explanation

Someone recently asked me to explain how Alivia's leukemia could cause organ damage (guess I've referred to that a few times and not explained it) so here goes (as far as I understand it).

When there are two many of the eosinaphils (the type of white cells Alivia has) the sooner or later will start to attack the organs. They usually fight disease but in this number they dont' have anything to fight off so they go after good tissue. That is one of the reasons we are constantly looking for shortness of breath, temperatures, lack of pee, too much poop, throwing up, strange eye movements, abnormal facial movements, other neurological abnormalities, etc. Officially in order to diagnosis Hyper Eosinaphil Syndrom/Chronic Eosinaphilic Leukemia you have to have the organ damage (one of the three criteria) but our doctor said he wasn't willing to wait for that (thank you very very much). It seems like most adults don't realize they have anything wrong until there is organ damage. That would be why they would go to the doctor and then find out that its leukemia. Unless you are getting regular bloodwork you wouldn't realize that you have to many eosinaphils until it was too late. In adults the prognosis is good as long as there isn't organ damage. Unfortunelty Alivia is the first one her age to have this kind of leukemia so they can't say what will happen down the road. Obviously we are hopeing for and praying for a miracle.

Hope that explains things a little better.