I am a mom of a cutie pie (very biased). And I wanted to share my experiences with others (including my cuties grandparents, great-grandparents, numerous uncles and other relatives). I love being a mom and can't imagine doing anything else.Surgical consult
Today's surgical consult went as well as any discussion about cutting open my baby can go. It went fine. We learned a few new things...like it doesn't really matter how small the spleen gets they have to do an open splenectomy (not laproscopic). So all that concern and hoping for a shrinking spleen...kind of pointless...unless it had become normal at some point. We have a date too for the surgery...January 22nd. We will have the open splenectomy and have a broviac line put in and her current media port removed. The broviac goes into the vein like the media port but then 2 lines hang out of the body at all times. From the OR she will be in the ICU for at least a day or two to closely monitor her breathing. Then she will be moved to the floor for a few more days. In all we should be there at least 5 days. Its pretty intense and a little to real. I am feeling very overwhelmed right now. We have been talking about it so long it almost seemed like it would never really happen. Please pray for peace, for a perfect surgery, for healing.
Counts today went really well. Her WBC"s were down to 32! Last week there were over 120. Huge jump in the right direction. Her RBC's held their own at 9.7 and her platelets came up a bit. So at least that felt positive. I know its important not to rely on the numbers but it sure is a blessing to get good ones.
Monday will be 9 months since this all started. Nine months of ups and downs and lots of uncertianty. I am scared beyond belief of transplant but thankful that at some point we could be done with leukemia.
posted by Alivia's Momma @ 12:56 PM
16 Comments:
Hang in there Emily! You are doing a great job under the most frightening of circumstances.
Alivia is always on my heart and in my prayers...you all are.
Remember..glance at the giant but gaze on Jesus.
In His Love,
Maryann Plesnicher
How can I tell you how much I love you, and how amazing you are being in the face of all this? You don't see it, but others do! Thank you for being such a good mom to Livi and the best daughter a mom could have! All my love, Mom
Ditto what Gretch said (except substitute niece for daughter.
Love you guys, Grande Aunt Lisa
I love ya so much, friend...wish I could give you a big hug today. But, today, I'd be likely to cry all over you and you probably don't need that right now. I will pray for you instead. :)
thanks for the update emily. i'm gonna write livi's surgery on our calendar. praying for you today. xoxo
Praying for a textbook surgery...no surprises, simple recovery! Always thinking of you all...one more step to healthy Livi...one more step.
praying everyday. love you.
Done with leukemia! Let's concentrate on that! Yes!
Leukemia is such an icky work. They should have some kind of filter that bleeps it like they do bad words on some TV channels.
"Glance on the giant but gaze on Jesus." That's good! Aunt Cheryl
I am praying for you guys. I believe: she will be fine, she will be fine, she will be fine! God bless you,
I sometimes just sit hear and think what I can say to make it all better. I know I can't say anything that would, but I wish I could. I am praying for you guys Emily. When I think of things that I want to complain about, I always think of you because I know none of the things are even as difficult as what you are going through. Remember that the Lord planned all this all for a reason we will never know. Your trust in God is such an example to me! Remember not to put all your faith in those doctors, because the Lord know more than they do. I am praying for you guys.
love,
moriah
Just wanted to say I miss you seeing you! You know, just driving by on the way to our house made me feel somehow connected to you guys and now I don't get to do that anymore. I marked our calendar for January 22. Of course we will be praying before that, but you will certainly be in our prayers that day and the days that follow. Your mom is right...you are amazing! God's grace is evidenced in your life, Emily!
Love,
Julie
i am praying for Alivia and your family.
"This is what the Lord says to you: 'Do not be afraid or discouraged because of this vast army. For the battle is not yours, but God's'." 2 Chronicles 20:15
"Set your minds and keep them set on what is above, not on the things that are on the earth" Colossians 3:2
You truly are an inspiration to me!
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Alivia has been heavy on my heart this week. Praying for a perfectly successful transplant.
With love,
Amy F.
I was thinking of you tonight cause I just had an "asiago roast beef"-- they always look SO good when you get them!
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