Who's the cutest girl around?

I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.

Tuesday, January 16, 2007


Today's visit went really well. Alivia's counts were good again.
RBC's -10.1

There were no tears from Livi but a few from me when I realized that was the last time her mediport will be accessed. I know I didn't want it but I really really don't want the broviac! The mediport has given us some trouble but overall has been a good thing because it kept us from the labs. After next monday they will remove the mediport and place the broviac. Just one step closer to transplant. Yuck. I pray that we will be released from the hospital in enough time to visit the clinic one more time before transplant. I can't imagine not seeing the nurses from that long. I will miss them terribly. They have played such a huge part in this whole illness. They have comforted, cared, laughed and cried with us. I love those ladies.


Anonymous cynthia haughery said...

I felt sad, too, thinking about not seeing the nurses for a long time now. They have been.....I don't even know how to say it fully! They have walked with us through so many difficult days. They feel it with us. They are caring and intelligent. They know what needs to be done and then they can do it. They are just amazing women. God has used them in our lives so profoundly. We are comforted just seeing their faces. They're the best. I don't know how else to say it.

I wish that we could see them get a really, really great reward. Is that part of what Heaven will be like? Watching the right people get amazing rewards?


4:05 PM  
Anonymous Anonymous said...

I am so glad that the clinic ladies have been such a comfort to you guys. I pray that going forward all of Livi's health care providers will have the best bedside manners and give you the same level of reassurance that you've received so far. I don't know how anyone could resist going all out for that munchkin.

Love, Grande Aunt Lisa

6:59 PM  
Anonymous beth said...

praying for you
"let me find Your joy in my sorrow
Your wealth in my need
that You're near with every breath
in the valley"

7:02 PM  
Anonymous Anonymous said...

Emily, James, Alivia and fam
and relatives
we are praying for you and admire your perserverance and faith.
the holutas

Below is an excerpt from a message by John Piper that encouraged me and challenged me.


Lamentations 3:22-23, "The Lord's lovingkindnesses indeed never cease, for His compassions never fail. They are new every morning; great is Thy faithfulness."

"there is fresh mercy from God for each day's appointed pain. Today's mercies are not designed to carry tomorrow's burdens. There will be mercies tomorrow for that. Today's mercies are for today's burdens.

It's the phrase "they are new every morning" that gives me this great confidence that each day's mercies—each day's kindnesses—are given specifically for that day. Ponder that with me. Let it sink in. "His mercies . . . are new every morning."
Why are they new every morning? Why does God do it that way? It's not because yesterday's mercies were bad or weak. It's because they were yesterday's. Yesterday's mercies were for yesterday's burdens. Today's mercies are for today's burdens. They are new every morning. They are like the manna in the wilderness: you can't keep it overnight. Enough comes for each day. You live on God day by day, or you don't live on God."

Lyics from a Sewdish Hymn

Day By Day (Swedish Hymn)

Day by day, and with each passing moment,
Strength I find, to meet my trials here;
Trusting in my Father's wise bestowment,
I've no cause for worry or for fear.
He Whose heart is kind beyond all measure
Gives unto each day what He deems best-
Lovingly, its part of pain and pleasure,
Mingling toil with peace and rest.

Every day, the Lord Himself is near me
With a special mercy for each hour;
All my cares He fain would bear, and cheer me,
He Whose Name is Counselor and Power;
The protection of His child and treasure
Is a charge that on Himself He laid;
"As thy days, thy strength shall be in measure,"
This the pledge to me He made.

Help me then in every tribulation
So to trust Thy promises, O Lord,
That I lose not faith's sweet consolation
Offered me within Thy holy Word.
Help me, Lord, when toil and trouble meeting,
Ever to take, as from a father's hand,
One by one, the days, the moments fleeting,
Till I reach the promised land

9:06 PM  
Anonymous Anonymous said...

Thankful for the good numbers.
Will pray for exceptional future nurses.
Maryann Plesnicher

8:46 AM  
Anonymous Anonymous said...

We have been away since New years,
so I had some catching up to do.
Please know you are in our thought and prayers.

10:16 PM  
Anonymous Anonymous said...

Hope you are having a wonderful week! I just wanted you to know that I'm thinking of you this morning and I can't wait to get started on Livi's blanket today!


9:32 AM  
Anonymous Anonymous said...

It is amazing to me how God has given these nurses such a place in your hearts! How comforting it has been to see their caring faces and know that they "know" Livi and care for her. (Time after time it seems, to me at least, they have gone the extra mile to extend compassion to you all! I don't know how they do it, to be kind to each and every patient and family...and they are. God has truly placed some amazing people in your lives, and I trust He will continue to do so... I think they see your cheerful face (and Livi's and Cynthia's) and can't help but respond to it...you have blessed them too! Love, Mom

5:57 PM  

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