Aquarium, New Years and News
Friday we went to the Aquarium. It was so much fun. We went with John, Chris, Will and Jeremy.
Uncle John, Uncle Chris, Livi (in pack), James, Jeremy and Uncle Will
Our Family
Of course Alivia's favorite part was feeding the pigeons in front of the aquarium. Isnt' that how it is with kids...give them a toy and they like the box and wrapping paper better. She did like the sharks though....okay so the large cut outs of the sharks that show what kind of shark were a little more exciting then the actual sharks but she did get excited when the one shark was asleep and kept shushing everyone. Sweet.
New Years Eve we had some friends over. It was such a good time. I'll post a picture or two later. Our friends, Neil, Jess, Nyah Smart and Jake Campbell came for the night. We haven't seen then in so long and it was great to spend time together. We had 16 people here. Lots of laughter and fun. A very good way to start what might be the hardest year of our lives.
Yesterday...New Years Day we hung out with Neil, Jess and Nyah all day. We cleaned up (no dishwasher makes that a much longer process). Jess and I started doing the dishes at one point and were putting things down the disposal when the sink started to act weird. One side would drain and the other would fill and vice versa. So we tried the disposal one more time and water came shooting out of the pipe by the washing machine (which is in the closet in our "dining room"). It shot up and hit the top of the door and the window outside the closet. It was the grossest thing. We were laughing and freaking out. (all of this happened less than 20 min after Alivia threw up) What a mess. I sort of hit the end of the rope when that happened. So we called James' brother and asked for help. They showed up with 3 friends (thanks guys) and helped clean up, take down all the Christmas decorations and get our home back to some form of clean. It was the most amazing thing.
On Friday while we were in Baltimore we got a phone call from our doc. After much discussion they decided that Alivia has become resistant to the Gleevec. So they discontinued its use. They restarted the use of steriods and Hydroxyurea (I couldn't spell Gleevec...so thats probably wrong but who cares). With those she also takes Zantag to keep from getting heart burn. The transition hasn't been as smooth as I would like. I just have to get all organized and get the timing figured out again. This time though the Hydroxyurea is to be taked with food. Good thing cause steriods can make her incredibly hungry (they haven't yet but we're ready for it). Also we found out that we have her surgical consult for the spleenectomy on Wednesday (yea thats tomorrow) at 8:30 AM. We knew this was all in the works but it is still a little shocking to actually have appointments set up. We have been told that one the spleen is removed it will be 2 weeks till transplant. So far there is not an adult unrelated donor found so we are praying that happens soon. We would rather use that then a cord. But God knows what is best and will give that too us. The last time we had a surgical consult they planned the surgery for less than a week after so we are trying to be ready for that possiblity. I feel a little like we hit warp speed on Friday. We've been dragging along waiting for something to happen and now it is and I'm terrified and totally unprepared. I feel like I have a million things I need/want to do before the transplant. Guess we'll just have to make every second count between now and transplant (and ever second after)
Thanks to Dwayne, Tina, Andy, Amy, Jamie ,Lyndon, Neil, Jess, Nyah, Jake, John, Chris, Will, Jeremy, Duke, Steve and Ryan for spending a fun New Years with us (and for bringing such great food)
Thanks to Neil, Jess, John, Chris, Will, Duke, Steve and Ryan for being our cleaning elves. It made my life about 10 times easier. So much less to worry about. I wasnt' sure if we were going to get the tree down before transplant. We couldn't have done it without you.
Thanks to those who told me there were reading the other blog. I will try to post more medical info soon.
please pray that tomorrow's consult goes well and that counts are better than last week. Also pray that the meds shrink the spleen again (it got bigger when the meds stopped working) or they wont' be able to do laproscopic surgery.
8 Comments:
Hey Haughery Family! As always, thank you for keeping us posted. I will be praying for Little Livi to get a perfect match.
Love yinz,
Maureen
God will provide. Thanks for keeping us updated and sharing your requests for prayer. Four small scars are a reminder of my lap splenectomy and God's kindness in healing me of a blood disorder. I'm praying for healing for Livi and indescribable perfect peace for you and James and your families.
Jan
Praying for you all and glad to hear of a fun NY's celebration! Would have called you while at the Aquarium to see about seeing you, but we are all sick right now. Didn't think any of us would benefit from even a short visit! But, glad ya'll had a good time. :)
love you much, friend
Names:
here's what we've got so far:
Isabela Claire (girl), call her Bella
Noah William (boy)
BTW..I have ALWAYS wanted to use David, but my hubby doesn't like it..nothing personal. :)
And, five pushes? would that be good? how 'bout two pushes? or is that too fast? don't know how the whole pushing thing works since I didn't get to do that w/ the boys (and with the size of Judah's head, I am very grateful! :)
Thanks for the update Emily,
I can't imagine how scarry this is for you...I'm thinking about you guys and I'll be praying about tomorrow's appointment.
love,
Viv
Well, here we go! We are praying, Emily and James, for precious Alivia. Now it's showtime! God bless you this new year with perfect health for Alivia. Love you guys, Aunt Cheryl
Thank you for the pictures. You guys are a good looking bunch. I will pray this morning that the medicine shrinks Alivia's spleen and that her counts gets better.
Much love,
Margot
Cute Pictures Emily!! We are praying for you guys this very moment!
Love & Blessings, Brandi & family
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