parts of Livi "catch up" soon and everything will work together perfectly before you know it. Good to hear that Livi was able to be more active yesterday - praying she continues to feel better.
God bless -
Cathy S.

10:41 AM  
Blogger momofcolin_chloe said...

So happy for the less likely to get an infection part! Praying regarding her liver function. Thrilled about the engrafting and rising platelet numbers!!! And lack of transfusion!!! YIPEEE!!!! Praying for lessening of poopies and clearing up of GVHD quickly!


I am once again not sending cards for the nurses because of sickness, but please know that I want to so badly. I have the here...I think I will just sent them directly to the nurses station if that is alright with you, later on down the road. I'll keep our germies her in Indiana. Not that we want them either, but no need to share. :)

9:32 PM  
Anonymous Anonymous said...

Still praying for your precious little girl! So glad to hear she is getting some energy back!
Kristen E.

10:17 PM  
Anonymous Anonymous said...

Thank you, Emily, for sharing a good report!
Glad to hear of the increase energy; I think that is because the counts are looking pretty good.

Still praying!

Mary Ann K.

7:45 AM  
Anonymous Anonymous said...

Just want you to know that our Covenant Discipleship Group at Trinity United Methodist Church in Indiana, PA continues to pray for all of you!

Gail Maples

9:43 AM  
Anonymous Anonymous said...

Thaanks emily, love, Mom.

12:00 PM  

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